posted
I was dx last year, (Igenix) symptoms for 20 years, and have been on all the usual oral meds and supports, diets, etc.
I had a two week period not long after starting when I was completely pain free, then it ended and I have been in various states of decline ever since. Now the pain free time seems like a cruel joke and wish it had never happened.
My doc is very responsive and changes up my meds as needed. Some have been changed as I did not tolerate them from a GI standpoint; some were changed because I wasn�t progressing. I believe he has been correct with the meds he is choosing for Lyme and co-infection coverage and he has done blood tests and other tests appropriately.
However, it is getting hard to walk, move in bed, dress and groom. I am becoming very weak, hard to lift my arms and legs. I drag myself to work but have been making mistakes and it�s hard to hide my symptoms as I gimp down the hall. I don�t know how much longer I can keep this up. It takes every bit of energy I have.
I also have a heart block rhythm that nobody seems too worried about but I have worsening symptoms of heart failure and fluid overload.
Depression doesn�t start to cover how I feel about life; I am plagued with bouts of rage, confusion, now crying and hopelessness. Yet some days I wake up and none of the mental issues are there. My questions are: Is IV antibiotic treatment more effective and when is when is it appropriate to be switching to IV treatment? As long as I am working I have great medical coverage, but, #@%^@^%, soon enough I am not going to have a job. Should I push to do IVs?
My MD rarely talks about this option and when he has he said it was reserved for neurologic manifestations. How �neuro-manifested� do I need to be?
Help. Please. Thank you.
Posts: 31 | From Wisconsin | Registered: Aug 2010
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Hang in there, Babbs! Often LLMDs will employ IV in cases like yours to reduce infectious load. After several weeks of IV, they could then move you back to oral abx.
Is it effective? Not always but if you haven't tried it yet it may be worth a shot.
You could also add a herbal protocol to your oral regimen.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
IV helped me a lot. I did relapse, but I had to stop early due to PICC line issues, and it was also under a regular ID doc, so no combo Tx- just Rocephin.
If you're not making progress on orals- and it sounds like things are even getting worse for you right now, not just at a plateau- it's certainly worth considering.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
I am in a similar situation, my doc feels I have a coinfection, and also I have a yeast issue that has recently required me to add difulcan to the mix.
I had to stop working due to the same kind of issues.
I don't know if you are male, but if so, look into testosterone levels. Mine were very low. Supplementing with testosterone has greatly improved my depression. If female, I'm sure there are other hormones to look into.
Posts: 252 | From NJ USA | Registered: Mar 2004
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