posted
Does anyone have a list of symptoms of rmsf? Or a link to it . I just searched and couldn't fin anything and just found out from my llmd that I'm positive for babs bart and rmsf
Help!
Thanks
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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posted
Found on MedicineNet: Patients infected with R. rickettsii usually visit a physician in their first week of illness, following an incubation period of about 5-10 days after a tick bite.
The early clinical presentation of Rocky Mountain spotted fever is often nonspecific and may resemble many other infectious and non-infectious diseases. Initial symptoms may include fever, nausea, vomiting, muscle pain, lack of appetite and severe headache. Later signs and symptoms include rash, abdominal pain, joint pain, and diarrhea.
Three important components of the clinical presentation are fever, rash, and a previous tick bite, although one or more of these components may not be present when the patient is first seen for medical care. Rocky Mountain spotted fever can be a severe illness, and the majority of patients are hospitalized
-------------------- If you play at the beach, expect to get some sand in your shorts Posts: 223 | From central pa | Registered: May 2010
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posted
Thank you average joe. I'm just confused because my igenex lab work said I tested positive but I dont have any of those symptoms. What does that mean? anyone know?
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Those symptoms are early stage RMSF. Rash, fever, etc so sick one would be at the doctor. I had all that early on and tested negative.
I still have some form of RMSF, rickettsia or something in me from orginal flu-like illness from he!! in July '99. I was on abx doxy 10 days later. It didn't touch whatever this unknown bacteria is including lyme bacteria.
So let me see if I can find some chronic or acute sx that would linger later on or even years later if the doxy didn't kill it early on.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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I'm freaked how can I be positive for this horrible (potentially fatal disease) and not know it?
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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map1131
Frequent Contributor (5K+ posts)
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posted
Well, I'm not so sure that some of us still have it or some form of it even after months of treatment.
I just printed off some info on RMSF and rickettsia that has me very upset. I will share later.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Wow!
I was just going to post about the same thing.
I was bitten in 1996 and three times in the last two years. Treated for each tick bite, but I'm still sick.
Had a tick panel done last year. I called to get the results and was told that everything was fine.
Last February I had a strange rash on my chest/neck and tops of my hands. I thought it was Lyme disseminating. I also felt very hot and the rash felt hot. I had just reduced the dosage of my herbs.
I upped the dosage and added grapefruit seed extract. The rash faded. I went off the extract, rash returned. Took the extract again, and rash went away for good.
When I got a copy of my tick panel a few days later, I saw that I had tested positive for Rocky Mountain Spotted Fever IgG 1.64.
posted
Geet...........i tested positive in 2005.....really unwell.....treated for 2 weeks not tested for anything else......then 2009 came and everything fell apart.....symptoms popping up every month till i couldnt go on any longer..
then was diagnosed with lyme and babesia......anyway...i went to see a very well known LLMD and he said unless you are deathly ill need to be hospitalized and have the definitive rmsf rash it is more likely erlichiosis, which can actually give you a false positive rmsf reading.........
so i would be hesitiant to take the labs at face value especially as you said you dont have the typical symptoms......
I take it you have been tested for all the coinfections????
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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map1131
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posted
I've posted often about my skin lesions that pop up on a regular bases on tops of my feet, both elbows and left breast the last several months.
Then last week it was under both breasts and my elbows. They start as hard knots under the skin. I feel (not by touch, by painful itch deep in that area)them coming about before they actually come to the surface.
Today I'm catching up on emails from few weeks and come across this email about Rickettsia and the lone star tick. I know about lone star tick embedded in me in '05.
Was ill since '98, obvisious lyme & co in '99. But I knew something got me in '05. I've thought it was big dose of bartonella.
Today I see picture of my skin lesions I get every 2 1/2-3 weeks. No sooner do I get them clearer up and here they come again.
That lone star tick bite festered and healed over and over again and again for a good 8 mths. It would be an active lesion area obvisious tick bite, clear up completely and every few weeks, it turned into an itchy tick bite, lesion looking and all.
I've got to figure this out. '09 I asked for Rickettsia blood test and lab did RMSF. It was negative again, just like it's been numerous times. I can't remember if I had RMSF test between '05-'09?
I know early into illness my PCP did RMSF test 3-4 times for a few years.
What is the typical sx of RMSF or rickettsia later stages? I'm still looking.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Pam ....i may be wrong but i thought rmsf is an acute illness not chronic as rmsf is fatal once out of control is that is not over years it is a much shorter time frame to get to that point if not treated aggressively......and is truly rmsf.....
again i may be wrong....but i dont think it allows you to have chronic problems.....unless you are talking about being seriously ill having been treated and then with subsequent issues......
-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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map1131
Frequent Contributor (5K+ posts)
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posted
I was treated with doxy-IV rocephin-flagyl, combos, you name it from July 99-April '04.
'05 tick bite I just used rife machine and my many alternative protocols. I figured what the heck I was already ill with so much.
By end '05 I had some obvisious new sx going on that pointed to bartonella. I focused on bart with rife and of course lyme.
Did levaquin in '09 some. Rifampin '10. Abx helped bart sx but as soon as I came off them....down the hill I'd go. Of late I'm hitting bart with some new freqs that are getting at him.
I don't believe for one minute that rickettsia, RMSF or any of their close cousins are not chronic. According to the CDC, NIH, AMA and their brothers.....
I've had enough abx to kill off any and all these guys.
I was seriously ill and I refer to it as a close to death experience in July 99 and remained that ill for at least a year. The next 6 yrs I felt like walking dead.
I'm positive for numerous viruses like Mycoplasma pN, HHV-6, CMV. Who knows what else?
I've been tick bitten(lost count), mite bitten, flea bitten, brown recluse spider bitten so many times in the last 6 yrs. Mosquito's don't like me? I'm probably bad blood smell to them?
I don't know why I try so hard to figure it all out back to 98. I feel I can't get well until I know my enemies, one by one.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
I tested positive for RMSF too! IgG 1:64.
See my post above.
The tests for Erchiliosis were negative. I'm scared too!
Posts: 1358 | From Midwest | Registered: Apr 2009
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posted
I'm sorry Pam. It seems you are in a very frustrating place. I dont know much about RMSF or really sny of the coinfections because this is the first LLMD that igenex tested me for coinfections and got a positive. Were you tested with Igenex? Because all my other labs were negative but igenex not so much.
Thank you florence for that info, I have another appointment with my LLMD on monday so I'm definitely going to ask about erlichiosis and if that is possibly what I have. my LLMD put me on doxy anyway though.
Thank you all.
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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