posted
Toes on my right foot jiggle when I write with my right hand. ST
Posts: 15 | From Phila | Registered: Apr 2011
| IP: Logged |
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Feeling like my Hypothalamus and Pituitary exploded in my head.
Posts: 1142 | From South | Registered: Dec 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Tingling sensation (like chills) in left thigh only. Swollen lump on outside of left leg above ankle. Hurts when I wear socks and turns red.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
Burning in my lungs that feels like someone is holding a candle or lighter in my chest!
Posts: 8 | From Arizona | Registered: Dec 2010
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
Claustrophobia / any phobia's / fear of dieing
the crown on the top of my head is sticky. when herxing forehead feels like sand. feel like Voo Doo doll.
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
| IP: Logged |
posted
Sensation of electricity shooting from the center of my palms, out through my fingers. Lasts for hours on end.
Posts: 16 | From Northeast | Registered: Sep 2008
| IP: Logged |
posted
thats weird i also have noticed temperature changes.. my right foot is always colder and is tight/hard to walk on and painful sometimes like i sprained it somehow. my toe also tingles. ive been getting chest pains too.. all of which just started happening this week.
Posts: 10 | From Pensacola, FL | Registered: Jun 2011
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
YEAH-ALL THE WIERD NERVE STUFF
also-years ago getting "paralyzed" as in unable to walk and then minuts or more later just beign able to do it...nerve again i guess. inflam around nerve or something
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Many of the above are familiar.
When I first became ill, I started having uncharacteristic panic attacks related to making eye contact with some people. I have always had easy sociability and it became a big problem.
I am normally much better in that respect now, but certain people who use their eyes in a particular way can still set it off.
posted
Inability to drink any alcohol--none. One ounce would last in my system for hours, as if I had been binge drinking. And costochondritis.
Posts: 447 | From Vermont | Registered: Jan 2011
| IP: Logged |
lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Being completely "locked in" my body. My eyes close, my mouth won't open, I can't make any noise or move one muscle. It sometimes lasts for a half-hour! I look asleep, but I'm screaming to get out inside. That's babesia. I don't get this symptom very often anymore since I started to treat.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
| IP: Logged |
posted
Oh yes !! I totally had the 'locked up' feeling.
One of my early symptoms. It would happen if I fell asleep during the day-- for a nap. I would wake up unable to move, fists + teeth clenched, body rigid. Actually couldn't even 'wake up'.
Then I would panic and leap off the couch-- walk around like a crazy person trying to shake off the sensation. SOOOOO weird!
Also felt like my body was burnt to a crisp on the inside-- like nerves were fried.
First round on ABX took care of those symptoms-- and they have not returned.
Posts: 29 | From New York | Registered: Dec 2010
| IP: Logged |
posted
The feeling that my whole body from Head to Toes is plugged into an electric socket and my legs and arms twitching like there are aliens in my body. I cant seem to get rid of the nerve symptoms. Are they damaged beyond repair???? L
Posts: 256 | From long island, new york | Registered: Feb 2008
| IP: Logged |
posted
Losing the color vision in one eye for a half hour--everything was black and white.
Also, I have weird vision issues--just like inability to focus, hard to describe it--that resolve when I close my left (bad, lazy) eye. It seems the problems resolve when my left eye isn't open messing things up.
Posts: 303 | From Pennsylvania | Registered: Jul 2010
| IP: Logged |
posted
I was having dreams while still awake,very weird. Slowly losing sight while driving having to pull over constantly.Gone now,hopefully forever.
Posts: 342 | From northern california | Registered: Dec 2010
| IP: Logged |
posted
When I digest, the right side of my face, my tongue, and my legs go numb, and I temporarily can't swallow, sometimes can't inhale either. Autonomic neuropathy. Slowly getting better...
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
| IP: Logged |
posted
I could fill up this whole space with strange symptoms, but one that I'm experiencing today is as if someone/something is pushing in on the center of my chest ( I think the sternum area)
Not fun! Still debate whether this is lyme, babesisa, or neither!
Posts: 82 | From NJ | Registered: Mar 2011
| IP: Logged |
posted
Rash that disappears as quickly as it pops out...covers entire inside of right arm. Same with lymph nodes.
The worst is the feeling of pressure that I will get when I have to do tasks that require the least bit of concentration. I feel like my head is going to explode from the pressure.
And the "depersonalization" symptoms are the most difficult for me to deal with.
-------------------- Best Wishes,
Hope
"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~ Posts: 234 | From Minnesota | Registered: Dec 2010
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
When I had lyme, my strangest symptom was the feeling of having patches of sunburn that moved around my body from one location to another, constantly moving.
This would only happen when I went to bed at night. I figured it was my personal LSD trip, and I didn't need the LSD. I could just lay there and be entertained.
At the time, my diagnosis was menopause. So, I thought this was a wild menopause!
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
feeling of my face being made of paper and someone crunching it all up in their hand...
Posts: 120 | From Evansville Indiana | Registered: Dec 2010
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Looking right at an object knowing in my brain it is there but being completely unable to see the object until I walk into it or it runs into me... I can't drive a car at all or walk across a street alone because of this - it is just plain way too dangerous!!!
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
posted
so far i have the feelings like a allergic reaction, my face flushes and my whole body itches and if my wife leaves me alone I will scratch so hard i draw blood. I am allergic to alleve and i get the same response. I have not even started any new meds. even the insides of my ears itch.When it happens I scratch like hell, the only way to relieve it is a cold shower.
-------------------- Help I am being forced against my will to learn medicine!!! Posts: 164 | From WASHINGTON | Registered: Jun 2011
| IP: Logged |
Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
When I lie down and kick my feet up (if my feet aren't grounded) I get a quick feeling like Im falling backward off of something. Of course Im not. I have to sit up really quick to make it go away. Think its Babs weird dizzy type symptom.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
| IP: Logged |
posted
All mine are strange, but most recent... I woke up this past Sunday and can no longer taste. It's just gone. But I CAN still smell. It's kinda freakin me out. Mostly cause I wonder ~ what the hell is next?
-------------------- I'm not a doctor, but I might as well be! Posts: 23 | From Castle Rock, Colorado | Registered: May 2011
| IP: Logged |
posted
I also have had lots of strange things but I think the weirdest of them all was the feeling like cold water was dripping down my leg, mostly the right leg. I find myself reaching to wipe it off but of course there is nothing there.
-------------------- cjfrank
IGG Western Blot - negative IGG Bands Detected - p18 IGM Western Blot - positive IGM Bands Detected - p23, p41 Posts: 49 | From Maine | Registered: Jul 2010
| IP: Logged |
penguingirl
Frequent Contributor (1K+ posts)
Member # 28688
posted
Back of head feeling numb and tingly. Doesn't hurt at all - just a weird feeling!
-------------------- Posts: 1204 | From USA | Registered: Oct 2010
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
cjfrank - me2... bingo
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
forgetting what i'm doing...and selective hearing loss...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I can relate to a lot of what was mentioned above. Funny how I would have some symptoms and think they were just normal for me!
Anyway...my strangest one is smelling things that aren't there and hearing people call my name. At one point last year, I thought I had schizophrenia.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
My feet are often a bluish gray color, they look like creepy zombie feet. It grosses my sister out (and probably others too). I wear socks so I don't have to look at them.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic