fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I cannot believe it! Since I added the Rifampin, I am amazingly better...I have had a surge of energy and feel like myself again !!! This has to be the problem ! Bart was holding me back. I am so thankful to God for pulling me out of the past couple months.
I was a wreck and losing hope. Now I have hope again. Miniscule head pressure, no crushing fatigue and a pretty darned clear mind. God is so good !!
Tuesday and Wednesday worked all day, then went to the pool with my babygirl without a problem. Today I worked all day and just got home from Target AND the mall. Shopped and didn't feel like dropping, I am savoring every moment of this.
Thank you Jesus !
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
fflutterby,I am so dam happy for you!! I remember when I had that "breakthrough" day
Posts: 342 | From northern california | Registered: Dec 2010
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
I am soooo happy to hear this, flutterby!!!!!
Speaking from experience, savor the good days but DON'T overdo it!!!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
That's so awesome to hear!!!!!!! So happy for you, plus I am losing it lately between the fatigue and pain, Im about to start rifampin also. Now im looking forward to it!
-------------------- Psalm 119:50 My comfort in my suffering is this: Your promise preserves my life. Posts: 292 | From Heaven | Registered: Jan 2011
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I had been diagnosed with Lyme and babesia. With treatment for them for about 1.5 yrs I would say I got back to 75-80%.
6 weeks ago I started seeing blood in my urine. My llmd and urologist added levaquin thinking I had a prostate infection.
5 days after adding the levaquin I felt great!! No headaches, stiff neck, heart racing at all. Fatigue and brain fog reduced greatly. Then over the next 3 weeks things got to the point where I felt 100%. It was amazing.
After a month on the levaquin they stopped it because they thought the prostate infection was under control (if i ever had one). 7 days after stopping the levaquin all my symptoms came back.
So my llmd thinks Bart has been the missing piece and we are going to treat that now.
I am excited for you and myself that treating bart may be it!
Posts: 186 | From colorado | Registered: Jul 2010
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The mind is a terrible thing to lose, Rifampin is the drug that attacked Bart and got it back for me. Onto Babs now...
Posts: 32 | From Atlanta | Registered: Feb 2011
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Praise God! Wonderful news!!!
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
THIS ROCKS!!! I have been in Babesia treatment and now my Bart symptoms seem to have came forward indicating that babs is down...I hope. Bactrim seems to be helping as I cannot take Rifampin yet but know that will help a great deal!
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
THIS ROCKS!!! I have been in Babesia treatment and now my Bart symptoms seem to have came forward indicating that babs is down...I hope. Bactrim seems to be helping as I cannot take Rifampin yet but know that will help a great deal!
Sometimes I wonder if im done treating Babs and just associate Bart symptoms with Bab symptoms making me confused.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
flutterby~ That is very good news! How long have you been on rifampin and what dose are you on! May your improvements continue!
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Thanks and God bless you all. The good days help us when we are having bad ones. I know from experience that reading when you are all having good days is soooo encouraging to me ! So I wanted to pay it forward.
17hens ~ I won't over do it. Thanks ! xoxo
Jennifer70, Jamers ~ I hope we kick Barts a$$ !!
n2themystic ~ Maybe you do need to hit the bart, sounds like it to me.
SScott ~ Thats encouraging !!!!!
timaca ~ Less than two weeks. God willing I will continue to improve !! As will ALL of us !
Many blessing from above
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
So glad you have having good days. I hope they just keep in coming.
Best always.
Posts: 2238 | From East Coast | Registered: Jul 2010
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
These are the types of posts that we love to see.
I'm glad you found 'the right drug for the right bug.'
Hoping you have many more good days. Keep us posted.
Cathy
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Rifampin was a wonderful drug for my daughter.
So happy to hear when someone is doing good. Enjoy!!!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Great news!! So happy for you.
This is very encouraging. Daughter is going to be starting Rifampin soon.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
That is wonderful. There really is an answer for each one of us. We do need to remember to thank God for these encouraging break throughs.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Yay, I am back on Rifampin !!!!!
But this time around I have all the bases covered.
Rifampin Malerone Bicilin Plaquenil Zith
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Don't want to burst your bubble, but you need to be aware that rifampin lowers the dose of malarone significantly -- can't remember the exact stats.
Look it up at drugs.com under interactions.
Hubby tried adding in rifampin last winter and couldn't take it because it lowered the blood levels of his babs meds too much. He could tell the difference in just a couple of days and ended up stopping the rifampin in less than a week.
This is one of the reasons many docs don't treat babs and bart at the same time -- rifampin interferes with the blood levels of many meds and it is hard to find combos that remain effective for both infections plus lyme.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Thanks Bea, I am aware and that the reason I stopped the Rifampin last year. I see a top notch LLMD. He is aware of this and assured me we will increase the malerone as needed. I was on Bactrim but I developed an allergy.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
Great news!!
Posts: 29 | From Northeast | Registered: Feb 2012
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Congrats! this gives me hope!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I am on Rif for a 3 day pulse for the forth week. Right now just feel more tired. I woke up tired and thought why and remembered this is day two of the weekly 3 day pulse. So actually I am sensing the cause and effect.
Had another Glut IV on Monday and felt great for two days. Slept very soundly Monday night.
All the Best, MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Yay, hold on to those good days and remember they add up until they finally out weigh the bad !!
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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