posted
Does anyone have first hand experience with this? Did their children show symptoms? How were they treated?
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I don't have any experience but I did read a rather interesting article recently which may benefit you. It is a bit long but well worth the read.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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posted
My older daughter just tested positive for Lyme . I think my Lyme goes way back. My doctors always blamed everything on Crohns. I had crazy pregnancies and my daughter was born 2 months early. The other one went to full term , but only weighed 4 pounds 11. I am going to get my younger tested as well. Just really scared.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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posted
Yes. And there is a group on facebook called, "Parents of Kids With Congenital Lyme" if you would like to join.
I have two congenital kids and I lost one in between them.
Posts: 564 | From Tick Hell | Registered: Oct 2008
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
It is a scary thing and there isn't a ton of info out there on treatment of our kids- some of them very young or even infants.
I didn't know I had Lyme until my youngest became bedbound after 4 years of deteriorating health. He was tested and then myself and oldest son. Turns out my lupus was Lyme and all those "odd" things that happened in my body for 30 years were Lyme too.
It has been about 13 months since discovering I unknowingly gave Lyme disease and 2 coinfections to my children in utero.
My sickest started out weird in womb, odd breathing as a baby, pneumonia at 3 months, but met his milestones. At age 5 ADHD was impacting his learning although he was quite bright. Then came cyclic vomiting syndrome, fatiguing muscles, postural orthostatic tachycardia syndrome and FMS. His behavior totally changed.
My oldest was pretty healthy but some symptoms we had considered normal. It is weird that he was healthier- stronger immune system- and I nursed him 2 years. Now we are starting the long road to recovery. We are following Burroscano's treatment guidelines with an ILADS doctor and doing lots of supplementals and diet changes.
My sister didn't know she had Lyme until I got tested and now we know she is positive along with her 5 year old. He has mild symptoms like sensitivies to sound and light, pain on shins, outbutsts, frequent viruses that last longer than his preschool friends.
So many of us as mothers have been clueless that Lyme can really exist the way it does. I'd never heard of such a thing until last June.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
Thank you all for your support. I joined the Facebook group.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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