posted
Been on Zithro 6 months. It helped with my headaches and eye pain some.
Sorry can't me of more help.
Posts: 348 | From MA | Registered: Dec 2010
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I worked up a dosage of 250 mg once every other day. I started the beginning of May.
Azithromycin gives me depression and crying jags. It's been a rough drug for me. I had to work up to it.
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Is your daughter taking it one week on, one week off, etc.?
I was started on zith last week and even though headache was worse and felt it was clearing out sinuses, I slept much better.
Off this week and sleep is worse and ache around eye is noticeable.
I'm taking 250 mg twice a day.
I do need to take it with lots of food
Posts: 1297 | From USA | Registered: Dec 2002
| IP: Logged |
momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
Zithromax can also cause ear ringing and it gave me bad headaches when I took it - but I also started taking it at full dose.
I have heard that working up slowly would help.
I hope she gets some relief soon.
Posts: 1408 | From Tx | Registered: Nov 2009
| IP: Logged |
I think the ringing in the ears would be the only symptom that I have. However, it has gotten better for sure.
Zith has really helped me with some of my CNS symptoms.
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I took 500 mg of zithro for about 1.5 years. Just a few days ago I developed an allergy to it brought on by sun exposure. It can cause sun sensitivity which I did not know. I was covered in hives. As zithro stays in the system 68 hours it takes that long to clear up the allergic response.
Otherwise I had no problems except for ear ringing. I would just be aware that you don't want to get too much sun while on it.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
i had severe ear ringing and inner ear pain after about 2 months of use, zithromax can damage the inner ear so look out for that. My ear was fine 3 days after stopping it. I was also taking 500m BID so probably too high of dose. I am now taking biaxin instead same dose and no side effects yet.
Posts: 113 | From south dakota | Registered: May 2011
| IP: Logged |
posted
Did zitho for over a year along with mepron and ceftin....NO PROBLEMS
my daughter is currently taking zith, and noticed improvement as soon as she started!! an occasional flare every few weeks but NO other problems!
Biaxin is a cousin of zith..IMO Biaxian is a better drug than zith. Currently taking it now and am happy that it's shaking everything up again!!
Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009
| IP: Logged |
posted
My daughter has been taking 250mg twice a day for 2 weeks. Mepron for one week. Tolerated well until the past three days - not sure what is going on. Worse nausea, but some may be menstrual pain.
Posts: 312 | From Utah | Registered: Nov 2010
| IP: Logged |
posted
I had trouble with it, but I haven't tolerated any treatments so far so don't base your decision on my experience. I got the ear ringing and it never went away, even after I stopped taking it, was only on it a couple weeks.
My advice is to protect have her protect her ears just in case. Wear earplugs with using hair dryer, vacuum, going to movies, etc. Maybe use cell phone only on speaker, if have to use. If you search here for Keebler's posts she had great info on how to protect your ears.
Posts: 857 | From northern california | Registered: Dec 2009
| IP: Logged |
posted
I had hearing loss and tinnitus severe after being on it full dose for two months. Since I have ear issues anyway my LLMD stoppped it. The ringing continued for a few months after beffore it stopped.
This is an abx you need to be careful of since it can do permanent ear hair damage and balance issues. If you experience ear problems call you doc asap
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
| IP: Logged |
posted
I've been on 500mg for 2 months now, on and off. Probably my favorite abx to date, no side effects and seems to be doing a good number on bartonella.
Much better than Biaxin which gave me metal taste, nightmares, and emotional issues.
Smooth sailing with Zithromax.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
It just goes to show how each of us are so different and need different meds/treatment. Zith gives me some very bad emotional issues. I've been taking 250 mg every other day for the past month or so for mycoplasma. Maybe, it's hitting bart, too. Who knows?
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I"m on it and have a slight increase in my tinnitus. I hope it goes away afterwards.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
zith just made me nauseous and a bad taste in my mouth, always eat before you take it. i had loose stools too. now its like taking a sugar pill.
-------------------- Listen. That's all we ask. Posts: 172 | From toronto | Registered: Apr 2011
| IP: Logged |
IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
I got major ear ringing while I was on it..but I gotta say, I felt better on Zith than I did with Doxy or Mino!
My 8 yr old son was taking zith but he is severe nuro (adhd, asperger's etc) and his herxes were really hard... always running around in his sleep acting out dreams)
I herxed pretty good on it...but mostly I noticed a lot of improvement.
Watch out for the "D" word for the first few days of being on it... I was constantly in the bathroom the first week.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
| IP: Logged |
posted
I was on Zithro for one month. I experienced hearing loss/ache issues which had never been a problem for me before. I've been off of it 3 weeks and the hearing loss remains. If your daughter has any hearing problems, I'd contact her doctor immediately about whether to continue to take it.
Posts: 18 | From Tennessee | Registered: Jun 2011
| IP: Logged |
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Thank you so much. I appreciate all the input.
Better health to all.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I always feel & look kind of sick for a few hours after I take it (breakfast). I'm better after lunch. I guess I just thought it was killing of the lyme.
My ears were ringing before I ever went on abx. If anything, the ringing has gotten better (doesn't happen all the time anymore). Something's working (on other abx too).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
Did not realize it takes 60 hours to clear. I have been getting a leg rash but was not sure where it was coming from. I have been working outside so it may be the zith. Other than that I have no noticable side effects.
I am on mino daily and chloestermine (every other day). Zith is supposed to be M, W, F but I am to work up to it. Once I tolerate that and the mino I then add Flagyl.
Thanks for the sun tip, I knew about doxy which is why I asked for mino since it is summer in Houston Texas.
All the Best, MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
| IP: Logged |
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Thanks everyone
Better health for all.
Well, this week we add in another dose. Hopefully she will be able to tolerate.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
It doesn't take 60 hours to clear. It's HALF LIFE is 60 hours. Meaning if you take 500mg / day, after 60 hours, you ahve 250 mg in your blood. 60 hours after that (120 total), you ahve 125mg, and so on.
Half life means the time it takes for the dose to reduce concentration in your blood stream by 1/2
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
Started zith two weeks ago. First week had a major herx and now I'm leveling out. Was on Levaquin for two months and it turned my muscles into rocks. Not experiencing that on Zith. Brain fog is worse but it's only been two weeks. Occasional headaches on zith-worse for me has been the stomach cramping which finally seems to be easing up. I do take with meals but I have IBD so I think that's not helping. As others stated, be careful with the sun. I also got a rash up and down my arms for going out in the sun for 20 mins without protection.
-------------------- Just a catepillar, full of imaginal buds. Posts: 143 | From Philadelphia, PA | Registered: Mar 2011
| IP: Logged |
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Thanks so much for the continued input. I hope it works out for all.
Daughter is having sore throat, increased swollen glands, also says her lips, face, sometimes areas on legs feel like they are burning.
Anyone experience these symptoms while taking Zith?
I have not tried to increase the dose .
Thanks for the continued support.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
| IP: Logged |
posted
Azithromycin is a good drug it does have side effect on ear but on the studies that did research on the drug when used alone after stoping the drug the side effects start to vanish and all patients in the study came back to normal state before starting the drug azithromycin.i see some here had a damage of ear that did not got healed after stop of antibiotics I will think that other factors played role on that damage for sure .
Posts: 482 | From Nebraska | Registered: Feb 2010
| IP: Logged |
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Daughter is not feeling well. She says it feels like she is not getting enough oxygen. " Has to make herself breath"
She had this before , when she was not treating the infections, now it is coming back.
She is 13 days into 0ne tablet of Zith. She says her sight feels weird too, everything seems more vivid.
Does this sound like a herx? She did not have these symptoms when she herxed before when she first started treatment.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
| IP: Logged |
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
up for help with last question. Thanks so much.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
| IP: Logged |
posted
You people having problems with zith should look into pulsing. I am taking it every other day, with the same effects vs coinfections, but less drug overall in my system.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
| IP: Logged |
posted
Is anyone else taking 500 mg twice a day and if so, is it working for you? I recently doubled my dosage and it really seems to be hitting hard.
Posts: 749 | From State full of ticks | Registered: Dec 2008
| IP: Logged |
nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
HONESTLY!!!!!!!!!!!!!! i CAN'T FIGURE OUT HOW TO DO A REGULAR POST/QUESION. So sorry ,but is any body willing to just respond with quick directions . I have a question about sleep patterns that are causing a lot of problems. I know this site is set up to use easily , but I'm just not there. Thank you , Nonna Posts: 2563 | From Denver,CO | Registered: Aug 2011
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Jane, the air hunger sounds like babesia. Is she on mepron too? I had the same symptom as your daughter until I started on abx (mep, zyth, amox).
I don't feel good for a while when I take the zyth (start to feel better after lunch). In the morning, though, I feel like I'm being poisoned.
I think I'm going to ask my doc if I can split it up 250 a.m., 250 p.m.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Nonna click on top on POST NEW TOPIC
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[bonk]](graemlins/bonk.gif)
Printer-friendly view of this topic