posted
I've taken Tindamax for a year and a half straight. Just the last few months my LLMD has me skipping one week a month.
Posts: 964 | From san diego | Registered: Oct 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Tinidazole for two years.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
quote:Originally posted by Abxnomore: Tinidazole for two years.
Every day?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
I've been on tindamax twice, first in winter '09 and then again recently. I felt very sick while on it and never lasted for more than a couple of weeks.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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scorpiogirl
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Member # 31907
posted
Tinidazole everyday for 15 months. I stopped in July and will pulse Flagyl IV one week per month starting this month.
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Flagyl 3 times per day for 2 months.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Flagyl for 6 months. Tindamax and cipro for 6 months. There is info out there that cipro helps to shuttle tindamax into the cells where it can attack all forms of LD.
Also, Dr. B mentions that taking a PPI with an abx like levaquin may make the abx be more effective in treating the infection.
posted
Man, all this long-term tindamax use without people being in remission is not a good selling point for it, despite Sapi's research...
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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Can you explain why you are asking? Is it bad. I can't understand all the med talk like most of you can. Posts: 105 | From east | Registered: Nov 2008
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
All 3 of us take tindamax two days a week, two a day. It has been a year at least.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
In spite of on and off treatment for years (off only due to treatment issues and dr changes), I have yet to have a dr rx a cyst buster, other than GSE!!! I've certainly asked. Frustrating.
One of my drs, who is well known, said he only gives it at the end of treatment!! And he is usually considered aggressive!
But right now I've been off all tx, due to gallbladder/liver/pancreas problems, so . . . This is not an answer to your question, only a comment of frustration.
Posts: 3771 | From around | Registered: Mar 2008
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I was curious about this too. Does Flagyl or Tindamax hit other infections like bart?
Posts: 3528 | From US | Registered: Apr 2007
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posted
Where do you all get Tindamax from?
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
With a script from the pharmacy. Tinidazole has to be gotten from a compounding pharmacy with a script.
Or you can get it from a foreign country, most often without a script. That would most likely be Tinidazole, as it it manufactured by Pfizer as fasigyn but never marketed in the U.S. If you are on the west coast Mexico would be your closest bet.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
So which one's more effective, Flagyl or Tindamax? Taking it that long seems crazy!! That doesn't make any sense to me unless you started with it at the very beginning, but still seems like too long.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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posted
I take Flagyl every day. I started in January with a few days a week and worked up to daily.
Last summer, I took Tindamax for a month every day. My LLMD switched me to Mepron to go after babesia when I tested positive.
I felt like I was herxing more on the Tindamax and am going to ask to switch back to that at my next appointment.
Posts: 984 | From US | Registered: Dec 2007
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posted
I took Flagyl for 5 months...every day...pretty high dose. Believe it was the culprit behind me developing yeast issues.
Posts: 376 | From New York | Registered: Jan 2011
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posted
Whats the basis of when you should stop it aside from having side effects.
-------------------- Posts: 215 | From California | Registered: Sep 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I've been on Flagyl daily for a while now (about 2 months) and still haven't reached the target dose...every dose increase hits me hard with herxing, so I know it is still doing something...
I think the reason people aren't better from taking Tindamax/Flagyl is coinfections that aren't susceptible to this type of antibiotic.
Just my $.02...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I got tinidazole from my pharmacy no problem. Why do you say it has to come from a compounding pharmacy?
Posts: 1104 | From N.California | Registered: Jan 2008
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