Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Hi everyone-
I've been on here recently discussing a bunch of recent symptoms I was having that didn't seem like lyme disease (which I contracted 7 years ago). I fainted the other night, went tachychardic, and landed in the ER. Apparently, I was severely dehydrated. I have NO IDEA how this happened as I haven't been outside sweating and I haven't taken any new medications.
Here were my symptoms:
irritability cold hands and feet Very slowed thinking that was episodic... extreme forgetfulness extreme fatigue insomnia intermittent dizzy spells aching especially in my legs weakness in my legs dry mouth dry eyes couldn't get my ring off my finger when I normally could
Anyway, I have never been dehydrated nor do I still understand how it happened....I just wanted to warn others to please be mindful of their intake of fluids....especially if you have any of the symptoms above
Take Care!!!
Posts: 1155 | From Southeast | Registered: Oct 2005
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Bugg, so sorry this happened.
Are you feeling better? I hope so!
Posts: 4681 | Registered: Oct 2000
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posted
Dehydration may have been the cause of my fainting 3 wks ago.. though my cardiologist said my labs looked OK. (that the EMT took in the ambulance)
So.. I hear ya!! Take good care of yourself and feel better soon!!
--PS - I didn't really have any of the symptoms you described, except for dry mouth and eyes.. but I do have Sjogren's .. so that would be understood.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
You people are so kind and wonderful....Thank you for your sweet words...
I have NO idea what caused it...I wasn't taking anything...no supplements even...nothing...Earlier in the summer I had initiated taking B12 sublingually but I hadn't been taking it in awhile....
Lymetoo, so sorry you went through that as well..not fun! For what it's worth, all of my blood labs were normal...they only found out I had dehydration via a urine test and the fact that I failed the orthostatic hypotension test.....
I really just posted this in the hopes it might help someone else recognize HOW OFF dehydration can make you feel....
Posts: 1155 | From Southeast | Registered: Oct 2005
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posted
Almost every time I've ended in the ER it was due to dehydration--well, and these infections. I dehydrate nearly every time a lot of bugs reproduce at one time, and have to supplement daily with all my electrolytes. No vomiting or diarrhea needed for me to get to this state. Even if I'm doing everything right, often I get very close to dehydration, as I have these past few days, actually.
When your immune system is active you use more electrolytes such as calcium and potassium, and of course we need adequate water every day with all the stress and war our bodies are raging. I completely agree with the above--half your body weight in ounces should keep you safe, and make sure you get enough electrolytes from your diet or this could make things worse. I can usually tell mine are off when I start getting more muscle twitches and heart palpitations, and my POTS gets out of control if I'm not getting enough fluids.
You're not the only one!
little olive
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Dehydration is a constant battle for me. Finally found out why.... thanks to lessons from Dr. K. Those of us who have Lyme and Mold issues often do not produce enough of the anti-diuretic hormone (to keep fluids in). It mostly has to do with mold, as I understand it. It's also mentioned by Dr. S in his mold books.
It's very likely that you have mold issues (certainly worth testing for), especially since living in a moist area.
Best to you, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
That's a good suggestion! Me personally, I was on harsh antifungals for about nine months, even at the risk of heart failure, so I'm pretty sure I'm covered--lots of success from it! Thank you for taking the time to mention.
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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posted
Strange - I've been having issues too with dehydration, even though I drink a ton of water everyday. I know about drinking half your weight in ounces, so I've been doing that too.
I don't make ADH (vasopressin) which is a hormone that retains water. The pituitary gland is in control of ADH (vasopressin).
The treatment for this is the hormone desmopressin. You have to take desmospressin to make up for the hormone you don't make.
I just had my blood test again - yesterday for ADH levels since I've been feeling extra dehydrated this past week or so. The lack of ADH could be from inflammation around the pituitary gland,
I would ask your endocrinologist or family doctor to have this tested. It could be that you need this hormone too.
posted
How interesting, I don't think I've ever had that test--and like most, I've had a LOT of tests. I'll bring that up with my doctor. Thanks!
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Betty1939--How did you know you needed to be tested for ADH? Were you chronically dehydrated or did you have an electrolyte imbalance??? What are the symptoms of low ADH?
Also, thanks to you guys and what I've learned on this board, I actually asked about POTS while I was in the ER and I don't have this....
I had an irregular/heavier menstrual cycle before this episode of dehydration so perhaps that contributed to the dehydration?? Who knows...
Posts: 1155 | From Southeast | Registered: Oct 2005
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I didn't know anything about ADH until a year ago. My LLMD checked me for the hormone because I had to pee every 10-15 minutes and felt dehydrated all the time.
He said it's not uncommon for patients who have lyme to have pituitary gland issues. I think he just tested all his patients for this hormone.
He tested me for about 20 different things at the time.
My symptoms were peeing all the time (literally every 10-15 minutes) I kept track of it and dehydration.
I had an MRI done by my endocrinologist because of the low ADH and the radiologist found a small spot of either inflammation or in his words possibly a microadenoma in the pituitary gland.
I have never had any other MRI's since last year, but am due for another one soon to recheck it in October.
I would definitely ask about this - I guess if you have issues with your pituitary gland it can have an effect on other hormones as well.
I also can't decide if this is lyme related, mold related, or something else. I have toxin-producing staph in my sinus which could be causing that IMO. Shoemaker would certainly say it's mold, and no doubt i was badly exposed, but he often credits things as mold when it's totally unclear (like the abnormal immune system lab work seen in CFS/mold illness/lyme).
my ADH is also low, but not that low. DDAVP did not help, but i only tried a short period. Since 1 week after my sinus surgery i feel like i need less water but my sinus are extremely dry.
What did Dr K have to say on this?
-------------------- We will win Posts: 135 | From California | Registered: Jul 2010
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