posted
How would you treat vagus nerve neuropathy? which one of the lovely bacterias would most likely cause this? bart or lyme? I do not have babs. I was in remission from lyme. I ended up with mold poisoning, I have the hla gene for mold aswell but not lyme. treated for mold all symptoms are gone except for the throat stuff. my vocal cords dont open when i breath, Lungs are fine. constant mucus. feel like a basketball in my throat. Im back in school but i cant drive myself anywhere. i have the hiccups alot and causes anxiety issues. this is worse around my period. I thought it was from the mold since this is when it started but now im thinking even though this is my only symptoms maybe this is lyme and co related. what supplements would benefit the vagus nerve in healing, is there any hope for this? its miserable. I get out of braeth all the time. I do NOT have reflux, diet is clean no sugar no processed food etc, detox daily in a infrared sauna etc. PLEASE any help or direction would be so greatly appreciated. morgan
Posts: 229 | From front royal, VA | Registered: Jun 2008
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Hi,
Can I ask how do you know if what you have is "Vagus" nerve neuropathy? I have neuropathy in my right leg so I can't drive either. I don't know if it's reversible but I'm so frustrated with this problem! It's bad enough to be sick but worse when you can't drive and lose your independence!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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posted
based on symptoms and looking at my vocal cords when i breath the ENT in chapel hill said i had vagus nerve neuropathy. He said this is a very new diagnois and usually it is diagnoised at just reflux for which I do not have. He said no many people are told they have 'silent reflux" go have the surgery and end of worse off. I am greatful for this, but scared its permenant.
Posts: 229 | From front royal, VA | Registered: Jun 2008
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Bartonella + Mercury are most likely culprits in my experience.
Outside if treating and chelating...
Bitter Herbs can be helpful in stimulating the vagus nerve.
Some say you want the herbs to touch the tongue (that's what stimulates the vagus nerve). Produces stomach acid and helps with digestion and bowel movement.
I'm surprised you don't have reflux or digestion issues though.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
Thank you canefan17! I had severe digestive issues SEVERE! Never with lyme but with the mold but after a round of humaworm my stomach is perfect BUT my diet is perfect to so im sure if I went back to eating wrong id start to soon have issues.
Posts: 229 | From front royal, VA | Registered: Jun 2008
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I have the same issue. (as I just emailed you about) I forgot to ask you if when the ENT looked in there, did he test for any sensory deficits? When he saw my vocal chord dysfunction, he also noticed a sensory deficit. To me, this shows it is a nerve problem
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Canefan: I forgot to mention in my last post that I also am starting to think it's more Mercury related. I started having my amalgams replaced a few months before this breathing dysfunction started. I can't do chelation yet because I still have 8 filling in (started with 16)
I plan on doing Andy Cuttler's chelation protocol and hoping it will reverse the damage
Hoping the nerve damage is not permanent
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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These are pills, but it is also available in a homeopathic drop form, which is what I have.
2)"Neural therapy" or "laser therapy" at a chiropractor's office.
go to quantumneurology.com for more info or to find a doc in your area.
My husband is the one with the issues, but he has not been faithful to taking his meds. So I'm sorry that I have nothing to report in terms of results.
Good luck to you!
-------------------- When we are no longer able to change a situation---we are challenged to change ourselves. (Viktor Frankl- Holocaust survivor) Posts: 460 | From Maine | Registered: Apr 2009
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These are pills, but it is also available in a homeopathic drop form, which is what I have.
2)"Neural therapy" or "laser therapy" at a chiropractor's office.
go to quantumneurology.com for more info or to find a doc in your area.
My husband is the one with the issues, but he has not been faithful to taking his meds. So I'm sorry that I have nothing to report in terms of results.
Good luck to you!
-------------------- When we are no longer able to change a situation---we are challenged to change ourselves. (Viktor Frankl- Holocaust survivor) Posts: 460 | From Maine | Registered: Apr 2009
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These are pills, but it is also available in a homeopathic drop form, which is what I have.
2)"Neural therapy" or "laser therapy" at a chiropractor's office.
go to quantumneurology.com for more info or to find a doc in your area.
My husband is the one with the issues, but he has not been faithful to taking his meds. So I'm sorry that I have nothing to report in terms of results.
Good luck to you!
-------------------- When we are no longer able to change a situation---we are challenged to change ourselves. (Viktor Frankl- Holocaust survivor) Posts: 460 | From Maine | Registered: Apr 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Where do you get the Ypsiloheel drops?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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-------------------- When we are no longer able to change a situation---we are challenged to change ourselves. (Viktor Frankl- Holocaust survivor) Posts: 460 | From Maine | Registered: Apr 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Are you sure you do not have babesia? It can cause irritation of the vegas nerve, breathlessness and problems with the vocal cords.
There were times my voice was very hoarse. I ended up in the ER with the vegas nerve problem. And I am still breathless.
If it is genuine neuropathy then alpha lipoic acid is very good for repairing nerve damage.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I went on Mepron for months with no reaction so I don't think babesia. I dont have any other symptoms. Going for botox in the vocal chords tomorrow
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Essential Fatty Acids, Vitamin B12 (injections), B-Complex Vitamins - are all needed for nerve repair (missing any of these important nutrients will prevent healing).
To counter ill effects of mercury, take homeopathic Hepar Calcarea Sulph. until symptoms improve. Probably should consult a Naturopathic or Homeopathic Physician for dosage/potency.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I am starting craniosacral therapy for my VCD which is quit severe and also accupuncture. The therapist doing my Cranio sees three other people with VCD and all have had success in getting rid of thier symptoms!!! im so excited, im hoping this will work for me aswell. The botox thing scares me botox is one of the most toxic substances to man! Also a good speech therapist can teach you techniques that over 6 months will improve this i do these as well but it takes a while to see imporvement! I agree Razzle all of those are important to include and i just started juicing im hoping with eveything one day i will be able to take a deep breath and function agian never loose hope!
Posts: 229 | From front royal, VA | Registered: Jun 2008
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
after seeing this i went and had the neural therapy i actually drove 4 hours 3 days a week for 2 months! NOTHING!!! it was kind of quacky but i called the number on the main website and was told he was one of the best of the dr i went to. Posts: 229 | From front royal, VA | Registered: Jun 2008
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posted
I just went through this only mine was called vocal cord paralysis. I had it for 6 weeks and went to see my Lyme doctor. He said right off that it was Bartonella (which I had been treated for back in 2008).
I started on Rifampin and Minocycline on Tuesday morning. By the following day I was going through a horrible herx thinking I wasn't going to make it through the day. Now 7 days later my voice is at 90 percent back. It is just a little deep but not hoarse, croaky, pitchy. I can breath much better again.
I am thinking I will be in treatment for a long time considering how horrible I have been herxing.
Posts: 343 | From North Carolina | Registered: Oct 2008
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posted
Bartonella really!!! thats interesting! i know i had bart i wondered if it was an issue. did you have issues breathing? I cant do abx please let us know how you do with bart treatment. you had bart in 08, are you currently sick with lyme or is this your only issue. How did you vocal cord issues start?
Posts: 229 | From front royal, VA | Registered: Jun 2008
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