posted
I think that bartonella is a big part of my problem. I have thought it all along, as I am mostly/all neuro. Cipro seemed to help...I was improving while on it. It was the only drug that rendered me ANY improvement what-so-ever. But...I got tendonitis in both Achilles tendons from it and my LLMD will not put me back on any fluoroquinolones because of the fear that it will return.
I have also tried rifampin. While it didn't really help at all, I can't take that either due to it always skyrocketing my liver enzymes. Am I out of options to hit bart? My LLMD gave me A-Bart at my last appointment and will be trying that shortly...
I am worried that I am out of options...
Thanks all!
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Were you taking tons of milk thistle while on Rifampin before?
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Julie - Yes, I was. But...perhaps not enough...but...the rifampin wasn't really helping anyway. The only thing that has even remotely caused me any improvement what-so-ever, even if ever so minor, was cipro.
Lala - Did that combo work?
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
gcmaf?
Posts: 1927 | From se usa | Registered: Mar 2010
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
A-Bart helped tremendously to eliminate bartonella symptoms. It took about 3 months and I was herxing like hell in the beginning.
Does it eradicate bartonella completely? who knows, I was previously on Cipro for 6 months and thought my bartonella was gone,but it came back after I've treated babesia.
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
My rife machine works on my Bart.
My PE-1 works on my Bart.
There are threads here for both of those.
Thank heavens we have these options! I would refuse to take those drugs you named. There ARE OTHER OPTIONS , THANK GOODNESS!
-----POlly Polygonum
Posts: 1226 | From USA | Registered: May 2007
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