tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Yes I am hypothyroid but my levels are fine. I am always freezing I have to sleep with a heating pad on my back to be warm!
What infection is causing this
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
Bartonella? That's my dominant symptom.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
I understand from my reading that one of the first things Lyme does is mess up your internal temperature control, which is relayed from your skin to your brain.
You can no longer adjust your internal temps to adequately protect you from your surroundings. For example, every time I have to go to the Emergencey Rm., they end up taking a "core temperature" on me (rectally, ugh), because I become hypothermic from the low temp they keep the ER at.
The result is intolerance to both cold and heat, though sometimes one can come years before the other. I can testify that it tends to get more extreme the longer you are untreated. Eventually, you can get to what some of us call the "one degree comfort zone".
For me that one degree is 78. Anything below that causes increasingly unbearable symptoms, until I finally start having dangerous arterial spasms or abnormal heart rhythms called PSVTs if I get cold enough. I usually have to wear a jacket in the house in winter, even with the heat set at 75 and 2 woodstoves going! I cannot bear to be below 75 degrees in winter, unless I am exerting myself.
On the other hand, I found out the hard way during a long hurricane power outage that temps above 85 lower my pulse so much I have to crawl on the floor to get from room to room.
Of course, this could be Bartonella, as Toppers said, since I've not been tested for that, just for Babs, but I have read in several places that Lyme can also do this, and that it is a common symptom that starts very early in the illness.
Thyroid can also play a roll, making it even worse, and you can still be hypothyroid with normal numbers if you have thyroid resistance, or if your adrenals are so weak that they can't deliver the hormone to your tissues. This is called tissue hypothyroidism and is quite common also.
Look up adrenal fatigue treatments to read more about this, and/or check out the websites of Dr. Rind, Dr. Lowe and Dr. Wilson, or articles by Mary Shomon of "Stop The Thyroid Madness". (None of these docs are LLMDs, or I would not include their names here).
I truly empathize with you and hope you find a solution, klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i absolutely freeze in hospitals. they have to warm the blankets and i wrap up completely in them.
i don't know why they keep it so cold.
i keep my house on 70 in the winter. summer doesn't bother me so much.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I check my temp often and found a direct correlation between lowered body temp and how badly I feel.
Once I past 97.5, and more so at the 97.3 mark, I tend to feel worst. More brain fog and pressures as well.
I soak in hot water and my temp goes high and then stabilizes at 98.2-98.4 for some time. At times the whole day and other times for a second day. It really helps me out and makes me feel more human.
Posts: 2087 | From NY | Registered: Oct 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
My temp is around 97.9 98.0 Ugh I am just always so cold.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Tricia,
Have you ever checked your basal body temperature first thing upon awakening in the morning? Apparently, it is best to measure your temperature as soon as you wake up in the morning because this is the best indicator of your absolute lowest metabolic rate. I would also suggest that you test your urine via a refractometer (more about that a little further down bellow).
If your basal body temperature is bellow 98 degrees fahrenheit first thing in the morning then you might want to try Matt Stone's RRARF diet. Speaking from personal experience, the RRARF diet has increased my morning body temperature and thus I don't feel nearly as cold as I used to. Though I have also incorporated RBTI into my protocol.
With the RRARF diet it seems as though people can increase their body temperature back up near the ideal range of 98.6 degrees.
You might also find this article rather interesting.
You may also want to buy a refractometer so you can test the brix/carbohydrate/sugar content of your urine because if your refractometer reading is low (bellow 1.5) then I can almost guarantee you that you will feel cold.
If you are interested in using a refractometer, you can purchase one for about $30.00 dollars on ebay.
To test your urine with a refractometer all you have to do is put a few drops of your urine on the glass plate of the refractometer and look through the lens to get your reading. It takes about 15 seconds to do the test.
klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Wow, Lymedin2010, I really envy you. I've had my temp go as low as 93.1 inside a heated house. I just can't get warm in cold weather. It feels like icicles are inside my bones.
Before thyroid meds, my morning temp before getting out of bed was 95.6. Now it runs about 97.6, which is better, but still supposed to be too low for normal thyroid function.
I mentioned this to the nurse at a doctor's office recently when she told me my temp and it was about 97.8, and she said most people run lower than 98.6. She said she would estimate the real normal average temp is around 97.6 from what she's seen.
Of course, the people she's seeing are sick or they would not be in the doctor's office. This was a sleep and pulmonary specialist's office though, not an Endocrinologist, so it could not all be due to hypothyroid or Lyme and it does make you wonder.
After all, our vitamin D normal ranges were much too low, until very recently when someone tested aboriginals and found their levels more than twice as high as "normal". They came up with the original norms by testing the British, who live in a very cloudy place and were already deficient.
I wonder how they came up with the normal temperature of 98.6 in the first place. Anybody know?
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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steve1906
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Member # 16206
posted
My norm before lyme was 98.8. my norm since lyme---is 95-97.
The bugs like it cold!!!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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emla999/Lyme
Frequent Contributor (1K+ posts)
Member # 12606
posted
Klutzo said:
quote: I wonder how they came up with the normal temperature of 98.6 in the first place. Anybody know?
The 98.6� comes from a 19th century doctor by the name of Dr. Carl Wunderlich.
Supposedly, in the 1800's, Dr. Carl Wunderlich collected and analyzed over a million armpit temperatures and come to the conclusion that 98.6� F was the normal body temperature for humans. Though, now the normal body temperature is recognized as 98.2� F.
manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
than which one makes you have a low grade of fever ?
Posts: 1379 | From disable | Registered: Aug 2011
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groovy2
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posted
Really Low body temp is a main symptom of Babs-Jay-
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Wow right back at you Klutzo, Steve too. �OMG!
I can't imagine that low. �I feel bad enough at lowest 96.8. �I would feel very stiff and immobile. �I am sure my temp would drop further without my daily hot bath soaks. �
Tricia, I think you are at the stage I was almost starting a year ago. I usually am a hunk a hunk a burning hot, but during that time my body temp dropped (98.0-98.4) and I found myself covering up more and feeling cold. �Whereas before I would only wear a thin jacket most of the winter and always had to uncover.
I thought it was age and hormones. �I kinda enjoyed it back then, after years of feeling always hot.
In Nov, My temp stabilized for a few days at 98.2-.4 after I started eating carbs and eating more. �Problem is that I gained 10pnds in a short time and now I am holding back on the eating. �Ate the carbs when i was feeling better and was testing my sys. �
I also remember my body temp dropping and feeling colder when I put myself on a strict diet 4 yrs ago. �Once I started eating normal, which is a lot for me, my temp stabilized.
I wonder if it is Babs or Bart related? �Do any of you have night sweats?
Posts: 2087 | From NY | Registered: Oct 2011
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steve1906
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posted
In the past I had the night sweets. Still get them but, only once in a while.
It's crazy how your temp can be 95-97 and you can sweet in your sleep!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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Lymeorsomething
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Member # 16359
posted
Thyroid is always a consideration but proper iron level is also needed for temp regulation. So check ferritin status.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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Lymedin2010
Frequent Contributor (1K+ posts)
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posted
I feel the same- it is crazy!
Feeling cold and sweating is pure insanity. I envy those who can have fevers, at least it gets rid of other opportunistic bacteria.
Posts: 2087 | From NY | Registered: Oct 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I know! I hate being cold!!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Dave6002
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Member # 9064
posted
The low temperature may be caused by bad gut micr-organisms. I had the problem before. Now the problem is almost disappeared since I take some probiotics (mainly yeast and other fungus).
Posts: 1078 | From Fairland | Registered: Apr 2006
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I have been taking DSL #3 and Kefir since the 3rd week of starting ABX treatment.
I do notice that when I eat a full meal and overeat, that my temp goes in the 98's all on it's own.
Maybe it does have something to do with the gut flora? I had tried to analyze this before and I thought it might have been due to the lack of activity of the WBC's. Being disabled by Bartonella and unable to move properly and phagocytose properly.
I looked at mine under the microscope and for a while they looked very small and relatively immobile. Not the typical healthy and active cells you see. Bart is known to bring down immunity and I thought I had theoretically tried to prove it to myself.
Now with the new gut experience, I am not so sure.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
if you are hypothyroidism.. That says a ton right there. The thyroid controls our heat center.. Its all metabolic stuff.
Posts: 267 | From South | Registered: Oct 2011
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This was one of my first symptoms. I remember walking the dog in the summer of '09, usually hot and miserable, and wondering why I wasn't feeling hot or sweating. I don't really sweat anymore either except for (now this is weird) when I drink my coffee in the AM (decaf/light). I will have beads of sweat running down from my torso, very weird, all this with a body temp in the 96 range. Now even weirder, I can have another cup of coffee late morning and not have that issue at all. For the above posters who say they can tell when they feel better because their body temp is back up toward normal, count me in.
Posts: 478 | From Third Coast | Registered: Feb 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Could it be that I am herxing?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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