Topic: How are you guys able to keep your treatment going along with the brain fog etc?
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I was reading Dr. K's protocol and could barely understand it and I don't even have brain fog as a major symptom. I feel that I know a lot about the disease and the treatments but some of these protocols just seem so specific and long..I work full time, I can't imagine keeping up with all that stuff. :/
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
right?! then all the doctors you've been going to for help look at you and shake your their heads because they don't know what to do! wtf?!
Posts: 8 | From CT | Registered: Feb 2010
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posted
Do you mean Dr. K in Seattle? As far as I know, he uses a really complicated natural approach (this is just my opinion, but I'm pretty sure that in order for it to work any natural program has to be pretty complicated- not that it won't work, just that lots is involved).
I don't know if I would recommend trying to follow that on your own. Have you seen Dr K?
Even if it is a different Dr., it can be very difficult to get a non-LLMD to follow any sort of standard Lyme treatment (mostly because there isn't one). Is Dr. K not treating you? If he is, can't he just explain what to do at an appointment?
there is a very easy-to follow (at least comparatively to other things) treatment guideline. You could print that off and give it to your doctor.
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I see a LLMD already. Have been for years. I am referring to Dr. Klinghard's protocol. I recently read about it.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
Ok. That is what I thought. Honestly, I can't help you there. I've heard about it, and read about it, and basically all I know is it is REALLY complicated, designed to get rid of any heavy metals, toxins, parasites etc. I also know it works.
Maybe other people here who have seen him could help you
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
GiGi would be one person to ask about it. She is very knowledgeable.
It is hard to understand any treatment and follow it with brain fog. I am very forgetful. I have to write things down and keep my meds in daily pill containers. I have to re-read information many times before I retain it.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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