Topic: Question for TF and other's who have been "cured"+
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
For those who have been cured WITHOUT IV meds, did you have neuro lyme or more muscular/skeletal lyme?
can someone with neuro lyme be cured without IV?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
She had white spots on a MRI if I recall correctly. Definitely was neuro. She said bad muscle weakness, facial drooping, and much more.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
ok thanks...my only symptoms of Neuro lyme are tingling and nerve problems and some light brain fogginess sometimes.
I don't want to have to do IV. I'm scared and I can't afford it.
I've done 7 months on Bicillin and just finished it because I can't afford it anymore.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
there are several people here who are well now without iv abx. i don't think it is a must, from all i have read. i had neuro involvement with bell's palsy, brain fog, though a normal mri, but I was diagnosed within 6 months so i know that made a difference.
Posts: 236 | From Zionsville IN | Registered: Jan 2011
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I had both (neuro and joints and everything else that comes with it).
I've only been on oral meds. Well, one time I did IV, when I was in the ER from taking doxy on an empty stomach. They thought I had diverticulitis and gave me some ABX IV overnight and then sent me home with a 10 day supply. One was flagyl, I don't remember the other one.
But, for lyme, babs, bart, only orals. I'm not done yet so I don't think I'm considered a "cure", but I'm very close.
My LLMD did say that for children who have water in the knee, i.e. very swollen joints, if it doesn't resolve in a few months, then IV is the way to go.
I have a friend who saw the bite, got on IV, was on IV for 6 months and is now completely well. Treatment was aggressive and successful. Sure beats the years I've been treating.
I don't see any Babs treatment in your signature. Have you treated for this?
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Babs Treatment: I did some months of Mepron/Biaxin/Artemesia
Doc not sure if I have babesia so we did a test run with meds and no reaction whatsoever.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I never did IV, and I had SIGNIFICANT neuro issues and excruciatingly painful musculor/skeletal issues.
I have my brain and life back, have been off abx for 7 years now, and live a very normal life, but still need to take flexeril at bedtime for the muscle issues. I think that part is permanent, as I went untreated for more than a decade.
So I would never say I was 'cured' - I much prefer the term 'Peaceful Coexistence'.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Julie, did you ever take anything for the excruciating pain? I would call what I have now excruciating pain - really more nerve though. I can't stand the antiseizure meds as they take too much of my personality away. Can't figure out what to do with this awful pain I have.
Posts: 618 | From NC | Registered: Oct 2009
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posted
i had bad neuro lyme and a heart condition called IST i have been in remission for 4 years without IV or abx. I used deseret biological, chisolm labs transfer factor, recht regulat (biopure usa) for thick blood, green vibrance, lypo sepheric vit C , intramax, excercise, organic diet, lymphatic drainage etc two best things i did was deseret bio bartonella series therapy and chisolm labs lyme and co specific transfer factors
Posts: 229 | From front royal, VA | Registered: Jun 2008
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posted
I had neuro and muscular LD as well as bart.
I was "cured" (fingers crossed) without IV abx. 18 months of Doxy, biaxin, zith, and flagyl got me to about 80%.
6 more months of tindamax and cipro got me to 100%. I had a relapse when I got a bad cold and sinus infection last spring and took a z-pak. I caught the symptoms early this time, and 3 months of tindamax and cipro "cured" me this time.
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