-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
"Thoughts: Instead of antibiotics I would prefer to get hyper-immune antibody specific injections to treat Bb and other pathogens."
Thank you. I thought I was the only person in the world who thought it was better to get a human blood product for treatment than a bunch of drugs that damage our organs!!!!
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Some doctors will give their patients a "vaccine" made from the patient's own blood. This was how my Grandfather was cured of a strange, undiagnosed skin condition, and I've seen/heard about it being done for other diseases as well.
Also, when I was a child, my Mom had a homeopathic practitioner make me a remedy from my hair, to treat the whole "me." I often wonder what would have happened if I had been able to continue with this practitioner...(she passed away when I was still a teen)...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Well the way I see it the 2 predominant LLMD's who use IVIG both happen to be neurologists. And neither of them know much about coinfections which kind of bias their research.
I do not think Dr K in Connecticut who is a professor at Yale has published anything.
Dr Y at NYU has published some things but I have not read the articles. Here is a link.
All the research concerning IVIG and lyme has concentrated on peripheral neuropathy and dysautonomia I think.
Hubby has actually seen both of the docs listed as well as the other neuro who moved from Connecticut to California last year.
Even though he has been sick 11 years now and has a low WBC every time it has been tested hubby's totals and subclasses still are in the normal range. So for him this treatment is not even an option.
From discussions with patients who have done IVIG I have gotten the impression that it is maybe 50% effective at best. And I think one of the major issues is the lack of understanding and/or treatment of coinfections.
This is just my opinion based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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