posted
Hi MLG: I just got back from Germany and did four weeks of photon therapy. I have never been better. I am off all meds etc. It is the best I have felt since bitten. It was the absolute right decision for me. If I can help, let me know.
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
I'm am better after photon therapy as well.
Photon therapy is a little different in that you look to regain the health of the body, not how to break down every little aspect of the bacteria. Since there is not much research on it at all, I'm sure no one really knows about whether it breaks biofilm.
I took Triphala for long time, so I can't even be sure the biofilm breaking in me was done by the photons.
I have been well for three years.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
For the record I have taken lumbrikanase for about a year... as well as wobenzym etc due to inflammation... I don't know either if it breaks biofilms but I can tell you that there seems to be no relapse and I have never felt this good ... since getting bitten. I did not take those things while in Germany but am taking them now due to wearing out my feet because I walked so much! Posts: 859 | From Southeast | Registered: Mar 2011
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With the photon treatment, you must continue with it. I used it for two years at least once a month. It's important to have time off from it, but also to use it.
It took me nine months after I got back to reach remission. I used it monthly after that because I was afraid of it coming back. Finally, I lost my fear and only use it for homeopathics for things other than Lyme ... like detox, allergies, etc. Or with blood during cold/flu season or if I overdo things and get run down.
It took a full nine months for the babesia to go away once I got back. I think my own immune system was strong enough to kill it with the help of the energy from the photons. I treated with blood all those months. Blood covers the coinfections, but they can take much longer to clear than the borrelia. I'm not sure why, but that was my experience.
I totally agree about treating for parasites.
Also detox. I did colon cleanses, liver cleanses, etc.
Exercise is critical. You have to move. Think of a stagnant pond. You can't get better without thorough movement. You don't have to run a marathon or anything but you need to move. In fact, I think chronic cardio drains the adrenals and hurts more people than it helps. Strength training (I like pilates), stretching (again, pilates covers this) and walking are all good.
Sleep, stress reduction, and diet are also critical.
Photons are not stand alone. I don't think there is a silver bullet stand alone treatment for Lyme. It's way too complicated than that ... it's much for than only borrelia.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
We are in the process of treating my son with photon using a home unit.
He has improved greatly, not 100% well, but about 60% to 80% well, depending on other stresses in his day. He has been in treatment for four months.
We are working up to do parasites soon,
The first four sessions he did at the clinic we bought our unit from sold me on it as he responded so well, going for almost non responsive to smiling and having a conversation, well until the herx hit! Still he was eager to go back and it was apparent how much it helped him.
He's not completely well yet, and we continue to work on all angles, his diet (no sweeteners, gluten...), hands on healing work from an elder, vitamin/mineral support, herbs, talk therapy and lots of prayer.
I know how hard it is to navigate this illness so I thought I'd share our experience, so far.
Good luck to you in your journey to health!
Posts: 372 | From british columbia | Registered: Feb 2012
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posted
Dear Six... God Bless you for staying around
I am sorry Manybites you are ill again. Canadianmomma, I will pray for your sons continued healing. I like six do not feel this is a stand alone therapy.
Wishing you all continued healing and wellness...
Posts: 859 | From Southeast | Registered: Mar 2011
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Willbeatthis, Most people that go to Germany only stay 2 weeks. I was wondering why you were there a month. Did the doctor recommend that? Maybe most people can't afford to stay that long or can't stay that l long. Maybe you were sightseeing.
Posts: 705 | From WA state | Registered: Jul 2011
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lymeboy
Unregistered
posted
Can't afford Germany. I'm eyeing up the PE-1 though, as the next phase of TX for me. For now, I like my ABX. My doc is great.
But I am startign to get very interested in this form of TX.
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willbeatthis . welcome back! I'm so glad that you are feeling well, continue to treat though like Six says. For me - going to Germany, discovering photons, starting energetic tests and energetic exercises(Reiki & ChiQong) were life changing experiences.
Me too I've stayed in Germany for 4 weeks. I guess it depends on you- if you ask Dr. W. to stay longer- he will treat you longer- that's what happened to me. It has been 2 months since I'm back from Germany. It looks like Lyme is dormant for me, Bartonella & Mycoplasma go on and off, but test negative most of the time if I treat for it once a weak. If I skip a weak it shows-up. Last week Babesia showed-up for the first time since Germany. I guess when other infections are going dormant-it took the stage. I started to take A-BAB, Cryptolepsis, Noni and Rifed for it, since (what an unlucky coincidence) I had to send my PE-1 for repairs this week!! I'm feeling a little bit better, but it is still here. If I remember well, Six had wrote before, that her Babesia also showed-up around 2 months after Germany trip, is it a coincidence?
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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Hi All: Thank you Anuta... wishing you continued healing...
Lymenotlite-- I stated four full weeks. I knew I was coming with a load of coinfections (bart, babs, cdiff (yikes that was a new diagnosis), chlamidia (the two different ones, EBV) and I needed the extra week. I understand finances but for me, insurance was not covering and I had 3,000.00 a month out of pocket on meds/supplements/drs appts/shots so this was still a savings. To my knowledge, most stay three weeks. It was the best investment I have made to date, I only wish I had done it much sooner. If I can assist in any way, please let me know. I was in tears last night as it is a lot to come back well and want everyone else you know with Lyme not to suffer any more. Thus, I am here for any questions or help. Private message me if I am not on the boards all the time. Blessings...
Posts: 859 | From Southeast | Registered: Mar 2011
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Thank you so much Lauralyme... It is such a blessing... I am hoping you are doing well too... If I can help anyone here... I will be more than delighted... You all were a light in a dark journey and I am so thankful we have each other to encourage to wellness... Blessings....
Posts: 859 | From Southeast | Registered: Mar 2011
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quote:Originally posted by lymenotlite: Willbeatthis, Most people that go to Germany only stay 2 weeks. I was wondering why you were there a month. Did the doctor recommend that? Maybe most people can't afford to stay that long or can't stay that l long. Maybe you were sightseeing.
Most of us originally stayed 3 weeks. I haven't heard of anyone staying only 2.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by lymeboy: Can't afford Germany. I'm eyeing up the PE-1 though, as the next phase of TX for me. For now, I like my ABX. My doc is great.
But I am startign to get very interested in this form of TX.
People have had good results with the PE1 as well
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by anuta: If I remember well, Six had wrote before, that her Babesia also showed-up around 2 months after Germany trip, is it a coincidence?
I went to Italy at Christmas time after having returned from Germany Nov 1, so yes, about two months. I was treating (I think twice a week?) until Italy, so my babs came back while I was there since I was away from photons.
I drank tonic water and it helped with symptoms until I could return home and treat again.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by willbeatthis: I was in tears last night as it is a lot to come back well and want everyone else you know with Lyme not to suffer any more. Thus, I am here for any questions or help. Private message me if I am not on the boards all the time. Blessings...
It IS very intense having healing that quickly. I went through a lot of emotions and letting go. I wrote about it on my blog (it's my second most-read post), but I don't think I wrote about it again after my return.
I had trouble with it ... and it is hard now to think back at how sick I was. The whole thing has so many emotions tied up in it.
Then, yes, you also want to scream THIS REALLY WORKS .... but you have to wait until people are ready to hear it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Im really glad photon therapy helped some of you.
But how can it be that every physicist I ask about photons as a possible therapy only starts to laugh!? How can it help some if it cant from a scientific point of view?
Please help me to understand.
Posts: 214 | From Home | Registered: Apr 2011
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posted
Maybe the physicists you are asking don't understand the mechanics of the photons in the body. Direct them to the work of Fritz A. Popp, who happened to be nominated for a Nobel Prize for this work.
It actually CAN and DOES help from a scientific point of view.
Do these physicists know that the US Military uses photons out in the field to help heal injured soldiers faster? Or that the FDA has approved photons for use in pain management?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymeboy
Unregistered
posted
I think you might be talking to the wrong physicists. There's plenty of science on photons. The FDA hasn't figured out a way to exploit it yet, which is actually the laughable part.
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Do you think the PE-1 would be adequate, or would you still insist on the professional one?
-------------------- Probably got Lyme in '96, just dxd w/Western Blot 6-6-12 JacktheDog and Prayers for Pets on Facebook Posts: 46 | From NV | Registered: Jun 2012
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quote:Originally posted by Caren NV: Do you think the PE-1 would be adequate, or would you still insist on the professional one?
The PE1 is strong, it's different in that it has more than just the 880 nm wavelength and has different frequencies. There have been people who have gotten well with it, so yes, I think it's adequate.
The vials Dr. W uses is Germany are not allowed over here, so it would likely take longer than going to Germany would, but once you are strong enough to use blood vials, then you would be treating it harder.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I wouldn�t do both at the same time. PE-1 is very strong by itself. The herx is very strong, plus it is affecting the liver big time.I�m testing for liver and lymphatic detox like never before when I was on abx.
Right now I had to send my PE-1 for repairs in the meantime my Bartonella and Babesia woke-up, so I�m using Rife to keep them at bay . Otherwise I would be scared to use the two together, it would be too much.
Anyways, as soon as I started to use photons, I test negative for all sorts of killers- herbs, abx, homeopathic, I only test positive for binders and detox- this can give you an idea how strong the PE-1 is.
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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posted
Hi all: Just touching base. I am treating this coming week with the bionic as a safety measure. I cannot believe how good I feel. This week I have felt a bit of tiredness creep in but that is all and honestly, to me this is nothing short of miraculous. Anyone I can help regarding this mode of treatment, I would be happy to. Thank you to all that have gone before me... I just turned 41 yesterday and it has been the best birthday ever honestly...
Posts: 859 | From Southeast | Registered: Mar 2011
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lymeboy
Unregistered
posted
I am wondering about the cost, the probability of relapse and if it addresses coinfections.
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Hi Lymeboy, I stayed for a month and the last week I am relatively assured the focus was coinfections. I had a heavy load. With regard to relapse, I learned from others before me that if someone did not get better they often fell into two camps(those that treat too much and too little). Thus, I bought a bionic for home treatment. Though if I had the money, I would do everything in Germany.
I have learned with Lyme that I have saved money by going to the best doctors I could afford. In total I spent about ten thousand of my savings (could be done for less as I had to by special food - allergies-)and that is without a machine. Prior to going to Germany, I was spending right at about 3000 dollars on antibiotics/ supplements/doctors consults of which none were covered. Having relapsed often, I did not see this cycle stopping and the stress of being able to earn that amount on top of living expenses I could not do endlessly -- thus I considered this treatment. I have been on no antibiotics or herbal protocol- killing agents for two months without relapse-which before was impossible. I think the PE 1 is a good machine and that is a route you can take. If you are able to go with someone that would cut down on costs in terms of accommodations etc. I went alone. Let me know if I can answer any questions further. I am in touch with folks going over so if I can help in that department, let me know. I just want to see an end to this horrendous disease. Dr. W himself had Lyme and is in full remission ....(if you could see how hard he works you would really know and that of his amazing office.... they are angels) and that to me was another tell tale of the success of this treatment.
Posts: 859 | From Southeast | Registered: Mar 2011
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lymeboy
Unregistered
posted
I have been thinking about the PE - 1. Germany seems to be where people are getting well though. I just do not have the money.
From what I understand, the TX in Germany is 10 grand, for the treatment. Then there is hotel expenses, food, and airfare. I would imagine the whole thing comes to around 18 grand for 1 person. I couldn't do it if it was 8 grand. The most I can afford is the 1200 - 1500 for the PE1 and that would be after almost a year of saving. Please tell me if my numbers are off. But that is just way too steep for me.
I am also wondering about the teeth. Does the treatment include the teeth? I am 99% positive that I have a major Bart colony in my ear canal and teeth.
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Light therapy folks... any thoughts for me please.
I gave my son a break from his light therapy for the last month.
Before that we were treating 2/3 time per week, about 20 mins each as per instructions.
I decided to give him 2Tbs of mangosteen juice every day while not doing light therapy. 5 days ago the we ran out of mangosteen and I couldn't get more so I decided to switch back to light therapy.
He has been improving during this last month but,
Over the last three days he has had increased leg pain and weakness as well as notable brain fog.
We have treated with light therapy twice, now are on a three day break.
Any thoughts as to what might be going on to cause increased symptoms?
As always I am struggling to guess if it's herx of bacteria lode increase.
I'm thinking to increase detox strategies, I guess probably shouldn't have given the mangosteen...
Any thought much appreciated.
Posts: 372 | From british columbia | Registered: Feb 2012
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posted
Faithful,The way I understand it, photons teach the body to fight and kill pathogens, different frequencies can also be used for detox and pain.
I'm not sure how they relate to cold laser lights but when I looked them up they both seem to use infrared at 880 and 650, so probably similar ideas.
Posts: 372 | From british columbia | Registered: Feb 2012
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posted
Lymeboy, no, it's not as expensive as you think. I spent less than $15k, probably closer to $13k and I bought the Bionic for $8k. The doctor bill, INCLUDING the $8000 for the Bionic was $10,000. So, the treatment was only $2000 approx.
Considering my out of pocket per year was $20,000 + for my LLMD including travel and supps, it was a bargain for me. I haven't seen the LLMD since 2008.
Faithful, photons will heal injuries, that's why our military uses them in the field. No one is certain how they work to heal Lyme. The photons do increase ATP/energy in the body, and the theory is that the increased energy allows the body to heal. The nosodes are the road map to what needs healing.
Different than cold laser. Bionic and PE1 are LED lights, not lasers.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lymeboy
Unregistered
posted
I imagine you can get away with not buying the 880? Can the rest be done with the PE-1? My oop is not quite 20 grand. but if I could do Germany for under 3-4 grand I would seriously consider getting there within the next year.
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Yes, many come back and use the PE1. Dr. W doesn't use the Bionic anymore, so people don't feel like they have to use it.
I don't know how pricing/exchange rate has changed since I was there four years ago .... but it is less than you are thinking, especially if you can share a rental car with another person going. I also shared an apt, but a bigger apt is the same price per person as a studio is for one.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
$ 1600 for the base model PE-1 or $ 2500 for the PE-1A which includes frequencies generator, meaning you would be able to program any frequencies that you want to use.
The idea of second one is similar to the one that Dr. W. is using now in Germany. He tests energetically and reprograms the machine individually for his patients.
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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