posted
Anyone else have a teenager who has had enough... This is his 3rd time treating and to tell you the truth, he probably has had enough. Honestly, after 2 yrs of treating myself, I feel like I have had enough already. Just venting ...
Have an app't with Dr H in NY coming up for him which will cost a small fortune. It is very frustrating trying to deal with this disease yourself and then have to care for kids with it and convince them that the fight is worth it ..
Posts: 749 | From State full of ticks | Registered: Dec 2008
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Yeah, that's always the struggle. It's hard for anyone let alone a teenager.
Have you tried any pulse therapy? That way you can treat but get breaks in between. Just a thought...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
So far, LLMD's have not suggested pulsing. I have, but they haven't.
Manybites, I can feel your pain. You know that you are doing the right things for the kids and get pushback.
Posts: 749 | From State full of ticks | Registered: Dec 2008
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I think this is the worst age for kids to be sick. They are grown up enough to fight for what they believe but still immature in many ways. I have a 19 and 17 year old in treatment, plus myself. Two years later, I don't want to do it anymore.
I figure there is no choice. We go day by day. For us it helped that my youngest was bedbound and so sick when Lyme was diagnosed. Treatment got him back in school so he sort of sees the benefits. My oldest watched my youngest in pain and doesn't want to go there so he cooperates.
We have so much to be thankful despite Lyme. I am fortunate to have cooperating kids. I can't imagine it any other way.
Hoops- good luck with Dr. H. Manybites- hang in there.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Hoops- mailbox is full.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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