Topic: Please, help legthy..Woman Problems UPDATE 11/9!!Please HELP!
tricia386
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So...where to begin.
2 weeks ago I was on vacation in Marthas Vineyard. Where my bf of 6 years proposed!!!
Anyways...
On my way there I believed I was getting a UTI but it wasnt that bad my Tuesday I believed I had a full UTI. I called my LLMD. He wanted me to get a Urnalysis and a Urine Culture before he would perscribe anything. I took the test and he perscribed Macrobid.
On Wednesday the office called and said everything is negative and we urge you to get to an OBGYN.
I went to one and she examined me. I thought when she did the internal exam I would go through the roof. She said. I think you have PID. She called my LLMD and teh figured out a treatment plan. A Shot of rocpehin and doxy for 2 weeks.
After I recieved the shot within hours I felt so much better.
Then that night my BF proposed on teh beach!! And I enjoyed the rest of vacation pain free.
Then Monday I came home and restarted Septra and took a bath. I began to experience extereme vaginal itching and readness and burning and soreness.
On Wednesday I went to the OBGYN and she confirmed PID was gone. And she believed I had a massive yeast infection from all teh antibiotics. She did run a bunch of tests adn cultures and said they would be in monday. She perscribed Difulcan and Cream and I was feeling better by Friday.
Then yesterday I restarted Septra again and I woke up at 4 with the same burning feeling.
Do you think this is cocidence? Or do you think it has to do with Septra?? I have taken Septra before without any problems. And i did forget to put my cream on last night... I am so confused. Sorry so long...Any input would be apperciated.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Pocono Lyme
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It does sound like yeast at this point and forgetting the cream probably is the reason for the burning again.
I'm not sure how bad Septra is in regards to yeast but you had other antibiotics and probably not enough yeast treatment to get rid of it IMO.
Regular docs will usually only order 3 days of Diflucan. Hopefully getting back on the cream as ordered will clear it up. Or you may need more Diflucan?
Hope you're more comfortable now. And CONGRATULATIONS!!!!
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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tricia386
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Thanks!
I am on Difulcan for 2 weeks 200 mgs and than the cream. They did do a culture, so I should know soon. I hate not know what is what
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
Sounds like yeast to me. Get on the DIET bigtime. No sugar, no white foods, no artificial sugar, no fruit. Get after it before you end up with it forever.
Congratulations on the proposal. How cool!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Dogsandcats
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You can all your pharmacist ( or find a woman pharmacist if yours is not...)
They usually know best about drug side effects.
And ......congratulations! Nothing like the yeasty beasties to show up at the wrong time!!
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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tricia386
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I know damn yeasty beasties. I have been with my BF for 6.5 years and I dont know how I would have made it without him. He has been my rock and I am suprised he even wants to marry me knowing I may never be well again
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Catgirl
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Awesome Tricia (congratulations)!
Change your diet. It's the one thing that we actually can control. Check out Burrascano's anti candida diet (works for me).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lyme in Putnam
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CONGRATULATIONS. Nice to hear good stuff.
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dbpei
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Congratulations, Tricia! Try rubbing some coconut oil where it burns. It has so many uses and this is one of them. It is anti-fungal, anti-viral and anti-bacterial. Hope with dietary changes, this will make a difference.
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posted
Yea-- stay away from the baths when you're having yeast troubles that always makes it worse for me
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tricia386
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So, my OBGYN called I am negatibe for EVERYTHING
5 kinds of yeast Herpes Gonahrea Chlamydia BV Trich
They have no idea what it can be they said if I dont feel better to call back in a week. I dont know what to do.
Could this be a side effect of any of the antibiotics. Could it be the urine irritating it. I am so confused.
...I feel so hopeless....please help
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
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Its not a yeast infection though I dont know what it is....I am scared
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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I bet it is yeast that didn't show up on the tests.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tricia386
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I do not have any discharge not to be gross. I have been on Difulcan and Nystatin for a week watching my diet and I have cream and it just seems to get worse.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Doctors don�t know the cause of most forms of vulvodynia. And there is no evidence that infections, such as sexually transmitted diseases, cause vulvodynia.
Researchers are trying to find the causes of vulvodynia. They may include:
Nerve injury or irritation Abnormal response in vulvar cells to an infection or trauma Genetic factors that make the vulva respond poorly to chronic inflammation Hypersensitivity to yeast infections Muscle spasms Allergies or irritation to chemicals or other substances Hormonal changes History of sexual abuse Frequent antibiotic use
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tricia386
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Thanks Lyme too
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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I have it and its awful pain. Can come from Lyme or from an injury to the area.
Look for a gyn who specializes in this field.
-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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tricia386
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It came out of nowhere. It started after I was dxed with PID.
IS there anything you have done to help the pain?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
vulvodynia is also a mystery inflamatory condition. Nurve inflamation which burns and is pain.
My doc who specialized in this just retired. Maybe google the vulvodynia foundation and see if there's anyone near you who you can see.
Few gyns deal with this issue. You need someone who deals with this.
-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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tricia386
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I am in so much pain. i dont knwo what to do. I cant live like t his for the rest of my life. Im waiting to hear back from LLMD my OBGYN is stumped.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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AuntyLynn
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PROBIOTICS Baby!!!
You've been killing the yeast with diflucan & etc., but NOT replacing the "friendlies!" (This would be my best guess.)
Having dealt w/yeast for YEARS due to the requirement I take a "bomb" of abx just to see the dentist... this is what WORKED ..
Bio-K fresh probiotics ... available Whole Foods Market, about $5.00 for a 2 oz container. Comes in dairy and non-dairy. I found that just taking a tablespoon of this twice a day would chase the yeasties away!
Yeast Guard vaginal suppositories ... available at any CVS in the "feminine hygiene" department. These introduce lactobacillus (the "friendly" bacteria that makes yogurt) directly into the vagina... for just about INSTANT relief! Cost about $10 for a dozen suppositories. They also offer a topical cream, but I have had good results with the suppository alone.
Also ...what Lymetoo said about diet, definitely! And this especially INCLUDES eliminating Wine and Beer! (Fermented = trouble.)
Another warning ... yeast CAN be passed between couples, so you might want to consider using condoms until you get this thing under control.
Now, Congratulations on your engagement! Doubt there's a more romantic spot in the world to get engaged than Martha's Vineyard, xcept maybe Nantucket! May God Bless you both with a long and happy life together.
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tricia386
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They tested me for yeast and said it was negatibe though! I have been on diflucan and cream for a week with no relief
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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check in with the foundation to see if the docs that specialize in this.
Lyme can also trigger it.
Its tricky, and regular docs don'tknow what to do with it. I don't know any docs in this field neither, now that mine retired.
And congrats on your engagement!
-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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tricia386
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Talktel Did yours ever go away or lessen in pain? What treatment did you find helpful?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Keebler
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- On a lighter note, a marketing ploy to woo the "fairer sex" backfires - some very funny posts:
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sparkle7
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It might be parasites. I had what I thought was vulvodynia for many years & it cleared up when I started taking anti-parasite protocols. It took time since I was ill for many years but it's worked. My menstrual cramps are less, too.
I think vulvodynia is just a "catch all" diagnosis when they don't know what it is. Sort of like fibromyalgia. I'm sorry - I don't mean to offend anyone but I've had both of these illnesses & diagnoses - so, I'm not just taking pot shots at them.
I believe that microfilaria (worms) can live in the vagina. So can pinworms. I don't know why this isn't common knowledge. Since all your tests were negative - I'd try some serious anti-parasite protocols.
If you have Lyme, it's very possible to also have some kind of parasite. There have been many studies about it & some progressive doctors are finally coming around to see that parasites need to be treated.
Good luck with everything!
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tricia386
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Well my LLMD is Stumped. And so am I and so is my OBGYN. I do have an appt again with my OBGYN and I will bring up Vulvidonyia, lichen scelrious...anything else?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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AuntyLynn
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Tricia386 -
I just noticed your profile info says your Lyme was "activated" by
THE GARDISIL VACCINE!
Can you extrapolate on this? Were you dxd for Lyme prior to receiving the vaccine? I have heard of some very serious adverse reactions from Gardisil! You have my sincere sympathy!
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tricia386
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No, i did not have symptoms before the vaccine I was a healthy 23 year old traveling the world with my fiance in gradschool having the time of my life...now my whole world has changed. and here I am 3 years later. I started lyme treatment in 2011....I have made huge strides and i thought i was turning the corned this summer and now this...
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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AuntyLynn
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As you know, PID is very serious. I expect you were given "serious" antibiotics to control it. (Just curious - and no pressure - but I wonder if you had been using an IUD? These have been implicated in PID.)
I think Lymetoo made an excellent observation in that one of your abx might have really irritated the nerves of this delicate tissue.
That having been said, interstitial cystitis is VERY common in post-menopausal women, because their vaginal (and surrounding) tissues become dry and less elastic when estrogen levels drop. (What is known as "vaginal atrophy") This condition makes intercourse difficult, if not impossible, and is the most common health complaint of post-menopausal women.
Vaginal atrophy and IC are closely related. (As loss of tissue elasticity is a big part of the reason why older women may experience incontinence.) But the pain, spasms, and associated "bladder urgency" associated with IC can make us reticent to leave our homes.
A girlfriend of mine was recently diagnosed with IC, and her third doc, a urologist, prescribed a topical cream called Estrace. Since I suspect that Estrace, a pharmaceutical product, most likely contains synthetic estrogens, I suggested that she try a similar product that contains "bio-identical" estrogen. These products contain pure plant based natural Estriol, which is the third type of estrogen our bodies make naturally, and is considered the safest form.
Many women who have been unable to engage in marital relations for years because of this atrophy, have regained their love lives by using a bio-identical estrogen suppository. And the reports of users tell us they really work.
A brand that I saw recommended by an OB/GYN in an online article is made by "Bezwecken" - and is available for purchase online, without a prescription. These estriol suppositories are made with pure bees wax, and have no irritating chemicals. They are also very affordable (about $8.50 for a package of 14.)
My friend with the IC just ordered hers last week. They come in 1-3 gm natural estriol doses. I will be interested to learn of her results.
I like the idea that this form of estriol delivery is "local" - affecting the tissues that have always been bathed in hormones, as per Mother Nature's plan. Studies of vaginal estrogen replacement have failed to note any increased cancer risks, unlike the oral estrogen replacement products, that were "twisted" to satisfy patent requirements.
If you are uncomfortable going this route, you might also try breaking a Vitamin E capsule and using the contents as a soothing topical lubricant, to cut down irritation. Vitamin E, as you know, is an antioxidant. Used topically, it is known to help sunburn and other skin wounds to heal without forming scar tissue.
Also, dpei suggested using pure coconut oil for this purpose - which is another great idea.
Sounds like irritation/inflammation from the infection and strong treatment - and many here have used herbal anti-inflammatory products with notable success. Curcumin/Tumeric are said to be very effective supplements, and the company New Chapter offers an herbal called Inflammend. I would definitely try one of these too.
I wish you a quick resolution to this problem.
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tricia386
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Lynn-
I was treated with a shot of rochephin and 2 weeks of doxy.
The thing is I can touch my Vula it isnt painful it just burns I heard with vuvladyonia you cant even touch it
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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AuntyLynn
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That's what I gathered from your earlier posts, Tricia. Why I supplied the additional info, to cover whatever else might be relative.
I would definitely do probiotics - as you likely have NO friendly bacteria after all the abx and anti-yeast. Couldn't hurt.
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dbpei
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Tricia, this is a total coincidence, but I started having burning in the same area as you recently. I couldn't figure it out, but realized I had just started a new multi-vitamin that came highly recommended in the lyme community.
It is a powder form that you add to liquid and has mega doses of various vitamins and minerals. I contacted the company to see if this is a possible side effect. They told me to stop taking immediately.
I did not take today and I will see if there is any change. I also started pure mangosteen juice recently and wonder if that could be the culprit.
Have you recently started taking any new supplements or fruits/veggies? Just a thought...
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posted
Hmmm... speaking of Vit E for sunburns made me think of using vinegar. We always put vinegar on sunburns. It's very soothing, believe it or not.
Try a small area if that scares you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tricia386
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Nope nothing new. The only thing I can think of is this started after the pid.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
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Well..went to obgyn...and she did an exam.I went through the roof when she touched my cervix. The burning seems to be gone.Do to using coconut oil.
She reviewed the culture under the microscope. And said there is bacteria there and shes not sure if its physcological or an infection. She wants me on Flagyl 1000 for 2 weeks. Need to call LLMD and check.
A lil nervous bc symptoms have been inproving with sleeping with a tampoon with coconut oil in.
ugh so confused
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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"She reviewed the culture under the microscope. And said there is bacteria there and shes not sure if its physcological or an infection."
HUH?? I never heard of psychological bacteria??
or do you mean physiological?? That's still a bit odd to me.
(glad some of the pain has been relieved)
watch out for that flagyl .. have you taken that much before?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tricia386
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Lymetoo:
HAHAH I mean pschological. I know it didnt make much since to me either. It wasnt my normal obyn either, she was on vacation. Holiday weeked. When she did examine my my cervice was a lil sore. But she also said this could be left over inflamation. I have to go back from an ultrasound in a few weeks.
No I have never taken flagyl only Tini. And tini pulese never for 7 days straight.
I called down to my LLMD to get their opinion. Waiting for their opinion.
I do have a lot of reducation in symptoms today. I may keep the coconut oil thing going for 2 more days and see how I feel. I wont take flagyl to I hear back from my LLMD.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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feelfit
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hmmm- the connection seems pretty clear to me after reading this entire thread.
Bactrim.
Are you still taking it? You stated that when you stooped, so did your symptoms, when you restarted bactrim, your symptoms restarted.
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tricia386
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Ya, the Burning has calmed down alot. So much.I think it was the bactrim too. So werid it would cause the reaction after being on it for so long.
Now, i am still dealing with UTI symptoms which I think might be that my PID is back...
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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mojo
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Vulvodynia is REAL - but it is caused by SOMEthing, I've had it since May, 2005 and have come a long way.
Potential causes:
Lyme and/or co-infections Hormonal Imbalances PID Gluten Sensitivity Food Allergies Interstatial Cystitis More that I can't think of at the moment.
I got mine after a severe yeast infection and the pain never went away. I was at a TEN everyday in a fetal position by 6:00 p.m.
Things I did to improve:
Learn not to clench muschles (down there and entire body) Changed to an alkaline forming diet - remove soda completely. No white stuff Rifing for Babs got me to the point where I can wear (very large) underpants and soft clothing
I just began working with Dr. M in Palo Alto CA. She is a GYN that specializes in Vulvar Pain. She now treats Lyme Disease because she tested a woman for Lyme when her other methods didn't work . She now has many Lyme patients with this type of pain.
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mojo
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sent you another PM
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tricia386
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Well I started flagyl today is day 3. I think I might have ic now. But when they did my internal pelvic exam my cervix was inflammed so who knows what is going on I feel so lost and confused.
Any help would be apperited
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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beths
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I have burning-just started. My culture was negative as well-however, interestingly, it was also negative for good bacteria!
Lactobacillus are needed to keep the ph normal. I'm looking into upping my probiotics, and a vaginal suppository with the good probiotics
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AuntyLynn
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Beths - Sorry to hear you have joined this club.
I can't help but think that this stuff is largely caused by the antibiotics - which DO kill both the good and the bad flora! But it is well known that Lyme affects hormone balance too.
I highly recommend the Yeast Guard suppositories - cheap, and instantly soothing!
With just my paltry experience with "prophylactic ABX" for dental visits - which went on for years - I would take EIGHT 400 mg amoxicillan an hour before each dental visit (ridiculous right?) ... and would have yeast/burning for weeks afterwards, unless I then paid for a gyno visit, for what is now "over the counter" cream!
The combination Bio-K (50 mil fresh) before and after the abx "bomb" and getting right on the Yeast Guard made a huge difference for me.
I know there are lots of other very good fresh probiotics out there. I think this is key for soothing/nursing this extremely delicate tissue.
Here's hoping that you will both find answers for lasting relief.
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dbpei
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I'm going to look for Yeast Gard today. Thanks AuntyLynn.
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AuntyLynn
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I know CVS carries it. Look in the feminine hygiene section. Good luck!
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tricia386
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I'm just so confused. I have pain in pressure in My bladder but no urgency just like its being pressed on or inflammed. I have burning down there and pain in my back and ovaries. I know my cervix is inflammed. I am on day 3 of flagyl. If it is pid, could it cause all these symptoms and how long would it take to go away. I am on my 4 pill of flagyl
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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AuntyLynn
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Tricia - I'm confused.
As far as I know, the drug of choice for cystitis these days is CIPRO... a 3 day course.
Who put you on the flagyl?
UPDATE:
OK I just re-read your earlier posts. A "substitute" Ob/gyn found there was still bacteria of some kind, and put you on 1000 mg flagyl for 2 weeks.
So that tells me she suspects you may not have completely conquered the PID.
Have you even BEGUN to take ANY kind of PROBIOTIC? You are on some kick-arse ABX, and it is likely strafing your flora of anything that might promote a natural mucosa! ORALS are best at this point because you don't want to keep stuffing things "up there" and wondering what caused the NEXT possible reaction!
You should be eating tons of yogurt, drink Kefir, get some dried probiotic "pearls" at the pharmacy ... or BEST to go to a Health Food Store that sells the FRESH probiotics! (Whole Foods Market has a LOT of different ones!)
And if you find at any time that you can NOT Urinate ... go to the Emergency Room!
We're hoping/praying for you Tricia!
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I have an ultrasound tomorrow. I am just so confused and my Lyme Doctor and my OBGYN are just as confused.
I did the Q-tip test for Vulvadoynia on my own and was fine. I just wonder if this is IC or my PID is back...
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
This group kept me sane in 2005 when I first got vulvodynia.
Over the years so many things have helped me get to where I am today (still with pain but can wear underpants (way too big) and stetch pants (again big) but I mostly wear dresses.
High alklazing diet NO SODA NO artificial sweetners only low acid coffee ( like cold brew) Only use non/low toxic personal products (shampoo, lotions, hair products) No soap "down there" wash only with water Use only non toxic laundry soap and double rinse NO ALWAYs products - ladies if you have always THROW them away. Use organic pads and tampons (several good products at vitacost and Whole Foods)
much more but the ladies in the yahoo group are extremely helpful and a good source for support.
Posts: 1761 | From USA | Registered: May 2006
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Mojo-
Just curious. What's wrong with the Always products? I would avoid anything Scented for sure (couldn't stand those chemical perfumes anyway) ... but should we be concerned about padding material too?
Posts: 1432 | From New Jersey | Registered: Jan 2012
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
There were studies done in the USA and Canada that showed Always products could cause reactions and even vulvodynia in women.
All of the OB/GYNs that I saw for my V pain (as well as liturature about it) said to not use Always products. They have some chemicals that are nasty, apparantly.
When you think about it the substances that make the pads (any brand) so absorbant are probably toxic as heck. Tampons, too. The cotton is bleached as well.
Think about what we've been put next to and into our bodies. Yuck.
So I do the organic pads and tampons as much as possible. Probably 90% of the time.
I agree not to use scented for sure.
Posts: 1761 | From USA | Registered: May 2006
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Well I got for my ultrasound today. I would t be so concerned but my cervix is inflammed
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
tricia - let us know!
good luck to you, dear.
Posts: 1761 | From USA | Registered: May 2006
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Okay- So I had my ultasound yesterday and everthing came back negative. She kinda has her hands up in the air..I have an appt with my LLMD today.
Here are my symptoms. Extremely painful lower back cannot bend forward or backwards. Pain in hips and it hurts to walk pain shoots down to my legs. Stabbing pain in my ovaries. Pain in my Bladder and Pressure. Pain in my righ abdomen Extreme Fatigue I am still only urnitating about 7 times a day so I dont have frequency or urgency Bloated stomach.
I think that I have some infection thats not being treated right. Maybe I have a bladder infection and they cant culture the bacteria??
What are some things I should ask my LLMD?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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My heart goes out to you as both my Lyme and vulvadynia are awful.
Pain is dreadful.
-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Hi everyone-
Yes I am on VSL DS 2x a day.
Talked to my wonderful LLMD. I have an appt with a fabulous Urogyncologist in a week.
My LLMD is putting me back on IM Rochphein. After I finish the Flagyl on Saturday. I am to restart Septra and Zith giving them each a week as well as GSE.
I was on IM Bicillan but were going to try IM rochphein bc it helped me before.
She said I probably had pid and teh rochepin helped it. And that the doxy they gave me for pid could have irritated my bladder. She said its known to irritate IC patients.
She said she would hold off on the IC Dx'ed until I had proper DX'ed from an urologist. And not to take the Elmiron
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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What's wrong with Elmiron?? I never did take it, just wondering.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Very good news!
Glad to hear that someone could give you some better answers!
Posts: 1432 | From New Jersey | Registered: Jan 2012
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Well-
Had a cystoscope and nothing was found. Have an appt with MY LLMD at a loss. still stugaling with IC like symptoms and vulvodynia
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
The thing that helped me was accupuncture. A spot or 2 over my bladder for the IC and the sciatic and hip nerves for the vulvodynia.
Haven't had any more treatments for a couple yrs but most of the time it's all still bearable. I notice the vulvodynia is always worse when those nerves in my hips and lower back are worse.
Like everything else, this is something that ebbs and flows. Oh, and I know for me, vitamin C is a big no-no. I keep trying every year or so but so far it always causes a flare.
Posts: 77 | From USA | Registered: Sep 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
tricia,
Sparkle suggested you might have parasites. I agree, especially since you have been traveling the world. Coconut oil fights yease as well as parasites, but is not enough to get rid of parasites if there is a bad infection there.
Really would be a good idea to try a parasite cleanse such as Parastroy, Humaworm or Hanna Koreger Wormwood.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Lyme/coinfections can also cause nerve problems "down there"
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
I recently started treating adrenal exhaustion and hypothyroidism.
After starting the hydrocortisone I thought I was getting a UTI. VERY uncomfortable and the pain radiated down there.
My first thought was the steroid aided in this UTI. Or possibly a yeast infection starting?
I did a search and found that bladder pain is a symptom of adrenal fatigue/exhaustion.
I've had the pain off and on but thankfully it never was a consistent pain for me. My heart goes out to you as it is debilitating.
It may be worth a shot to get the saliva stress test.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Tricia,
I was wondering how you are doing? I had a similar experience several yrs ago. I was in tears went back and forth to my gyn and he had no idea what was wrong. I went to the ER and they had no idea as well. The burning pain was constant. I was convinced I had vulvodynia.
I went to a new gyn and he listened to my symptoms and before even examining me he told me I did not have vulvodynia. The symptoms that I was descrbibing, the way it suddenly appeared etc did not fit. Also once he did the exam he could tell as well.
He ran more in depth tests and put me on diflucan for over a month as well as strong vaginal yeast formulas as well as a low dose of estrogen. Within a week I was starting to feel well again and within a month I felt great.
If you are still dealing with this find a different gyn.
Posts: 1748 | From United States | Registered: Dec 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
would you believe i have started getting this? one night i layed awake all night long from the pain.
i've tried vagasil, flagyl suppositories, douches, estrogen cream (both in and outside). nothing helps.
somebody said to rinse with water after you go pee or poo and not to wear any pads at all (I don't have periods). it's hard cause i have bladder leakage so i absolutely must wear them. i am not going to have that surgery either.
i lost my ob/gyn to retirement and can't get in with the new doc until november 15th. whew..long time.
wonder if i could describe this to my gp? could he help?
also is there a brand of leakage pads i can use? i wear poise moderate because if i didn't i would absolutely soak through any panties, jeans, etc., and the smell....ugh....
i know the pain and i really feel for you. i think there's more of us suffering with this than you.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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I did a search and found that bladder pain is a symptom of adrenal fatigue/exhaustion.
- Very interesting to me. My IC pain went away (mostly) during treatment for Lyme and babesia. During that same time period, I was put on cortef, which I still take.
Very interesting!
Randi... I'm so sorry that you are having pain!! UGH!!! You MAY have a bladder infection, so yes, your GP may be able to help you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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