posted
Sorry for my late response Cleo......thank you for the link.
My clinical nutritionist/metabolic specialist is recommending transdermal LDN......she has been using it with autistic children and feels it's effective.......so now I don't know what to think about this.
Anyone else have any experience with this?
Posts: 574 | From New Jersey | Registered: Feb 2004
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posted
Sorry for my late response Cleo......thank you for the link.
My clinical nutritionist/metabolic specialist is recommending transdermal LDN......she has been using it with autistic children and feels it's effective.......so now I don't know what to think about this.
Anyone else have any experience with this?
Posts: 574 | From New Jersey | Registered: Feb 2004
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
It doesn't make any sense to use it transdermally because it is supposed to be a quick block of opiate receptors to stimulate endorphins. It is very important when you get it compounded that they do not use time release which makes it worthless. Transdermal would be timed released.
It is too bad your specialist is giving it this way. It would just make her patients very anxious to be on a continuous stream of LDN. Someone should tell her. That is why LDN did not work for addicts. Blocking opiate receptors longer than a couple of hours made them miserable.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Thank you Nefferdun for the heads up on this......I will discuss this with the nutritionist.....she does a lot of work with autistic children and she said she uses it with autistic children because it is better tolerated this way.......maybe I will call a compounding pharmacy that fills orders of transdermal LDN and see what they have to say about this.
Posts: 574 | From New Jersey | Registered: Feb 2004
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
She should start them on a very low dose or 0.5 mg given in the morning so as not to disturb their sleep. As they adjust, raise the dose. After awhile they can change to evenings if they want but it has been proven by Dr. Zagon (not an LLMD) that timing does not matter.
You can buy it in 50 mg tablets and mix it yourself if you want. That way you can dose exactly what you can tolerate and raise it in tiny amounts because you are mixing it in water.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
From what I've read/heard, transdermal is NOT the way to go.
It's best to get LDN capsules for oral consumption from a compounding pharmacy. The LDN site lists recommended pharmacies.
Best to start at a low dose and work your way up to a therapeutic dose. Low dose would be considered .5mg - 1mg. Therapeutic dose is considered to be 3mg and possibly up to 4.5mg.
Our experience was going from 1mg to 3mg over the course of a few months. This worked for us, but of course everyone is different.
LDN through compounding pharmacies is cheap (relatively speaking) - $30-$35 per month. I wouldn't recommend mixing it yourself because I am personally uncomfortable with that but to each his own.
I have read/heard it's best to take the LDN in the evening. This has worked for us so I see no reason to take it in the morning or afternoon.
Posts: 1885 | From here | Registered: Jul 2012
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