I started doxy 200 twice a day and it has been about 6 weeks. I received my MOCHA panel results from my LLMD and I tested positive for Hypercoagularion.
I started about 5 weeks into my treatment adding 1 tsp of healthy sea salt/Vit C just once a day because I was very acidic and knew from LLMD and all of you I need to be more alkaline.
Plus the salt can help hopefully kill anything that doesn't like salt. I didn't feel any major changes after adding the salt/c- maybe even a hint of feeling better.
Since I have thick blood I added nattokinase for thinning my blood and seraptase (sp?) for inflammation.
I seemed to have a few hours of mental clarity- and able to get out of bed and have the energy to move from my bed to the living room.
I then was due to up my Nystatin from 2 tablets 4 x a day to 4 tablets 4 times a day. I remembered to increase just one dose last night and one earlier today.
I started to have symptoms of extreme lightheadness, even when laying down. I felt so nauseous and my head was hurting so badly.
My right leg and especially my right foot was having that tingling, numbing falling asleep feeling.
My right arm would feel tight and numb. I also felt these weird vibrations in the lower part of my legs. But that lasted on and off for about 30 minutes.
I ache all over, especially neck, top of shoulders, arms. I realized that I haven't taken an Epsom Salt bath with Hydrogen peroxide for a few days, so I did that hoping it would help.
I also felt before the bath that I was going to loose consciousness. I was laying in bed and couldn't figure out why my symptoms are so bad.
I am feeling some relief after the bath, drinking lots of water, but I still have to be still and not engage in conversations for very long.
My boys knew Mommy was feeling very badly because I felt the most comfortable laying on my side with my special pillow under my neck.
Oh, and I am taking Milk Thistle for my liver, but backed off of supplements like my B complex, etc. because I was so nauseous.
I wanted to share with you what I have been taking, some of the symptoms I can remember, so hopefully you guys can let me know if:
1. Am I herxing? Since starting the nattokinase could my doxy be getting to the Borrelia? I was having a bit of worsening of symptoms a week ago but nothing like today.
But then I also wondered:
2. Could I be having a die off of Candida from the two increases I made- going from 2 tablets to 4 of the Nystatin?
I backed down to 2 tonight because I didn't know if the 4 tablets were too much right now.
Is it possible for the Candida die off to cause those symptoms.
3. Or could it be a combination of Herx and Candida?
I hope I am making sense in this post. I became pretty scared because I have two children under the age of 9 -
and if my husband wasn't home today, I guess I would of had to figure something out or call a friend or neighbor for help.
And you guys may see something in what I wrote that I am missing.
Thank you ahead of time. The almost blacking out and not being able to control my consciousness is what really concerned me.
Thanks again. Oh, and I also had air hunger, and my heart felt like it was racing fast but it was about 80 bpm-
so I think that was fine. I just feel like I need to keep laying down and not thinking. Now you all are probably wiped out from my post. Posts: 167 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
You are describing a Babesia herx to a T. It is common to herx for Babesia on antifungals. Diflucan has been a great Babesia and Candida med for me.
You are on a very high dose of Nystatin. It is a safe med, so don't be alarmed.
Supposedly Nystatin does not go into systemic circulation. It remains in the gut. But it does seem likely that it could enter the bloodstream, especially at a high dose.
It could also act synergistically with Doxy, which also has some anti-Babesia action.
You did exactly the right thing to reduce your dose and take a detox bath.
Report your reaction to your LLMD. S/he may want to reconsider the dose or change the med.
It is possible this was a huge Candida herx, but it sounds much more like Babs to me. Your doc may want to do a trial run of Mepron or Malarone to see if you have a similar herx. That's a great way to confirm a Babs diagnosis in the absence of reliable testing.
I hope this helps. You should not herx to this degree, especially to the point of nearly losing consciousness.
Report to your LLMD. Oddly, this could be a good result if it points you in the direction of proper treatment for co-infections.
posted
Thank you BoxerMom. I will call my LLMD on Monday. And debilyn I should have waited longer when adding a new thing before started something else.
My LLMD has that printed many times on his information sheets. I will back up and just stay with the salt/c- because I think that has been four days, but maybe I should wait a week.
But since I have Hypercoagulation, I think that should be a priority to take something to thin my blood.
Thank you. I have to remember slow and steady, right? And it's the pace, not a race..I think that is how the saying goes.
It is 2:40am here, and I am feeling better. I have been more thirsty, and I do drink quite a bit, but my body is telling me it needs more.
Thank you again. Whew! I don't know how you got through those symptoms- especially if they were occurring often. I guess you let up on the treatment so your body can adjust. I still have so much to learn.
Did your LLMD's treat you for Babesia at the start of your treatment with abx?
Posts: 167 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Yes. I tested positive for B.microti, so my first year of treatment was for Lyme and Babs. I had big herxes, but good days, too.
Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
"But since I have Hypercoagulation, I think that should be a priority to take something to thin my blood"
I have hypercoagulation too. My LLMD and I are waiting to treat that until some of my other infections are under control.
When you treat hypercoagulation, basically your body then gets flooded with toxins. If you're body is too weak, it's just too much for it.
I was concerned because we weren't addressing hypercoagulation first, but as time has gone on, I've seen the logic in this for me.
My body just has too many infections, I think I'd die if it was flooded with EVERYTHING all at once.
Posts: 2839 | From California | Registered: Jul 2012
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posted
Judie, thanks I haven't thought about it that way.
I was concerned just like you. I will ask my LLMD about it. I remember he wanted to wait for the heparin injections because not only do they thin but act as an antibacterial and I think fights against viruses too, but I am not positive on that one.
He just wouldn't know which I was benefiting from or not because abx and heparin can treat some of the similar bugs and he wants to know which abx is working.
So that is why I added the nattokinase, but I do feel it is getting to things and there are definitely toxins. But I will ask them about it on Monday and see what they say. I may need to add a certain detox- I am curious to get their feedback.
Posts: 167 | From Southeast Tennessee/Chattanooga/Atlanta | Registered: Oct 2012
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posted
My Babesia test came back negative as did the one for Bart. I was diagnosed clinically for both.
I am taking several abx including rifampin for Bart; am taking the herb cryptolepis for Babesia while my doc and pharmacy
figure out how to get coartem; apparently, where I live, the pharmacy can't get it.
As for hypercoagulation, I read, is pretty prevalent in those with Lyme and cos; I have it too. Right now I am
taking Wobenzyme and grape seed extract to help my blood keep moving. You already said you're drinking lots of water.
That will help some too. I totally agree with Judie: you probably don't want to do the heparin while you're loaded
with infections. Today is my second day off abx, salt/c, parastroy, etc. while my stomach/gut inflammation subsides.
I had a bad herx/reaction to cryptolepis once I got to 15 drops. When that happens to me, I have to pull off everything until the
vomitting and extreme nauseousness stops and I can eat solid food again. I usually go off abx for 1 day when this happens, but this time I need 2 days off, I think.
It took me nearly a year to learn how to back off and go slow. You will figure out what works for you. You said you have lots of questions for your doc--excellent!
Hopefully, you're feeling better today. Posts: 331 | From West Coast | Registered: Jan 2012
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I will back up and just stay with the salt/c- because I think that has been four days, but maybe I should wait a week. ![[Smile]](smile.gif)
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