posted
I had a very long first appoint ment with Dr. C for a relapse (#6 since 19887) of Chronic Nuero. Lyme. I liked him very much . However there were very significant differences between his Guidelines and Dr. B's guidelines. He did not reccomend suppliments or talk about any lifestyle change (Diet or Rest, etc) . When I asked him about these things he said that these things were not backed by any significant research. There is no doubt that I have Chronic Neuro. Lyme or that I am probibly dealing with 3 co-infections. But at the same time hewas going to send blood tests to a Local lab. Howeever I told him I wanted any Blood Tests to go to IGENIX. He was ok with that, but I have to call and get the kit and come back to him for the blood draw. I travel 2 hours to get to him. I really like him (he listens and knows,. I know I need to give him a chance, but I am feeling so bad and keep getting worse. I don't know who I would go to , if not him anyway. I've dismissed all the LLMD cloer to me for all kinds of reasons. Would love to know about ILDA and if I am in the right hands. Struggeling
***Please do not post names of LLMDs on the board. It is against the rules***
[ 11-28-2012, 02:27 PM: Message edited by: Lymetoo ]
Posts: 46 | From woodstock, NY | Registered: Nov 2012
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Remember, to protect our doctors, please only use their initials when speaking of them. Thanks!
You can easily edit your post or ask a moderator to help you.
Now to answer your question, Dr.C in NY is well respected. I'm thinking that you are in good hands.
He may have wanted to send your blood tests to a local lab like labcorp because he was pretty certain that you would get at least several positive results.
This saves you significant money because then you only need to use igenex to recheck a couple tests.
I know it is hard to be patient when we are so sick and all we want is to do anything to get our lives back.
P4lyme, it sounds like you've beat this before. You can get well again.
Good luck to you.
Posts: 5237 | From here | Registered: Nov 2007
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
I would guess there are not any two lyme docs who treat exactly the same. This is because no one knows all the answers, so an experimental approach is a good thing. However, they are probably on the same page with the basics.
Don't know what you mean by ILDA. Is this ILADS? If so, it is the scientific organization that most lyme docs belong to. The IDSA, on the other hand, wrote the guidelines that keeps us misdiagnosed and untreated.
Please put paragraphs in your posts. Many cannot read solid blocks of text.
Posts: 2888 | From USA | Registered: Mar 2004
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Dr. C is a part of ILADS
Posts: 5237 | From here | Registered: Nov 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
where you live you do have many well known ilads docs but they are very expensive and take time to get in to-they are closer to you than him
i also know of one who automatically sends to igenex, does use some supps...i dont think any of them use all the same supps and he is right about few supps having research done on them...
the other doc treats clinically and is not much farther-easy drive-and much cheaper and easier to get into - pm me if you want more info
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Regarding the "not backed by scientific research", things like supplements and lifestyle changes never will be, because there is no money in it. People just aren't going to waste precious money on things that are obvious anyway, that these things can make a difference. By the way, what passes for "scientific research" these days isn't much to toot a horn about anyway...
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
ILADS and Burrascano are compatible .. not opposing views.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
ditto this:
By the way, what passes for "scientific research" these days isn't much to toot a horn about anyway...
yeah tutu-i was thinking i should clarify that
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
If I were you, I would take the supplements required by Burrascano and I would follow the anti-yeast diet. You don't need a doctor to do these things.
I would also do the Burrascano exercise program as you are able.
I would also continue looking for a lyme doctor who treated like Burrascano and who gave the patient supplements.
If you get yeast, will this doctor acknowledge that and treat you for it? That's what I wonder. Because, if all you do is take antibiotics (and no probiotics and no anti-yeast diet), that is bound to happen sooner or later.
If he gives high dose antibiotic combinations as per Burrascano, then you will hopefully start feeling better eventually.
If his medication doses and combos are not equivalent to Burrascano's, then I would continue looking for another doctor. Also, does he acknowledge and treat coinfections adequately. These are the two biggies.
Posts: 9931 | From Maryland | Registered: Dec 2007
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