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» LymeNet Flash » Questions and Discussion » Medical Questions » Mild Hyperbaric Treatment (Page 41)

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Author Topic: Mild Hyperbaric Treatment
Kaibyrd
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Kgg,

I did decide to reduce my dive after all as my fatigue and weakness just wasn’t subsiding with time off. Thank you so much!!! I think it’s working!

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KB

Posts: 34 | From Northern VA | Registered: Apr 2015  |  IP: Logged | Report this post to a Moderator
Digby
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Kaibyrd...I see you are from Northern VA. Just for your information, there is a chiropractor around Herndon, VA that has a Vitaeris chamber in his office. I believe it is very reasonable. If you are interested, you can PM me for more info. Plus I don't remember his name off the top of my head.
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Kaibyrd
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Thanks Digby, I really appreciate that, but I have a chamber. It’s a Summit to Sea so I’m just wondering what’s so bad about that company and if I should get the extended warrently.

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KB

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kgg
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Kaibyrd, it is my understanding that the reason why people don't like them is the zippers breaking and window seals going. One person on the FB group that had a malfunction with the chamber said they were a great company as far as working with him to get it fixed. Meanwhile, it is not a speedy process.

My husband is one to not buy extended warranties. He is old school. Why should he buy it? Is it not going to last? But we did buy one on an electronic product for my son once and it was totally worth it. How much is the extended warranty? And what would it cover? Can you afford it?

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Kaibyrd
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Thanks kgg that helps to know there have been those issues.

Do you know if the problems occurred when the chambers were relatively new?

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KB

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kgg
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It seemed like that was the case. But my total recall on these kind of things is sketchy. I did not think it was an older one or a used one.
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Kaibyrd
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Ok, I think I’ll get the extended warranty just to be safe. Thanks so much, kgg!

BTW how are you doing these days?

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KB

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Kaibyrd
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So...nightmares...is it normal to have very realistic ones? Is there some way I can stop them? If I never have another like last night’s, I may not loose my mind. It was bad.

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KB

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carbokitty
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Whew! I'm up to page 30 of this forum. Only 11 pages to go and be caught up. LOL

Carbokitty

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Kaibyrd
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Carbokitty, are you going to read The Oxygen Revolution too? You’re getting there!

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KB

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kgg
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Kaibyrd, I don't get nightmares. I can count on one hand how many I have had in my life. My son gets them a lot. Thankfully, they don't cause him angst. He finds them entertaining.

Are you using Benadryl to sleep by any chance? I know someone who used to get terrible nightmares and she narrowed it down to Benadryl.

Hopefully someone who gets them will chime in.

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carbokitty
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Kaibyrd~

Yes, thanks for the reminder! I have The Oxygen Revolution but haven't started yet. (I will start as soon as I finish the book I'm reading for pleasure [Wink]

I figure actual users will educate me more about the pros, cons, and actually healing experienced.

Hopefully will get to the book this weekend.

Carbokitty

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kgg
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Kaibyrd, I don't get nightmares. I can count on one hand how many I have had in my life. My son gets them a lot. Thankfully, they don't cause him angst. He finds them entertaining.

Are you using Benadryl to sleep by any chance? I know someone who used to get terrible nightmares and she narrowed it down to Benadryl.

Hopefully someone who gets them will chime in.

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Kaibyrd
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Kgg no I haven’t taken a Benadryl in years. Thankfully the nightmares didn’t recur last night. I slept pretty good actually except for one wake up during the night. I really hope this type of nightmare never comes back. It was not entertaining at all! Stupid brain. 🤨

Carbokitty, I wish I had known about this thread before I started diving. Soo much info here!

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KB

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Oaktree
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HI All,

I have been slowly increasing my time in chamber without wearing 02 mask, (o2 flowing in) am up to 35 mins now and seem to be tolerating it

I do have a Summit to Sea Shallow Dive. It is an older model, probably an '09. I got it used with about 600 dives on it. And the zipper is starting to leak. It is leaking at the seated position, and I have noticed some thread fraying and there is a slight blister at the top of the rubber seat. I still am reaching full pressure, but it hisses.

In this case:

How much does it cost to replace zipper?

Are there other people who do this, or best to send back to Summit to Sea?

Any idea of how common this is and if this can be used for a while longer without this becoming a more significant problem?

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kgg
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Oaktree, I had a Vitaeris from OxyHealth that was a 2006 chamber. The zipper went when it was about 10 or 11 years old. They quoted me $1500 to replace the zipper. I forget now but some more to check and make sure the window seals were good while they had the chamber. Plus the shipping. My plan was to send them the chamber and they would repair it. All of that to say, please contact Summit to Sea.

Meanwhile, you really don't want to be using it. If it blows while inflated it could damage you ear drums. At least that is what I understand could happen.

I don't know if Phioph knows of someone who repairs chambers. Hopefully if she does she will be in contact with you.

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carbokitty
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Kaibird~

Yes, its fascinating! Reading from 2013 to the present, its like reading a book. And now, for me, its like I'm really getting to the good part. In 2018, I am starting to read about more and more people getting well and getting on with their lives I'm so happy for so many of you and feel encouraged and inspired!

I arrived here in pretty good shape, having made great strides in my health since 2011. I'm generally pretty functional. My big remaining issue is my GI tract (diarrhea/loose stools) and food sensitivities that keep me from being able to be more social, travel more and in general live my best life That's what I'm looking at this therapy for. I've tried almost everything else (except having my dental implants removed and cavitation addressed).

Thanks so much for everyone on here who has shared their journeys for those of us coming up behind you. I am grateful!

Carbokitty

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Kaibyrd
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Completely agree Carbokitty!

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KB

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Kaibyrd
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Oaktree, I received a cleaning solution for the zipper and a lubrication oil for the seated area for my new Summit to Sea and was advised to zip in a careful way, never pulling out and making sure the teeth were aligned well before zipping so if the previous owner of your chamber didn’t know to do this, they may have damaged the zipper. Do contact Summit to Sea and let them know. I can give you the name and number of the lady I worked with while purchasing.

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KB

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susank
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Phoiph - I sent you a PM.

--------------------
Pos.Bb culture 2012
Labcorp - no bands ever
Igenex - Neg. 4 times
With overall bands:
IGM 18,28,41,66 IND: 23-25,34,39
IGG 41,58 IND: 39
Bart H IGG 40

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Phoiph
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susank~

Thanks, I replied...

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carbokitty
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HW88~

I'm fairly new to this group and don't have a chamber yet. I've done 10 dives at a local clinic. I've just read the 40 pages of history (and its amazing and wonderful and such a wealth of information and trial and error and thank you everyone!).

I was struck and concerned about your struggles and how similar they are to mine, or some of mine in the past. I know one or two people mentioned mold and I just feel I wanted to bring that possibility up to you again if you haven't looked into it. I think you moved during your time in this forum and diving, right? And then you reduced your klonopin and then got off antibiotics.

It took me forever (years!) to identify mold as the true source of my health (mental and physical) issues. No one else in the house (my parents and then later ours) was having any sort of problem. And you couldn't smell it. It wasn't like there was a moldy/musty odor.

After a year of treating Lyme, I got sicker and sicker. First it was my parents condo in Florida. When I would go back home, I'd be ok. But then I wasn't. Suicidal and not sleeping AT ALL (like you), I eventually starting learning about mold. I hired an environmental engineer to come test (air and dust). He did his master's thesis on mold in wet damaged buildings. He explained that the levels in our basement and one room on the mail level would not bother "normal" people, but the 24% of us without the gene to identify and detox mold, it makes us very sick.

For 6 months I lived on the 3rd floor that he deemed "safe" for me, coming downstairs to use the bathroom and to leave the house. My husband remediated. I eventually detoxed with binders and fresh air.

I've wondered what happens when the oxygen concentrator is used in a house with mold. Does it concentrate the mold exposure to the person using it?

I am currently in southwest Florida where mold is rampant. For that reason, I am not getting any mHBOT at any local clinics because of my fear that there could be mold in the environment where the chamber is.

Anyway, this may or may not be your story. After reading everything, I just couldn't let it go without sharing my story and my concerns. I know one of the members of this forum also discovered after mHBOT that mold was part of his story too and pursued mold avoidance. the best remedy for mold sensitivity and exposure.

Please be well and consider this if you haven't already.

Carbokitty

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kgg
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Good info Carbokitty. I was concerned about my concentrator. Because our last house had mold in the laundry room. Someone (I wish I had saved the post!) on the FB group had said that the filters should be enough to prevent that. What I recently did with mine, (since the warranty has long expired) is open it, dust it and change two filters in it. I wish that I had the $$ to buy a new concentrator, but I don't. It is working fine. So that will have to do for now. I still see improvements from diving, so I am assuming I am OK.
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carbokitty
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I want to add my symptoms when I'm in/exposed to mold: my "big" 4 are severe insomnia, diarrhea, anxiety and depression, which can be severe at times. Then crying, heart pounding, burning tongue, brain fog, head pressure, twitching, itching, blurred vision.

Again, in case this helps anyone.

Keep diving!

Carbokitty

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carbokitty
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Hi all~
I'm reading the book now, The Oxygen Revolution. A couple things so far have stood out to me and have so far helped me understand how this therapy might have application to me.

"Accidents that result in oxygen deprivation including...exposure to neurotoxins" (mold and Lyme)

"the understanding is that we are simply using pressure and oxygen, two entities to which all living organisms are sensitive, to manipulate gene expression and suppression in or to prompt the body to heal itself"

"HBOT specifically treats inflammation, the common secondary injury process as a result of all acute and chronic conditions"

As i've struggled with "do I have Lyme/don't I have Lyme", so far these three lines have helped me understand that, with regard to using mHBOT, it doesn't matter. And it doesn't matter because, a) I know for sure I have been exposed to mold (neurotoxin) (and still have mold/mycotoxins in my system), b) I like the thought of manipulating gene expression to prompt the body to heal itself and c) it treats inflammation, as result of ALL chronic conditions.

I know we all read the book. Just wanted to reinforce for myself why I might want to do it and what it is doing.

Have a great day!
Carbokitty

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Digby
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Carbokitty, great quotes, we can all benefit from being reminded of the deeper processes that occur with mHBOT.
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