2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Since my son and I took an over the counter supplement we have had numerous problems. Among them, dry eyes.
I am assuming the supplement(s) were toxic.
It has been almost two years.
The eyes seem to be getting worse, among other things. I don't know how toxicities work. I always thought symptoms got better when stopped, but maybe they just get worse, especially the neurological.
Any thoughts or experiences in this area welcome.
Otherwise, what do I do with the dry eyes. My son has sand that forms regularly throughout the day, watery eyes, and red veigns.
I have sand throughout the day and burning eyes. I prey his eyes don't start to burn. I know chlorine destroys his.
I am taking him to an eye doctor soon, on a waitlist.
Don't really want to give him artificial thngs, so I'm asking if anyone has any thoughts on remedies THAT ARE SAFE, especially in kids.
thanks,
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
posted
I have Sjogren's. One thing that helps me is to use eye ointment at night. It helps keep the eyes from getting extremely dry, which would otherwise carry over into the next day.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A lot of drugs CAUSE dry eye and dry mouth. Be sure to see the side effects of everything taken.
Some commercial eye drops make it worse.
Adrenal dysfunction can also contribute as can overall toxicity (as I've observed for my own eyes when I don't get enough water and antioxidants).
FISH OIL Can really help. And these homeopathic dry-eye drops help me. Avoid too much computer time, if possible (and remember to blink, very often).
Book & website: THE EYE CARE REVOLUTION - by Robert Abel, Jr. M.D. (Ophthalmologist)
- Though not at all about lyme, this is one of the best reference resources on my bookshelf that has wonderful chapters, many graciously available through their website.
ASTAXANTHIN - an antioxidant that has great promise for the eyes
Also be sure to get your FISH OIL - Many here really like OmegaBrite - just Google.
TAURINE is an essential amino acid for the eyes. Be sure diet includes enough. Vegetarians MUST supplement as it's primarily in muscle meat, fish and eggs. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Thanks Tutu and Keebler.
My mom had sjogrens, but I think my son is too young for that. I'd attribute chemical exposure....sad. What drops did you use Tutu?
Keebler, I have a book on homeopathic remedies, and they talk about Similasan eye drops too. I will read the article. We have started a shell fish childrens capsule by Dr. Mercola. We are on day 3. My book praised primrose oil. Not sure what to do with that.
I do worry about his adrenals. His eyes, his sleeping among many things not good, including hyperness. His kidneys reqlly took a beating, I don't see why the adrenals wouldn't have.
He eats enough muscle meat. Book also praised bananas. Trying to incorporate them. I need to look into astaxanthin. I will read the literature.
Thanks for the replies.
Hugs
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Vitamin A deficiency can also cause this.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
posted
He's probably too young for SJS. I use Soothe eye drops by Bausch and Lomb (I think) and Systane eye ointment at night.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I have dry eyes and mouth. Sjogrens and related tests normal. I have Lyme and Co's.
Eyes really really bad years ago but got better using submicrobial Doxy daily dose.
You can read about that and also research Meibomian Gland Dsyfunction.
We finally got my M glands to decent function - and then - wham two months ago I got toxic. Not sure from what but it dried me up again - lost M. gland function. I am in agony.
I have to stay off all meds - including Doxy for two weeks awaiting test results.
In the meantime I have started Glutathione/ATP injections for detox reasons.
For my bad eyes in addition to Doxy, I do daily lid scrubs (cleaning) with Ocusoft foam, use Soothe eyedrops, Refresh PM ointment at night, Restatis prescription drops am/pm. Also have had my lower tear ducts cauterized closed. I also wear bandage contact lenses (no correction) and wear jockey goggles when going outside - tinted ones when sunny.
When my M. glands were functioning I would manually "express" them myself - and get the much needed oil on my eyes.
Hope this helps.
Tutu - since when are you in Houston? My optho is in Houston and he is very Lyme sympathetic.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I have horrible dry eyes. They burn and turn red. I have tried eye drops OTC, not much help. Maybe its vitamin A deficiency. I don't take that vitamin. Glad to here about that, might try it.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Lyme and company gave me terrible dry eye and dry mouth. I had to doctor for both.
When I switched lyme doctors and got good lyme treatment (Burrascano protocol), my dry eye and dry mouth went away. It was heavenly!!
So, you may not want to do anything permanent like get your tear drains cauterized (burned shut).
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
A lot of us complain of dry eyes. It was my primary problem before diagnosis and I still have it although it is better. Treating the infections helps.
Everyone I know of with protomyxzoa complains of dry irritated eyes so that might be why I still have it. Or it could be I developed an auto immune condition or my tear ducts were damaged. Who knows.
Occasionally I get a dry mouth which is odd because I have always had a lot of saliva. That would indicate something like Sjogren's. PR causes auto immune diseases to develop so I lean towards thinking that is the case. I take LDN which helps the Hashimoto's but it has not done much for my eyes.
I have asked the doctor for plugs to try to keep more tears in my eyes but so far, no response.
Carnosine is helpful for the eyes. You can get carnosine eye drops or capsules. Maybe try using both of them.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Thanks everyone for your insight.
I am trying to figure out if this is going to get worse as it is doing, or if it will plateau.
I'm concerned that there won't be a permanet fix to anything non-invasive and my son will have to live with this.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
posted
I had terrible dry eyes too, and had to use the ointment at night before bed. Also lubricating drops throughout the day helped a lot.
My eye doc told me to use the drops regularly, even when unneeded, to keep the eyes lubed so they don't get irritated and inflamed. This was helpful since my tendency is to use any med as little as I can get away with. But when I started using it more liberally, as directed, my discomfort (and it was truly miserable) lessened.
Colloidal silver in an eyedropper several times throughout the day seemed to help, too. Though I don't know how safe this is -- but when I told my eye doc, who is very Lyme literate, she thought is was a good idea and said she would recommend it if she could.
This syx has eased enormously with trx for Lyme and co's. But it comes back every once in a while with a vengeance.
Posts: 845 | From Eastern USA | Registered: Jul 2006
| IP: Logged |
momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
My son had this same problem. I took him to 3 different eye doctors. No cause could be found.
Our regular doctor suggested fish oil. It took quite a bit of time, but the problem did go away.
I don't know if it was because of the fish oil or not. We also have found great benefits in coconut oil.
I wish I had a more definitive answer for you, but my suggestion would be to try fish oil. A high quality one.
(I just noticed Keebler said that too)
OTC eye drops did not help our son at all. We tried many different kinds. It almost seemed to make it worse.
Posts: 1408 | From Tx | Registered: Nov 2009
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Thanks everyone.
Mom, how much coconut oil did you take for your son? Forgot to ask in PM.
Thanks
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
I know you said you been having this problem for two years, but keep in mind, this is a very bad year for allergies, mode, weed and high pollen counts.
I was tested for teardrops - it came back as (0-teardops) this can also cause burning eyes.
I was told to try (Artificial Tears) you can find these in CVS, etc. It does seem to help with the burning and stinging throughout the day.
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
thanks steve, i'm gonna stay away from artificial tears, but am trying krill and coconut oil.
Yes, it's been almost 2 years
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
posted
2roads.. it's very important to use the artificial tears (eye drops) when one's eyes are dry. Otherwise, the eyes can become damaged. The eye drops help protect the eyes.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
I have read that they may make the situation worse.
Maybe I am wrong.
We are seing an eye doctor within the next two weeks for an eye exam.
Thanks for the input.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
get drops with no preservatives. you need them.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
whose "nomoremuscles" tutu?
Would drops make your eyes stop producing on their own?
I want to try the drops keebler recommends, that I read about. The organic kind.
I agree preservative-free
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
I have read that reg. eye drops can be bad in the long term use. I have never seen bad reviews on (Artificial Tears), if you use the right ones.
I would ask your eye doctor to recommend the best treatment for you and your son.
Check out this web-site - it talks about both eye drops and (Artificial Tears).
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic