sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
My mom keeps testing border line for lupus. She has been falling lately and has broken two bones. She says her legs are week and her arms. She is 78 so maybe that's a contributing factor. However she has always been young for her age.
I just wonder if lupus is actually some kind of infection. A couple of years ago she took doxy and felt better while on it. I want her to go see my LLMD but not sure she is open to that.
She also has fatigue and flu like symptoms. She told me she sleeps so easily anytime of the day. Also her platlets are low, a symptom of lupus.
Right now she is in the hospital recovering from surgery due to a broken bone.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- IMO, ANY - yes, ANY, "autoimmune" diagnosis should be examined for any connection to lyme, other TBD or connected stealth infections.
So many "autoimmune" disorders are just an umbrella, or a waste basket, a collection of symptoms.
Still, with lupus, it could be both lyme/TBD and autoimmune factors.
LDN - Low Dose Naltrexone might be considered.
I was misdiagnosed as having lupus (and so many other things). They were wrong. Various tick-borne and a few related stealth infections were at the heart of it.
I am so sorry to hear that your mother is in hospital right now, and required surgery.
Likely, she was given some steroids to help reduce inflammation after surgery (and that can make lyme worse). And, likely, she has been given lots of acetaminophen which is very hard on the liver and all cells due to how it totally blocks glutathione in the body.
If the hospital she is in has any naturopathic doctors or acupuncturists on staff, they may be able to offer some pain relief that won't stress liver and kidneys.
I don't know what else to tell you and just have to stop now. I hope she / you find what you need to help improve the situation. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Right now, I'd be more concerned with her nutrition. It's usually horrible in any medical facility. Hopefully, the one she is in "got the memo" but in case not, be mindful of:
Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Magnesium deficiency can cause bones to break more easily. And, if she happens to be deficient, they can give her IV magnesium in hospital. That can help relieve pain and also nourish the liver.
For nutrients, you might see if you can take her some greens powders and hemp protein powder. Add some cocoa and stevia.
Hope she has a sense of humor and can "fly under the radar" to get some things that most hospitals just don't do.
If fact, many of her symptoms could be related to lack of magnesium.
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Yes I have read about the road back. It makes total sense. I was just speaking to my mom about that. Trying to ease her into considering that it could be infection as the root cause.
Oddly enough the surgeon said her bones were hard. I guess 2 breaks within 1 year was just bad luck on her part.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I had been misdiagnosed with lupus for years from a top leading university hospital. My labs and all symptoms pointed to lupus. Fatigue was terrible.
Two years into Lyme treatment, I am no longer ANA positive and don't have fatigue or joint pain. In other words, I never had lupus, but Lyme all along.
Feeling better on antibiotics tells you something. I would feel that way also and the docs would brush it off. Now I know why.
Good luck!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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