posted
I heard that caffeine is no good with chronic lyme patients- I usually have 2 cups a day of caffeinated coffee for the past 10 yrs at least .. Was goin to quit all together for one month an see if I notice any change in my health . Any one have any experience with this? Am I only wasting my time ( because I'm really not sure I can survive without a cup a day!) Thank you all for the continued support and helpful insight!
Posts: 259 | From new york | Registered: Sep 2002
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kgg
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posted
You are going to get all sorts of answers. I will tell you my experience. I quit drinking coffee for a year. I dragged my butt for a year. Then I decided I needed to function. And there were worse lifestyle habits than 2 cups of coffee a day.
I drink my coffee. I enjoy my coffee. I function (albeit tired) and I do not let others opinions influence me on this one. FWIW.
Posts: 1684 | From Maine | Registered: Jun 2004
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desertwind
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posted
I also enjoy one cup a day. I am not going to restrict every pleasure in my life. No adverse effects for me. Enjoy your cup o Joe! DW
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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posted
I have one cup of 1/2 caf, 1/2 decaf per day. I have eliminated almost all the other fun stuff, and I do enjoy a cup of coffee in the morning. Makes me feel almost normal for a little while each day.
-------------------- "Yeah, I miss me too." Posts: 234 | From NY originally registered in 2008 | Registered: Nov 2012
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MichaelTampa
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posted
I hear it kind of whips the adrenals into functioning without providing any assistance to them. Some (many?) with chronic lyme have very worn down adrenals. Adding coffee is a short-term energy fix that ultimately leads to more wearing down of the adrenals.
A certain level of adrenal functioning will absolutely be required to get through treatment (process the bug-killers, take out the trash from the body, ...). Hydrocortisone can substitute for adrenal function. In that sense, perhaps anyone can get through treatment with poor adrenals as long as hydrocortisone is supplemented at the proper level.
To some extent it just matters whether you desire to heal your adrenals.
Posts: 1927 | From se usa | Registered: Mar 2010
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GretaM
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posted
I enjoy coffee as well.
I am sure the caffeine is not good for my adrenals, but coffee is an antioxidant. (studies)
I have a cup or two with breakfast-black.
Pre lyme I was a 9-10 cups per day.
I'm not worried about 1 or 2 cups.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Try GREEN TEA instead when wanting to avoid the adrenal rush that coffee gives.
The antioxidants in green tea are far better, IMO. Green Tea has certain health properties above that of coffee.
Green Tea has less caffeine but, even better, it also contains THEANINE so it's not a rush to endocrine system (which is toppled on its head with lyme).
So, one can obtain some alertness with Green Tea but it's not going to zoom to the moon. Still, best to not consume too late in the afternoon as there is still enough caffeine to interfere with a proper bedtime.
But the later cups from a teabag or infuser have less than the first cup, so keep that in mind. I can usually get four 16-oz cups from 2 tsp. of loose tea.
But do not buy the teas that you find in markets as you never know what additives they have, the strength of the caffeine, are usually in plastic bottle that leech petro-chemicals, etc.
It's easy and less expensive to make at home,have some ready to go (keep a condensed batch in fridge to dilute as desired) and loose tea even a better bargain. Detail:
posted
WOW... I am surprised to see how many people responded favorably to this!! I still drink a 12 oz cup of coffee every morning with xylitol and coconut (or soy) creamer. Gave it up for 10 days and it was AWFUL. It was harder to give up the caffeine than it was alcohol or sugar!
I asked my LLNP about coffee... she said she would prefer that I did not drink it at all, BUT as long as I limited it to one cup a day and use coconut creamer and no sugar, she was not gonna tell me to stop.
Thanks for posting this question!!
Posts: 80 | From New England | Registered: Jun 2012
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Keebler
Honored Contributor (25K+ posts)
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posted
- In the self-care portion of Dr. B's guidelines it states: "No Caffeine"
If we "need" it, chances are our adrenals are trashed and we are calling upon "emergency crews" that really just continue to damage adrenal function. Although, with the Theanine in Green Tea, that adrenal stress factor is at diminished.
The acid in coffee is also really bad for many stomachs. The acid in Green Tea is much more kind yet that is also to be considered.
Still, if one is "on" coffee, I'd never suggest going cold turkey but very gradual shifts down, and for the flavor, substituting organic decaf, gradually.
I've had to stop coffee several times in my life. It was a very strong addiction but I'm thinking it was more that I just had no adrenal function to speak of and it was a spiral down in disguise of that short lift with each cup. It lied to me, basically. It was no help to my body or brain, really - and perpetuated an ulcer for longer than I had realized.
But I don't get any of those lies or drops or revs from Green Tea. I get a nice, solid support and lots of choice. The Green Earl Grey and Green Jasmine are especially nice.
Coffee can have benefits, of course, but I think many with lyme (in such a weakened state) just can't tolerate its strength. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If we crave caffeine, what our body may really be needing:
posted
I actually can't make it without coffee. Just a fact for me at this point in time.
I remember way back when this was first starting for me, I took flower pollen tablets and I had all the energy I needed and didn't need coffee.
So you might consider playing around with options, including having your adrenals checked, and check in with a doctor about it.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
The acid problem is solved easily. Just put 1/8 tsp baking soda per 8oz. This should make it just slightly alkaline. I do the same thing with diet soda. No more acid I can't taste any difference at all either.
I don't drink a hole cup of coffee at one time. I like to put it in the fridge and then just drink sips throughout the day because I like the taste of it cold better than hot. I also add a little cinnamon, vanilla (tsp), and Kahlua (tsp) Yum!
Posts: 132 | Registered: Jul 2005
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dbpei
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posted
I enjoy 2 cups of half and half (half decaf and half real thing) every morning. I try to buy the organic coffee, but it is hard to find organic decaf around here.
When I switched to total decaf, it seemed to result in some constipation for me. I also have lots of green tea and herbal teas throughout the day.
Has anyone here heard of bulletproof coffee? It is supposed to be very good for you, but wow - it is pricey! My LLND wanted me to order some MCT oil from that company and I saw their section on coffee.
Posts: 2386 | From New England | Registered: Aug 2011
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Abxnomore
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posted
You can make bullet proof coffee with coconut oil, it's a medium chain triglyceride oil, and grass fed butter such as Kerry Silver. You don't have to buy it from the bulletproof coffee site. Their prices are really overpriced.
Vitacost sells MCT oil for $9.19 and you can buy organic fair trade, decaf coffee online for less.
Why did your LLND think it would be good for you? It would seem to me that it would rev up your nervous system and, perhaps, stress it.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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dbpei
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My LLND wanted me to use the bulletproof MCT oil (1 tsp 1 - 2 x day) I think it is a small dose. It is supposed to do a lot more than give you energy. It is very good for the brain and cells.
Hopefully, I will feel better when I start this. I guess it is an alternative to coconut oil. She said to use it in my soups, salad dressing, etc.
Posts: 2386 | From New England | Registered: Aug 2011
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Abxnomore
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posted
Yes, it's true it does give you energy.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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steve1906
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posted
From my research throughout the years I believe one cup of coffee is ok. But I would also add, you should drink it black (hot or cold).
In my opinion the benefits of a cup a day outweigh the negatives.
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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desertwind
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posted
Can't live life in a virtual straight jacket. Enjoy a cup and see how you do!
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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linky123
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posted
You can try giving it up and see what happens.
It never really seemed to make much of a difference in how I felt.
In fact, I think the caffeine actually helps my headaches.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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Catgirl
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posted
I agree with Michael. I wish I could drink it, but my adrenals have been shot for years, so it is no longer worth it for me. It has taken me a long time to get them to where they are now. Now coffee enemas, that's a different story (lol)!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lymeboy
Unregistered
posted
I used to drink almost a pot each day. Loved the stuff. I stopped after reading Dr. B's guidleines a few years back.
After a while, I would take the occasional cup of coffee. At first it seemed like a normal coffee rush.
But a few weeks after my first cup while treating Lyme, it gave me intense sweats, chills,anxiety and then a bad crash. I was only having a cup here and there.
After a while, I find my own energy. It sucks sometimes, not having a nice cup of energy to get me going in the morning, but I have adjusted fairly well.
I love coffee. But I suspect I have adrenal issues, and I take too many abx to fill my stomach with acid.
I have been considering coffee enemas, alongside parasite TX. But that is not such a creature comfort now is it.... Unless you're a bit weird!
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posted
MichaelTampa wrote: "Hydrocortisone can substitute for adrenal function. In that sense, perhaps anyone can get through treatment with poor adrenals as long as hydrocortisone is supplemented at the proper level."
Shouldn't hydrocortisone be avoided, as a steroid? Is it an exception, as a natural steroid?
Posts: 431 | From New England | Registered: Dec 2011
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MichaelTampa
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posted
Your adrenals are supposed to make a certain amount of this each day, and your body should have that running through its system each day, and your immune system is made to function normally with that amount.
So, for those in the situation where adrenals aren't making the amount they should, just adding the difference, is not thought to be a problem, even in the "lyme literate" circles. It is an exception because it's supposed to be there in the amount you're using.
Posts: 1927 | From se usa | Registered: Mar 2010
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Ellen101
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posted
All of my LLNP's have told me my one cup of organic low acid coffee in the morning is fine.
Posts: 1748 | From United States | Registered: Dec 2011
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posted
I quit my 1 cup a day for a month and I felt awful. Dr. N says it constricts blood vessels and helps with POTS. I think that is what was going on with me.
Posts: 845 | From Northeast | Registered: May 2011
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FWIW.
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I can't taste any difference at all either.
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