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» LymeNet Flash » Questions and Discussion » Medical Questions » 23andme genetic testing - worth the 100.00?

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Author Topic: 23andme genetic testing - worth the 100.00?
sparklyholiday
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Has anyone had this done? I saw it mentioned when I was reading about MTHFR and methylation.

Seems interesting, but don't want to blow 100.00 if it doesn't really give me anything useful. :-)

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nefferdun
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I believe it is very helpful because you can download the DNA information and get all the methyl cycle mutations on Promethias (other sites too). This alone costs $500 with Amy Yasko.

You can also get a detox panel and SNPS for risks of various diseases. There is so much information I can't dig through it all.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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GretaM
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I did that.

For health risks if you know family history and health issues of family members, then it won't be worth the money, as my health risks were pretty much family health history-no surprises there.

For ancestor information, if you've done geneology and know family history, it may not be worth the money. We have, so there were no surprises there either.

But for MTHFR, (and it took me three months to interpret my info after I loaded the 23andme results into Genetic Genie-lots of mutations lots of reading), it is worth it.

Now I understand why I feel so toxic and sweat out ammonia. Haha. TMI? [Smile]

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Robin123
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I think so - my doc asked me to do it to look at methylation enzymes.

Funny thing is, I haven't seen the medical results yet but I keep getting notified of new distant relatives!!! Supposedly with similar genetics.

This could be a start of a whole new sense of family! As long as they're not connecting me with an orangutan or something similar...

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TNT
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Very helpful, especially the detox and methylatin snps. I would not get the Amy Yasko test (costs $500.00!!). I would get the 23andme home saliva test before doing Yasko's.

Others have said you can enter your raw data into geneticgenie.com and get the same info as Yasko's results, and so much more.

It helps take the guesswork out of detox roadblocks.

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Dekrator48
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I think it was worth the money.

I learned about some mutations I have and I started some supplements because of that.

I am still reading and learning about all of my results.

I also enjoyed the ancestry info.

It was also good to find out that that I do not have any genetic defects that make me more at risk for any cancers and some other diseases.

At first when I was notified that my results were ready, I was confused because they only make the "raw data" available to you. I kept waiting for results that I could understand but then I realized that....

You have to go to a site like "Genetic Genie" where you will find a link to upload your 23andme raw data. Then Genetic Genie gives you the results in terms that you can understand. They ask for a donation. The small donation was worth it.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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sparklyholiday
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Thanks guys! How long did it take for you to get results? I think the site says 4-6 weeks after they receive your sample, right?
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Dekrator48
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I think it was about 4 weeks until I got my results.

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

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sparklyholiday
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Thanks guys, I think I'm gonna do it. 100.00 isn't that bad for the info it gives! :-)
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glm1111
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Been considering this for sooo long(for the ancestory part) since I don't know who my natural father was. I just know he was blond with blue eyes.

I was born with strawberry blond hair and blue/green eyes. Okay, now for some humor. My granddaughter who looks VERY much like me wanted to know why we were so pale.

Wanted to give her a positive self image so I replied "Oh that's because we are related to royalty honey" She said" Grandma, we're NOT related to royalty" [lol]

My son and DIL already think I'm nuts. Started me thinking, Well, what if I thought?? Just fantasizing...keeps me pre-occupied from this creepy disease. I think I will give it a try.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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sparklyholiday
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Gael, I just ordered mine today!! :-) I'll keep my fingers crossed for you!

LOL - I'm pale too! :-)

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glm1111
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Thanks sparkly lol! Let us know your results.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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glm1111
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Does this DNA testing give more options and health info than Ancestory.com?

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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lymednva
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Does Ancestry give you health info? I thought it was just ancestry stuff.

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Lymednva

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glm1111
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I think you are right about that lymednva. I should have been clearer in my question. Does 23andme give as much info and options into researching your ancestory as ancestry.com does? Just curious.

Thanks,

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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nefferdun
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23&ME gives you DNA data and connects you with other people that have similar DNA. Some people are more closely "related" than others. I wasn't much interested in it myself. I don't think it would help you find the missing link in your family but you never know -

Ancestry.com helps you research old records to trace your family tree. It wasn't much help for me when I tried using it. If you don't already have names, dates and places to start with, you won't find anything.

I bet you are descended from royalty. We all are when you go back far enough! With red hair and blue/green eyes I bet you have an Irish/Scotch ancestry. 23&me will only tell you that you are European. I have a Scotch/Irish ancestry so you are probably one of my distant cousins!

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old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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sugarjo62
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I did as suggested above and entered the results from my 23andme into the genetic genie site...very easy to read results. I was not surprised by most. Apparently my mthfr is all good but I will need to see someone to have the rest of it translated for me....the supplements and how they are taken, etc., is very confusing.

Thanks for this thread, it's been mighty helpful! Just when I thought the 23and me test I did was a waste of time! Yay!

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Tested positive for Lyme/western blot in May 2010...received standard treatment of doxy for 3wks. Whoop dee doo...symptoms came back in full force following tkr in January 2012.

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glm1111
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nefferdun,

THANKS so much for that info cousin! I always suspected I was Scotch/Irish on my fathers side. My mother had black hair and green eyes and a Russian/French heritage. Guess I'll save the money trying to find the missing link.

Thanks again.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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soccermama
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I thought I read on a previous discussion that Amy Yasko's mthfr panel is more comprehensive for that defect. It includes things that are not on the 23andme

Does anyone know if there is a difference?

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seekhelp
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All I can see is this testing got HORRIBLE feedback from most. Tons of complaints.
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sparkle7
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There are some privacy issues I would be concerned with...

FYI - http://venturebeat.com/2013/09/20/how-to-use-23andme-without-giving-up-your-genetic-privacy/

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gigimac
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It really confused me. I tried to get it figured out on heartfixer.com after genetic genie turned the raw data into something I could sort of understand. I am mostly confused. I am hoping to find a dr. one day who can help me with this. I feel like I have this tool that could really help but i can't use it.
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