GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Well I hate to give in and ask but I am in considerable pain.
NSAIDS aren't touching this pain in the bones of my legs and hips at night.
Best I can compare it to is one time I walked around on broken bones in my foot for 6 weeks...the pain in my leg bones feels like those foot bones felt after an day on my feet at work.
Effexor was supposed to help with this pain. It is only helping with the bee sting/electricity pains. Not this deep bone pain.
I can't take codeine.
I can't take this leg pain anymore either.
Please reply or PM with what works good for this kind of pain.
Thanks
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I forgot to add that I take 4000-5000mg of magnesium per day, and 12mg boron daily.
And I know painkillers are toxic but this pain is wearing me down.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I don't have time to research this now but it is my understanding that "4000-5000mg of magnesium per day" might be WAY too much. I thought top suggestions were for 2,000 mg per day. Always in divided doses, of course. Too much magnesium at one time can cause kidney stress and even damage.
You can likely find the upper limits in the links here:
Topic: Looking for long term pain management -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Have you tried Tramadol? It helped w/ my deep bone pain when I had babs.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
posted
I was going to say Tramadol too. But it's not effective for some people. I never got much mileage out of it.
Have you tried curcumin, glucosamine, and MSM?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Neurontin might help, but it might not, because it is better for either nerve pain or muscle pain. But it's certainly worth a try.
IMO (and I'm a health professional, but, of course, NOT your doctor, that is waaay too much magnesium, which can make your bone pain worse. I'm not saying that it is the cause of it, but it could be, if you do it long enough.
Can you not take any of the narcotic pain meds? For really bad pain like that, they often work the best. But not if you can't take them!
It sounds like you need a pain management doc, while you work on the infection treatment. All the natural stuff may help, but may be insufficient for that level of pain.
Have you made sure that there is nothing else going on? Certainly TBD's can cause this level of pain. You just don't want to miss anything else either.
Posts: 3771 | From around | Registered: Mar 2008
| IP: Logged |
posted
Have had that type of pain as my worst symptom, for most of the time that I've been sick.
Started with over the counter NSAIDs, which didn't help. They've had me on all kinds of anti-depressants, which also didn't help.
I tried Tramadol, which made me feel sort of weird and stoned. Despite Vicodin being a "stronger" med than Tramadol, I feel a lot less weird on it, and so far that's been the best for me.
I'd find a doctor, whether it's a pain clinic or your LLMD or your PCP, who's willing to work with you a bit on trying some different things, to see what works best for you.
From what I understand, talking to others in the same position, pain medication seems to affect people very differently, so you've got to do a bit of trial and error.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi all.
I asked my doc about the safety of that much mag, and he said it was OK. To take magnesium to bowel tolerance. IV mag doses are much higher.
I've tried MSM, curcumin and glucosamine.
Tried prescription NSAIDS of all kinds.
Magnesium creme rubbed on my legs.
Homeopathic for broken bones, bone trauma.
Where do I find a pain management doctor? Do I need a referral? Or can I go to a gp?
Thanks
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
To find a pain doctor depends on your insurance.
How do you usually go to specialists? Do you need a referral? Do you start with your GP?
Finding a good pain management doctor can really help manage your daily pain. narcotics are just one way they can help.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I didn't read all it might be that her magnesium is not being absorbed I agree that's a huge dose
I would really stay away from oxycodone or oxycontin it's really easy to get dependent on them
I had less trouble on the fentanyl patch low dose but you can get dependant on it
Nsaids do work for my bad pain and i have found if i take 6000 fish oil a day i can get by with 1200 less ibu
In my e cc perience neurontin helps nerve pain but not this pain but i only take low dose
Good luck
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Greta, I'm having severe bone pain in my hips and legs too, so my heart really goes out to you. What meds are you on currently? What infections are you targeting?
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
| IP: Logged |
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Tramadol takes the edge off for me. Cymbalta helped me a great deal.
I am curious about the neurontin for muscle pain. Thought it was just for nerve pain.
Oh the other thing that really seemed to help me was amantadine. I was given it with biaxin to make it work better, but It also greatly effected my pain. Did some research after and a lot of vets are using it for pain relief.
Posts: 1728 | From USA | Registered: May 2011
| IP: Logged |
posted
Hello, I just have to say I can relate to all of the bone pain, muscle spams and stiffness.
I get to the point were I can not move and my legs become paralyze.
My legs and hips lock up on me. My neck will freeze up my arms and hands are heavy and sore.
The bone pain is so bad I can not walk at times. It cause my feet to hurt, it is so bad that it takes my breath away and I cry.
I have tried so many pain pills, the one that I finally found that works and takes the edge off is methadone.
I still never go under a 4 in pain but it better then be and 8, 9 or 10
I only have to take two a day. unless It's a really bad day then I have to take 3.
Those days are when I have been out to my doctors or had to go food shopping, or had guest over and did more then normal..
I also have baclofen for muscle spams when they get so bad and I can not get them under control,
I take one and it helps but I do not like to use them because of increase fatigue, who needs that LOL
Diclofen works good also ( special for arthritis) but it not good for everyday use, because of the heart..
I hope this helps, if your PCP or LLmd can get you in to a Pain clinic,
whatever you do, do not ask for these meds they will not give them to you.
However you can tell tem you have tried other meds that did not work and you have lyme disease and what has worked for other lyme patience.
Posts: 52 | From Ohio | Registered: Oct 2013
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic