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» LymeNet Flash » Questions and Discussion » Medical Questions » Any idea and self experiences?

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Author Topic: Any idea and self experiences?
jupiter76
LymeNet Contributor
Member # 37697

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Hi,

I´ve almost done any kind of treatment. better but still sick. The treatment that works as one of the bests is ceftriaxon i.v.+metronidazol i.v. i´ve done several months of this. also reaction to moxifloxacin, some to Ketek, clarithromycin, cumanda, mora, pure tetracycline some to malarone, some to minocyclin, biltricide for 2x 2 weeks (done antibiotics oral for 2,5 years and i.v. for several months

no or almost no reaction to doxy, azithromycin, levofloxacin, ciprofloxacin, rifampicin, ivermectin, alinia, enula, mepron

don`t know if Albendazol did anything, no significant herx to it

positive for borrelia by western blot and for epierythrocytic bacteria attached to red blood cells by fry lab as well as for substanial amount of biofilms.

negative for protomyxzoa rheumatica by fry lab.

negatvive for babesia by fry lab blood smear, igenex and and other antibody tests

had extreme food intolerance, now better but still there, severe histamine problems, quite extreme hair loss which increased when I started antibiotics about 2,5 years ago, stopped some time ago but didn`t regrow so far.

borderline low thrombocytes, borderline low leukozytes

my question: which bug causes this?? hemobartonella does not cause hair los, babesia does not as well, lyme does and mycoplasma does but both should not react to biltricide and should react to doxycyclin or azithromycin significantly.

bart should react to levofloxacin and ciprofloxacin but they didn`t do anything. should also react to rifampicin and to doxy.

on the third day of i.v. ceftrixon and metronidazol I start to feel worse e.g. cold and just blahhhh, lethargic but no real weekness.

getting cough from metronidazol.

Is this still the lyme? What is it?? It´s so difficult because all the time I don`t know which one I should shoot at. I a little sceptical because of my overuse of metronidazol. Altogether if I count the months together I`ve taken it (but not i a row of course) it´s more than 6 months.

metronidazol and tinidazol create taste changes in my mouth, I think this is a symptom that it is working.

What do you think could this be? Comments from own experiences welcome.

thanks!

[ 11-12-2013, 07:42 PM: Message edited by: jupiter76 ]

Posts: 185 | From Germany | Registered: May 2012  |  IP: Logged | Report this post to a Moderator
joalo
Frequent Contributor (1K+ posts)
Member # 12752

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Up.

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
VV
LymeNet Contributor
Member # 38828

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Hair loss can be caused by low thyroid. Have you had a thyroid panel done (TSH, FT4, FT3, RT3)?
Posts: 922 | From Philadelphia | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
   

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