You are not alone. A few years ago, this same rash appeared on my upper arms. It has never left despite lots of continued treatment. An internist, allergist, cardiologist and dermatologist have all seen it, now, and they don't make a big to do about it (unfortunately not, cause I want it gone...yesterday!). Terms like livedo and poor circulation have been noted, but, that's about it.
I used to like the way my bare upper arms looked when wearing short sleeves or tanks, but, now I just feel terribly self conscious.
By any chance do you happen to have a strain of Babesia? Personally, I think it is a hypercoagulation issue. Hopefully, taking some enzymes to aid with biofilms/sludgey blood will help.
Remember, you are in similar company.
Try to hang in there. I know it's not always easy.
Told you...
Posts: 315 | From Negative (-) to positive (+) | Registered: Nov 2011
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Randi, is it the chicken wire look they refer to?
Or is it the bartonella type rashes(not stretch marks) that so many describe having?
Bruising, I've been talking to doc about mine. Torso bruising. Just told him this morning that my research points to babesia which hangs out in RBC and is known for it's unusual bruising on patients.
Have you ever tested +++ for babs? I've been tested 4-5 times over the years and it's always negative. Just don't believe the testing.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I would describe them as just different colored blotchy areas irregular in shape not raised and doesn't itch.
I've got Bart. My doc said it was temperature changes. Ummm ok
And I've been asked if I was on blood thinners cause I bleed easily. When they take blood I just keep on bleeding and I end up with a huge black bruise.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
for me it`s bart. it increases when bart is hit and then decreases after months of treatment. for me flagyl and tinidazol made it almost go away. if i restart flagyl after a break it returns but much less as it was ever before treatment.
Posts: 185 | From Germany | Registered: May 2012
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
I still have this, after 9 years of remission. I I so hate it, so spend plenty of time tan so I can hide it. People often think it's sunburn in the summer (and it isn't).
Welcome to A.C.A.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Yes it does only smaller areas alternated with purplish areas.
Don't know why husband can't see it. Plain as the nose on your face.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Uh oh.. I may have the ACA... does it itch?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Mine doesn't. Jus very unsightly however my arms and legs are very dry.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Randi & others, in these skin patches do you have any hard nodules that go with the rash cycle? My hard nodules are pea size.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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randibear
Honored Contributor (10K+ posts)
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posted
No but I have lumpy muscles.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Mine does not itch. And although I am always warm, the back of my arms feels cold to the touch. I also have the dark purple splotch by my right ankle that I saw in those pictures (like a 70 yr old man and I'm in my 40's). And my hands look like I'm 70 too.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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