-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I have, but I wasn't on it that long, six months or so.
And the strange thing is after I stopped, my stomach actually FELT better. My stomach problems gradually decreased.
Anytime since then, if I had bad heartburn, taking any PPI gave me the worst diarehha.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Was one of the worse things I did early into my sickness before I knew what was wrong with me. I believe it set me up for major GI and digestion deficiencies later.
If I had only knew that reflux can be a symptom of bartonella-but I didn't have a clue, nor would have cared then since I was relatively healthy.
You don't just start getting bad reflux out of blue for nothing. Maybe TBD info will be more mainstream eventually. There is always cause and effect, whether it's lyme or something else.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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Razzle
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posted
Yes. I was on Protonix, and before that, Aciphex. I successfully got off once I realized what the cause of my reflux was (sulfites, gastroparesis, and allergies).
Treating the cause of your reflux should enable you to wean off.
Might consider transitioning to one of the "weaker" PPI's first before beginning a wean off completely...that way, you have more control over the dose and can tip-toe down more slowly.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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ukcarry
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Member # 18147
posted
The PPIs are not supposed to help your bone density either. I suppose that how you wean off them must depend on why precisely you were put on them, as Razzle says. Have yoy tried zinc carnosine to protect from reflux?
Posts: 1647 | From UK | Registered: Nov 2008
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posted
Wish I knew the cause (as it stands now.) Initially, I was put on them due to going on antibiotics for the Lyme. (had bad stomach pain,etc)
I know that yeast causes acid reflux and that may be what really happened .. not the abx causing it, but the yeast.
I am aggressively treating the yeast, but it is a battle. I've been taking zinc carnosine for about 2 wks now.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My DD was on a PPi for quite some time before we switched her to something natural. She now takes slippery elm before every meal(in capsule form) and Zypan by Standard Process at every meal. Of course, she also takes her probiotics . She has also been able to decrease her Miralax from twice per day to once per day.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Marz
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Member # 3446
posted
Lymetoo, I mentioned yesterday to my MD that I was taking apple cider vinegar for potassium and extreme thirst.
She mentioned to me that her father takes it for reflux and it works.
I remembered reading that somewhere. Ever heard of it?
Posts: 1297 | From USA | Registered: Dec 2002
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posted
About 15% of the population has hiatial hernia that causes reflux and most often people are born with the condition. Most often it doesnt bother people until middle age or later.
For these people the only recourse is antacids unless they get a nissen procedure which tightens the sphincter to keep the acid in the stomach.
My sister in law had this problem and her scoliosis even made it worse. She had the nissen procedure done and is off of all antacids. She's glad that she had it done.
For me, homeopathy cured my problem of reflux and bloating.
Posts: 803 | From USA | Registered: Oct 2013
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posted
Yeah, I know. I've considered getting checked for it. Sure don't want any procedures right now .. but if it would fix it, it would be worth it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I could if i could stop ibuprofen but i cant
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
quote:Originally posted by Carmen: About 15% of the population has hiatial hernia that causes reflux and most often people are born with the condition. Most often it doesnt bother people until middle age or later.
For these people the only recourse is antacids unless they get a nissen procedure which tightens the sphincter to keep the acid in the stomach.
It depends on the type of hiatal hernia. The fixed type may require surgery, but the sliding type (which is what I had) can be managed with acupuncture (which I did).
And after I had my gallbladder surgery, I no longer had any problems with my hiatal hernia.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Razzle
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Member # 30398
posted
Lymetoo,
I also should mention that herbs that stimulate bile flow (e.g., "liver herbs" such as ginger, milk thistle, dandelion, etc.) may actually aggravate reflux for some people.
And hormones can also trigger or worsen reflux. I know I've always been more prone to painful reflux during my monthly cycle... And I found taking a little extra calcium & magnesium to be more helpful than anything else to offset the influence of the hormones...
I hope this helps...take care,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I have a hiatal hernia and I know its getting bigger but no one ever said what kind it was
acupuncture has never worked for me because it hurt me so much but it's been a long time since I tried that
I would love to get off the stupid medicine I know what it's doing to me
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I have not read anything about this. But the surgeon who put my port in said he has helped many avoid surgery by using 4 gms of Flax per day. He said to use Barlean's Flax oil. Take two at breakfast and two after lunch. In addtion, taking Gaviscon for reflux. He thinks it is excess bile that is causing the problem not extra acid. Gaviscon bubbles up and prevents the extra bile from reaching the esophagus.
He suggested trying this for a month. Within a month he has had many patients come back and report that they were better and avoided surgery.
My son was on Prilosec for years. A pediatric gastroenterologist suggested using it. After being on the Flax seed oil, he was able to stop the Prilosec. He still uses Zantac. I am going to start weaning him from this at some point.
Posts: 1686 | From Maine | Registered: Jun 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
How about low dose diflucan for the yeast? Or does it become resistant?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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WPinVA
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Member # 33581
posted
I think you said you are GF but have you ever fully explored whether you have any other hidden food allergies or sensitivities?
My daughter was on Prevacid, then we were able to downgrade her to Zantac and finally get her off completely. For her, the key was finding and eliminating all of her food allergens. And I've instituted some of the recommendations from Eat Right 4 Your Blood Type with her too.
I'm currently on a PPI and I would like to get off of it too so I'm trying to figure out my own food allergens. Am going to get the Elisa/Act test later this week.
You're probably far too smart to be drinking coffee but that is also a trigger for my reflux. I know it's not good for reflux or yeast or lots of other things but unfortunately I got hooked on it a few months back. It's terrible for the reflux so I'm trying to get off it again. It really does help with my headaches though which is how I got sucked in.
Posts: 1737 | From Virginia | Registered: Aug 2011
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bcb1200
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Member # 25745
posted
Yes...I was on Nexium since 2006 and got off of it (finally) this past summer.
Here is what I did...
LLMD found I had H. Pylori (tested many times, always negative. LLMD found it anyway.) Did a "PrevPack" and switched from Nexium to PRevacid used in the PRevpack.
Then did the "Ultimate Reset" 3-week detox program from Beachbody. A good detox system recommended from the LLMD. I had zero heartburn while I was on this.
After finishing the "ultimate reset" I kno longer needed my NExium and I have been off of it ever since. I occasionally take a Zantac every so onften, perhaps once every 14 days.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
I was on PPI years ago for 6-8 months. Then did paragone for about 30 days and after this about 7 days of high dose flagyl.
I was able to get off the PPI. I continued to take a probiotic daily.
Posts: 697 | From CA | Registered: Dec 2011
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I tried to get off Omeprazole 20mg about 6 months ago. I was on 2 daily. Told my gastro friend that I wanted off and he said, lets wean you down to one 20mg a day.
Then wean down from there, every other day etc until you are off. I was off maybe 3 weeks and started having heart burn everyday. Well shoot.
I do have gastritis area found during upper GI in '07. Only had issues rarely and took OTC stuff and it worked.
In summer/fall '12 I had constant pain in upper quad of left under the breast. Felt like a fist was inside me constantly in that area. After giving it the ole lets see if it's a new symptom and clears? Lyme & co related and might go away, otherwise I could be in doctors office monthly.
After 6 mths I finally went to gastro and he put me on meds but I also found out 10 days later I had 100% blockage of right coronary artery.
Meds started for that immediately. The gastro said my pain was heart. My cardio said my pain was my gastro issues.
But with both meds the pain did finally let up over the next few months. So I'm still not sure what was screaming, heart or stomach for help.
The doctors both were puzzled by my pain and the area. So it could have been bart showing his ugly self?
I'm really interested in using herbals or something natural to get off Omeprazole too.
Now, I've heard and read that one teaspoon of baking soda in water a day will keep the heartburn, indigestion away.
Maybe that's an option to look at for some.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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lymeinhell
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Member # 4622
posted
Ditto the hpylori. Levaquin magically erased the heartburn I'd had for 10 years.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Yes. I actually did better supplementing HCl when I ate. Some people actually have LOW stomach acid, but docs put everyone with reflux on acid reducers without testing.
I also should mention that herbs that stimulate bile flow (e.g., "liver herbs" such as ginger, milk thistle, dandelion, etc.) may actually aggravate reflux for some people.
- I only recently figured out that milk thistle was causing me trouble. Took it for YEARS. I tried dandelion once for detox and nearly died from the acid reflux. Have also had trouble with ginger, so I will totally forget that one.
Not willing to try any antiobiotics at this point in time unless someone finds H.pylori. My stupid GI did a scope on me a few years ago because of my pain and when I asked him later about h.pylori he said he didn't see any evidence of it so he didn't do a biopsy. I wanted to strangle him.
and no way will I take Levaquin. I already have damage from quinolones and flagyl too.
As for finding allergies .. please clue me in on what kind of testing is actually VALID. I've heard that most testing for food allergies doesn't always work.
bcb .. your info on Beachbody is interesting. I guess I need to Google it.
--oh.. and I've been on anti-fungals for a long time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
bcb .. I looked up the Ultimate Cleanse. I have great cholesterol and don't need to lose weight, so I guess that one is not right for me. I wouldn't want to lower either one.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
No test I know of (RAST, ELISA, ALLCAT, muscle testing, EDS, NAET, etc.) is 100% accurate. Although, the tests can help guide your elimination/challenge protocol...
Keep a detailed food-symptom diary and do elimination diets...that's really the best way to figure it out, unfortunately.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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map1131
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Member # 2022
posted
Razzle are you suggesting the "Queen" of good diet and the one that makes and eats fermented foods to do diary and eliminate the bad stuff??
Now that's funny. Tutu
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Razzle
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posted
No, I'm suggesting anyone can be allergic to any food, and no test will correctly identify the allergy 100% of the time, therefore the only way to find the allergy is through elimination/rechallenge.
And one can be allergic to "healthy" foods, too. I am...I'm horribly allergic to hazel nuts...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Pam .. I get the humor of that! I have kept a diary but there are SO many variables. I would have to do the one food at a time thing or I'd never know which was the offending food.
Right now, there's no way I can do that (if ever). I can't eat one food at a time.
Unless I just need to research elimination diets.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Elimination diets are simple and can easily be customized to the specific food or foods you are testing.
For example, if you suspect celery is a cause of symptoms, avoid all celery and celery derivatives (e.g., celery seed as a seasoning) for at least 2-4 weeks (some foods may need to be avoided longer, such as at least 3-6 months for gluten grains), then start eating celery again and see if any symptoms change as a result of either avoiding celery, or adding it back to your diet.
Alternatively, you can eliminate a whole category of food - such as nightshades (tomatoes, potatoes, eggplant, peppers...) - for a few weeks to see if any of the member of the category are a problem...
Or another method some people (myself included) have used is to eat nothing but the test food for a whole meal (next meal, you can resume your normal diet). Then watch for any symptom changes over the next 24-48 hours.
So for example, eat nothing but watermelon for a whole meal...(obviously it would be best to do this during watermelon season...). I did this exact test and discovered I am allergic to watermelon this way!
I hope this helps....
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Well, I would have to do the first version.
My food list is so short, that eliminating ANYTHING for several weeks would be hard. For example, chicken or broccoli, or even eggs.
The thing is that if you make any other changes when eliminating one food, you don't know if the change is from the food being added back or something else you did. Sigh.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Man oh man, Razzle Tutu already gives us the sugar, gluten, fermented veggies, and yeast lectures.
If she becomes a pro on elimination diet, she will chew us out about our food even more. She's like a mother hen about it too.
sometimes even this
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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