I have been on a good Lyme treatment for 3 months now. I understand that everything gets worse before it gets better, but I was wondering how long until I start to see improvement? My biggest symptom is fatigue, it prevents me from going to the gym, work, and sometimes leaving the house. How long until I start to see better days?
Posts: 15 | From Syracuse, NY | Registered: Nov 2013
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gmb
Unregistered
posted
Welcome Scholzie,
There is no consistent answer. It varies from person to person depending on how long you have been sick with Lyme and what co-infections you are carrying.
Have you started to treat for Babs yet? That is one of the biggest contributors to fatigue that I have. It took a couple of years before I saw improvements, then numerous back-slides with changes to protocols after hitting plateaus in treatment.
Do you keep a log book to track your symptoms? It helps. I use a bound composition book. Rotate pages to landscape orientation, and across the top of the page write the day of month 1 thru 30/31.
On the left most column list all of your symptoms from most severe to occasional, and leave room to add new ones as they crop up during treatment.
Each day rate your symptoms on a scale of 1 to 5, with 5 the most severe. I also make notes in the log on Rx changes and full moon cycles. Its important to keep your symptom list in a consistent order from month to month. Even if a symptom has gone away continue to list "0".
If you are computer savy.... do an Excel spreadsheet. But the notebook is easier to lug around to LLMD appointments
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
More than likely you are treating Bb and another infection is emerging such as babesia, which does not respond to abx. You need anti-malarials to treat it.
Another infections that causes profound fatigue is protomyxzoa rheumatica. Both babs and PR also cause mental confusion, memory loss, poor concentration, depression, anxiety, headaches behind the eyes and overall body pain.
Pr causes insomnia and nasal congestion. Babesia makes you oversleep.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My DD has been in treatment for 3&1/2 years. Fatigue has always been her top symptom and still is.
We have finally found a doctor who is treating her for babesia based on clinical symptoms(her get came back negative.)
She is seeing an improvement after being on Mepton for one month.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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