posted
All - bit of history here. Saw the LLMD a couple of weeks ago and we decided to start treatment clinically before I got the blood work back.
My symptoms were awful, five ER visits in the past month complete with ambulance trip and all.
I got the results, and I tested positive for Mycoplasma Pnemonai (spelling?) and all other coinfections were negative.
I also only had one positive Lyme band (Band #23). My CD 57 has a level of 22 - Yikes!
I am on Mepron for Babesia (which I did not test positive for but my symptoms would say otherwise), and Minocycline in addition to detox supplements.
I don't go back to see her until June and my symptoms have been crazy these past few weeks.
My latest symptom is a blood shot left eyeball and fluid in the left ear. Ouchies.
Does anyone have any experience with the Mycoplasma? I am hoping we are on the right track here!
Also - based on what I am reading regarding the CD57 I understand a really low level is an indication of somebody with chronic lyme or someone who has had it for awhile.
She thinks I was possibly infected when I was a child.
I am having a hard time understanding why I would only test positive for one band if that was the case.
Thank you all for your wisdom it is appreciated!
-------------------- Diagnosed with Lyme 4/7/14
KB Posts: 87 | From Townsend, MA | Registered: May 2014
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surprise
Frequent Contributor (1K+ posts)
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posted
Hi- I was hoping someone who explains these things better than I would answer your post,
here is what I've got: at the top of this page are many good links to get started reading and absorbing information.
Oftentimes, a person who has been carrying Lyme and co-infections, a chronic (over a year untreated) infected person,
their immune system is shot, and it can't produce fighting antibodies against the infections. Very often, once antibiotics/ treatment is started, if you test again, more bands would show.
23 is very specific, Lyme only bacteria. The combo antibiotics used to treat Lyme/ Borrelia are often the same ones that treat mycoplasma; Doxycycline, Biaxin, etc.
With Mycoplasma, you want to see the titers brought down.
Focus on detox, liver support, remember probiotics, welcome and hang in there---
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
My doctor has said that a very large percentage of people test positive for mycoplasma pneumonia - its common even if you don't have Lyme.
You need to interpret your results based on both IGM and IGG titers.
In my family's case we all had elevated titers, with my kids both having IGG titers over 5, indicating chronic infection, confirmed by two doctors.
I have been on doxycycline for a while, and my titers have gone down dramatically over time, to a point where this infection is definitely no longer a problem for my body.
My younger child's titers have also dropped consistently on long term doxycycline.
It can take a long time to eradicate mycoplasma but it can and does go away with treatment.
Posts: 187 | From Connecticut | Registered: Jun 2013
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posted
Okay this is interesting maybe I am interpreting the results wrong. The mycoplasma lgg was elevated at 128 but the lgm was negative.
I don't understand how it would show a recent infection if I've suffered for so long.
Ugh this is totally overwhelming I really hope I'm on the right track. I've been so sick but I'm scared we are treating something that just doesn't exist
I've had three cat scans since the beginning of the year and more blood drawn than you can imagine. Everything has been clean until I saw the llmd.
And even now I'm questioning the results!
-------------------- Diagnosed with Lyme 4/7/14
KB Posts: 87 | From Townsend, MA | Registered: May 2014
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posted
"I am having a hard time understanding why I would only test positive for one band if that was the case"
Easy explanation. Blood tests look for antibodies. They rely on the ability of the immune system to produce antibodies.
LD and friends shut down the immune system it tricks the body into thinking their not even there. So the body doesn't produce any antibodies to fight infection. Therefore the tests could be negative even though you have a raging infection.
You have a LD specific positive band #23, so your immune system is doing something but the indication of the low cd-57 says chronic LD I believe, but its only an opinion.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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I have positive tests re Bb, and a darkfield mycroscopy of my blood showed mycoplasma & some yeast as well as Bb spirochete.
My CD57 level a few months after bad symptoms started was 33. I read somewhere that if your CD57 level is very low, that it is often an indicator of mycoplasma and Bb together. May explain your 25 level.
I understand that a lot if not most people have some yeast or mycoplasma in their system, not specifically related to Bb, but because Bb depresses the immune system somewhat, it allows a lot of normally controlled things like yeast and mycoplasma to flourish.
If you have had Bb a long time like I did, there is an Igenex herbal and antibiotic "challenge" that you can take (or choose between) that kills some Bb and it is picked up on the Igenex IgG Western Blot by the complimentary PCR testing done with the antigen testing.
I followed some of the herbal and then took doxy about 5 days before, and I tested positive on the Igenex IgG Western Blot. I recommend it, so that you will know for sure what you are dealing with.
Posts: 254 | From North Carolina | Registered: Nov 2013
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