Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Why do I always think it will be different? Why do I forget how miserable it is? Why do I always feel good before I Herx? (and therefore think I'm not going to Herx this time?)
Why, no matter how much I study, and think I know, I am surprised by this! Why, after all this time am I still so confused about Lyme and co?
First 5 days of zyth and doxy... All my muscle knots melted! The tight ropes that felt like bruises gone! I felt great. Yesterday the truck ran over me. Weak, feverish feeling, I different sort of ache... And totally foggy.
I guess this means I really do still have this. Might need to go back to llmd. Wish I felt more confident about her.
Posts: 1728 | From USA | Registered: May 2011
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GretaM
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Member # 40917
posted
Aww Kudzu
Do you have good detox regimes in place?
I'm so sorry you are in a herx currently. I hope it passes quickly. Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
I've seen this term Herx thrown around a lot, but my understanding is that it is a specific fever like reaction or something from a die-off of certain bacteria types.
It shouldn't mean just a worsening of any type of symptoms. It should be "fever, chills, rigor, hypotension, headache, tachycardia, hyperventilation, vasodilation with flushing, myalgia (muscle pain), exacerbation of skin lesions and anxiety."
Posts: 136 | From arlington, VA | Registered: Jun 2010
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Kudzuslipper
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Member # 31915
posted
Thanks Greta. I did an Epsom bath, drinking lemon water.
I agree applewine. In fact I am one is who is continually questioning if I could still have Lyme? But after 5 days of abx, I have a low fever and chills. And although my muscle pain is actually less distressing than the knots and ropes that let go... I have a very different (for me) muscle pain. It's more like that fluish, don't touch me feeling. I suppose I could just have a spring flu.... Waiting to feel better no matter which.
Posts: 1728 | From USA | Registered: May 2011
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Ellen101
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Member # 35432
posted
I don't know if this necessarily means you are herxing. The antibiotics may be causing a reaction and causing inflammation.
Posts: 1748 | From United States | Registered: Dec 2011
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It shouldn't mean just a worsening of any type of symptoms. It should be "fever, chills, rigor, hypotension, headache, tachycardia, hyperventilation, vasodilation with flushing, myalgia (muscle pain), exacerbation of skin lesions and anxiety."
- According to whom?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Can you take a binder (charcoal)?
You are in the famous 'day 4 (5) herx hit' It sux. I'm so sorry :-(
But, I think it will get better in the next few days--- Hang in there Kudz, Good thoughts------
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
So I should hang in? Yesterday I was convincing myself to give up on abx again. I feel a little better today.
Supposed to add flagyl in a few days, right before my flare...Think this Indicates I should wait another cycle before I start flagyl? Maybe I'll just try GSE this month?
Posts: 1728 | From USA | Registered: May 2011
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Kudzuslipper
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Member # 31915
posted
My pcp gets it... I went to see her again cause I was concerned about the dizzyness... She asked me how I felt otherwise over the week... I explained how on day 3 my muscles released for the first time in months... And she said "isn't that the best feeling" I proceeded to tell her about the fever that followed a few days later. She checked my ears... I do have an ear infection. She's gonna switch me to ceftin for 10 days to take care of that. She'd like me to try zyth again after that since I had such a dramatic release of pain... But if I get dizzy again we'll know its one I can't tolerate anymore. She really feels that this indicates a Lyme flare or new infection or both...
She also doesn't want me to do flagyl just yet thinks the Herx would be too severe.
So that's it.
Posts: 1728 | From USA | Registered: May 2011
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surprise
Frequent Contributor (1K+ posts)
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posted
Sounds good! Hang in there---hope the ceftin clears up your ears soon--
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
Good .. and don't forget that Zithromax can damage your ears.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
That feeling good before the herx... I call it the calm before the storm.
I think the abxs do their thing (kill bacteria and "scare" some away) and there is a brief period of peace or relief. It's only once the immune system responds to the die off (inflammation, detox reactions, etc) that we are hit with what we call a herxheimer reaction.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
ok-- a 4.5 day herx. not too bad. I think part of it is knowing what to expect. I was afraid that I would be down and out for a few months like the first time I treated.
ceftin, seems to have helped the dizziness a bit and the overall feeling of yuck. but oddly, my muscles are already beginning to tighten again.
what does zyth/doxy hit that ceftin doesn't? is there a clue in that? I know tests don't matter but I never had any positives for either babs or bart.
Posts: 1728 | From USA | Registered: May 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I 'know' you, so I can say this next bit to you, right? (lol)
Does your Dr. find it odd that someone your age is getting ear infections? Isn't this your second one in last 12 months?
Are you congested a lot? If so, why?
My youngest got dx'd w/ ear infection a few days ago, after having major nose mucous preceding- Ped. said the tube that runs from nose to ear gets too clogged...hence ear infection.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Hi Surprise. what do you mean at 'my age?' ha, just kidding. of course you can say what ever... always looking for ideas and answers.
I am always congested. wicked allergies. I did go to an ENT last ear infection. he was not alarmed by anything he saw. of course I'm always worried about too resistance too.
thanks for the azyth link. evil Bart!
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