posted
My LLMD says my chronic mycoplasma pneumonia needs treatment.
My PCP says it is chronic, it shows I had the pneumonia and my body fought it off. That the high number is a good thing, it shows my immune system is working. And I don't need to treat it, that the number is a large number of antibodies.
Which is it? Do any of you know?
-------------------- j_liz Posts: 471 | From NJ | Registered: May 2009
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
For me, Lyme treatment covered mycoplasma. I was told the high titers means an active infection (the same with Epstein-Barr).
Posts: 2839 | From California | Registered: Jul 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- j liz:
Your LLMD knows far more about this than your PCP.
Healing Lyme Disease Coinfections: Complementary and Holistic Treatments for Bartonella and Mycoplasma - by Stephen Harrod Buhner - 2013
Prof. Garth Nicholson's research in Mycoplasma is to be commended. He does not treat. Still, he is THE top expert researcher in this field (although that does not mean others don't have some good insight, too). Here is his main site:
He also spoke a the 2011 ILADS Conference in Toronto (maybe others since as well). You can view the first ten minutes of that to get an idea of who he is - and purchase the DVD here:
New Research on Lipid Replacement Therapy to improve mitochondrial and membrane function in complex infections. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Judie
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Topic: RIFE Machine - Reference & Discussion LINKS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Well, do you have symptoms? If you do, and your LLMD says to treat, then I would say to go for it.
I think I have chronic myco too. I feel better on Biaxin but every time I go off of it, it comes right back. So that tells me both that the Biaxin is doing something, and that I still am working on this.
This thread has been very helpful to me too!
Posts: 1737 | From Virginia | Registered: Aug 2011
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
My doc also says that everyone has microplasma. I don't think it's something you "get rid" of, it's just something that can be kept at bay like a virus when the immune system is working.
Posts: 2839 | From California | Registered: Jul 2012
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I would get your Myco P titers pulled again from the same lab (6 weeks or so/ more) apart from your recent Myco titers,
and see if the numbers are going down (and they should if the Myco is not really an issue).
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
You can dramatically reduce mycoplasma pneumonia using Rife frequency treatments.
I have been treating this for some time now. It is one of the major players in my Crohns disease. In my situation, it is quite destructive if left to its own devices. I am fairly sure it's presence resulted in fistulas and other intestinal tract destruction.
Its effects vary a great deal depending where it is concentrated and your immune systems ability to keep it in check.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
I don't know if I have symptoms. It seems the symptoms of it can be from the Lyme (though I muscle tested with Byron White formulas that my Lyme doesn't need treatment presently).
I don't know if I have symptoms or damage from Lyme and any coinfection.
I have poor sleep, fatigue, inappropriate sinus tachycardia and neurocardiogenic syncope (both well controlled with meds). I have ulcerative colitis or Crohn's, they cannot tell which at this time. Interstitial cystitis, muscle spasms, cognitive/memory problems, speech, etc.
But I was told when I was diagnosed by my LLMD that the damage was done, I could not be cured, somethings will get better.
The lab paper also, suggested repeat testing.
I was kind of hoping I didn't have to treat, because my LLMD is using Byron White formulas and there seems to be a hormonal thing with them.
I was using the detox and A-myco.
When I am not so tired I will go over all the info given. Thank you for your time and help.
BTW, I have come a looong way with treatment of Lyme using Bicillin LA for 3 yrs. I even exercise 3 days a week!
-------------------- j_liz Posts: 471 | From NJ | Registered: May 2009
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Follow you LLMD's advice and treat the mycoplasma. Are you sure it is mycoplasma pneumoniae?
-------------------- Mathias Posts: 1242 | From New Jersey | Registered: Feb 2004
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posted
I am under the impression that once exposed, we all have low levels of mycoplasma, so if your antibodies are high, it is likely due to some sort of active infection.
I am not treating my mycoplasma, I am treating lyme and babesia, and my titer did go down for mycoplasma. So, I am waiting to see if my immune system does the work for me.
-------------------- Sick since 2000 Bulls eye 2005 Dx Babesia, Lyme 2014 Posts: 247 | From New Hampshire | Registered: Aug 2014
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