posted
My letter of 11/26/14 published in the Republican-American newspaper:
To the Editor:
As I read recent articles concerning Adam Lanza and the Newtown shooting, one thing jumps out at me: Why didn't the Chief Medical Examiner, Wayne Carver, test Lanza for Lyme Disease?
Carver made a statement last year that said he did not test Lanza for Lyme, but noted there was no obvious Lyme damage to his brain.
Now reports are saying that there was brain damage, but that it was due to anorexia. Something is not right here.
If ever there was a time to leave absolutely no stone unturned, it appears Carver has made a grievous error of omission.
Many Lyme experts have been urging Carver to look for Lyme, as many of Lanza's symptoms - both psychiatric and physical - are known to exist in chronic Lyme Disease.
Symptoms such as extreme anxiety, depression, social phobia, anorexia, insomnia, rage, hyperacusis, photophobia, neuropathy, chronic constipation, OCD, and seizures can all be symptoms of Lyme. And these were ALL symptoms that Lanza reportedly had.
Lyme Disease is raging in Newtown, and everyone in that town knows someone suffering from this affliction.
I know about Lyme Disease, because I was diagnosed with it myself, after decades of misdiagnosis by many doctors. Furthermore, I know others who developed serious psychiatric disorders due to untreated or undertreated Lyme.
I have been saying for some time now that when the full extent and gravity of the Lyme Disease epidemic is publicly revealed, be prepared for a medical scandal the likes of which this country has never seen.
Sincerely,
Paul xxxxxx xxxx, CT
...............................................
Breaking up the post for easier reading for many here -
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Good for you. Excellent letter. I do think maybe bartonella might have been involved in his case as well, if tickborne disease was a cause of this tragedy.
Posts: 2888 | From USA | Registered: Mar 2004
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Very well written. His mother had 'MS'.
This topic has been spoken of in the PANDAS/PANS community, PANS - Pediatric Autoimmune Neuropsychiatric - Brain on Fire from lyme/ bacterial infections.
60 minutes TV show segment tonight on insurance companies denying coverage for mental illness, this case mentioned briefly.
quote:Originally posted by poppy: Good for you. Excellent letter. I do think maybe bartonella might have been involved in his case as well, if tickborne disease was a cause of this tragedy.
I agree coinfections were very likely. I myself am treating Bartonella for the first time and the herxes are telling me this was the "missed" coinfection in my case. MY LLMD told me Bartonella does not infect the brain, but I have read that it does.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
When I first heard about this shooting incident and where it took place, I immediately thought this guy most likely has Bartonella, and possibly Lyme or other co-infections, but definitely Bartonella. If you ask me, Bartonella is the real main infection and the hardest to get rid of, if ever...
Bartonella gets everywhere in the body, including the brain, and causes all sorts of neuro symptoms that just won't quit.
Posts: 19 | From VA now, used to live in NY (USA). Unable to work due to symptoms. | Registered: Aug 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Although lyme / bartonella / other tick borne infections could be very likely, there are other infections that can also damage or affect the brain.
Excellent detail here about how a stealth infection can damage certain parts of the brain and then . . . .
A Viral Infection of the Mind . . . Encephalitis Lethargia
Oct. 2011 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I agree with Keebler. There are other infections, also. Let's not jump to conclusions when we don't have all the medical facts.
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
CT Senator Blumenthal's response to my letter:
_________________________________________
"Dear XXXXXX,
Thank you for your letter concerning Lyme disease and the Newtown tragedy. I appreciate hearing from you and understand how important this issue is to you.
I am very concerned by the rate of Lyme in our country, and especially in Connecticut. For this reason, I have introduced legislation to help develop better tools for diagnosing and reporting Lyme, as well as increase awareness and education in the medical community. The Lyme and Tick-Born Disease Prevention, Education, and Research Act establishes a tick-borne disease advisory committee to streamline coordination agencies that address tick-borne illnesses, and would coordinate increased research and development around Lyme.
With regard to the Connecticut Chief Medical Examiner, I was approached by advocates and a health care professional expressing their interest in having Adam Lanza tested for Lyme disease. Those concerns were brought to the attention of the Chief Medical Examiner and the UConn Health Center. Under state law, the Chief Medical Examiner has broad statutory discretion to examine a decedent (see, Conn. Gen. Stat. section 19a-401 et seq). Therefore, the Chief Medical Examiner’s decision whether or not to test for Lyme disease is within his state mandated authority.
I share your concern with the need for more research into Lyme disease and will continue to seek additional resources for the study and treatment of this often-debilitating disease.
Thank you again for your message. Please feel free to contact me in the future with any additional questions or concerns.
Sincerely,
Richard Blumenthal United States Senate"
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
Dr. Alan MacDonald, the brilliant pathologist prominently featured in Under Our Skin, weighs in on my letter concerning the Adam Lanza case on lymeneteurope:
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
My Daughter was a Teacher at Sandy Hook prior to this and I have had severe Lyme since 1991 although I'm somewhat improved today with many therapies. So I have a personal connection ; I agree with you totally and hope follow up will be of great interest. I have been very active with support groups and other areas connected and now after 25+ years I'm convinced there is much more to this disease then we are told , It's a major cover up .
Posts: 789 | From CT, | Registered: Jun 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
No doubt it's a major cover up and has been so for well over fifteen years.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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quote:Originally posted by Al: My Daughter was a Teacher at Sandy Hook prior to this and I have had severe Lyme since 1991 although I'm somewhat improved today with many therapies. So I have a personal connection ; I agree with you totally and hope follow up will be of great interest. I have been very active with support groups and other areas connected and now after 25+ years I'm convinced there is much more to this disease then we are told , It's a major cover up .
At the time of the shooting, a friend of mine was teaching in Newtown but at another school. He has been afflicted for years with all sorts of symptoms, including cardiac, psych., and arthritic. I would yell at him that he had undiagnosed Lyme and he had total denial. Now he is finally getting it, and is pushing his non-ILADS doc to treat him.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
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