desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
For those with chronic TBI's, when you are having what feels like a flare how long do you wait before getting back on abx.'s?
I am treating yeast pretty aggressively right now but starting to feel that old familiar feeling. Also on BW's.
LLMD says it is pretty much up to me when I want to start back on abx.'s. My hesitation is my ongoing yeast issue and not knowing what sx are coming from yeast and which ones are coming from TBI.'s. If I go back on abx.'s it will only make my yeast worse.
I am still functioning pretty well but starting to go downhill a bit. So how long do you wait to go back on?
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Has your doc done any labs to get an idea of your fungal/yeast/candida load?
It may be helpful to get other markers for infection done as well. Things like CD57 and other immune markers.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Great idea - thanks.
I was suppose to get the Real Time Mold test done but have not done it due to $$$$$$. I had hidden black mold in my house for 10 years so I know there is an issue.
Will get my CD57 done since that has not been checked in quite a long time.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
posted
Does your doctor do any applied kinesiology/muscle testing? It can be very effective in determining what to treat for, and what to treat with. It could help you find out whether yeast alone is the issue, or whether you also have infections that need addressing.
Also, antibiotics are one way to treat. There are also many herbal treatments, maybe that's what you are using with BW (is that Byron White?).
Treating yeast can be so very challenging! The die-off can be miserable. Are you on a candida diet? Taking probiotics? That could also be helpful.
Hang in there. Best wishes.
Posts: 873 | From WA | Registered: Dec 2005
| IP: Logged |
beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
When I stopped abx, and started treating yeast, I called my LLMD in a panic- I was sure I was relapsing I hung on- I kept getting worse. Then around 6 weeks later...I started to feel better and better. Today is 1 yr off abx- but those first 6 months were tought!!
Posts: 1276 | From maryland | Registered: Jan 2009
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I agree with all posts above. Treating yeast is awful, hard, long... Binders are essential.
Energy testing is a BIG help for this phase of healing, as you are almost done with lyme (or done with it, but want to get back to 100% and do not know how, what are the last problems, etc)
For me, energy testing was always a GREAT guide on treatment.
Every one, literally, will have to deal with yeast during lyme treatment or after.
Posts: 6199 | From Brussels | Registered: Oct 2007
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Thanks everyone.
Yes, I take/have taken Byron Whites (A-L, A-Babs, A-FNG, A-P, Detox 2 and NT Detox)
I am still treating yeast and detoxing. For binders I take BW and Chlorella. Took a Diflucan last night and I am all twitchy today and feel like I have the flu so that says something!
I have not had any energy testing but know of a practitioner that has a good rep.
I still have elevated Tularemia titers so may need to re-address that issue soon. Treated for this nasty co-infection last year but not with the gold standard treatment.
It is like juggling so many different possibilities at once and that alone makes me tired! Thanks again for all the feedback. DW
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
It sounds like yeast is an issue (if you react to Difl). Just go on treating it.
I know exactly what you mean by being tired of treatment.
I took 5 years of rest, but realized it was not the best thing as I kept loosing my teeth (to silent deaths!)...
Anyway, it was good for my spirit!!
If I were you, I would just concentrate on one thing at a time and treat it (like yeast). I'm sure you'll feel already much better when the fungi gets under control.
Posts: 6199 | From Brussels | Registered: Oct 2007
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
quote:Originally posted by Brussels: It sounds like yeast is an issue (if you react to Difl). Just go on treating it.
I know exactly what you mean by being tired of treatment.
I took 5 years of rest, but realized it was not the best thing as I kept loosing my teeth (to silent deaths!)...
Anyway, it was good for my spirit!!
If I were you, I would just concentrate on one thing at a time and treat it (like yeast). I'm sure you'll feel already much better when the fungi gets under control.
Thanks for your feedback...I have been in this stuff since 2004 (though my first bite was in the 80's).
I am going to keep plugging away at yeast for now. Pulsing the Dif. and staying steady on herbals and pro.'s.
I have been off of abx.'s for 5,4, and 3 months. Dropping one at a time and really want to get a good base line of where my body is at.
What happened to your teeth????? That is one of my weak areas as well.
Anyway thanks again for your feedback!
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I've been taking Pro-Biotics since 2005. You can start out with 1 billion - to - 10-90 billion. For starters start low and every day. AND make sure that if you are on Abx make sure to take the Pros are 2 hours before or after Abx.
I'm not a Dr I'm Pro for Probiotics this will really help with the unbalanced yeast beast
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
| IP: Logged |
desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
quote:Originally posted by Annie C: I've been taking Pro-Biotics since 2005. You can start out with 1 billion - to - 10-90 billion. For starters start low and every day. AND make sure that if you are on Abx make sure to take the Pros are 2 hours before or after Abx.
I'm not a Dr I'm Pro for Probiotics this will really help with the unbalanced yeast beast
Thank you. I have been taking probiotics since I started taking abx.'s back in 2004. I rotate VSL, Ultraflora, Theralac, Healthy Trinity and Jarrow. So I get sometimes upward to 450 billion a day! I also take Sach. B. on occasion. I take a bit less now that I am off abx.'s but still take them everyday.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
| IP: Logged |
tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
I had been in remission but relapsed after my lung surgery.
My LLMD put me back on abx after running various market type tests. I actually didn't call him for a couple months as the symptoms were coming back since I felt it was just a fluke.
But as they grew, I was glad he stepped up to the plate to help out again.
In my case, it was the Babesia that came back so it was back to the drawing board.
With that said, I do understand that yeast can cause many of the same symptoms and any time we are on ABX for awhile, it is something to consider.
I do hope you can get it figured out and back to feeling less symptomatic.
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Desertwind... My teeth, I don't know. Some I lost during lyme, the others, possibly after. I did some root canals after I lost them to lyme, but didn't want to treat them after lyme got dormant more than 5 years ago.
I just was fed up with treatment. Only now, I'm restarting again (with teeth, candida etc).
Posts: 6199 | From Brussels | Registered: Oct 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic