posted
I was diagnosed with ALS five years ago. Has anyone else had that diagnosis?
-------------------- Dxd ALS 3/2010 Dxd cllinical Lyme 4/2010 Positive for Protomyxzoa but absolutely nothing else in Igenex Posts: 417 | From central ct | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Some with lyme have received that Misdiagnosis. Yes.
Sometimes, it is a misdiagnosis. While it's easier to say that lyme can be the cause of ALS - sometimes -
It's not so much that lyme can cause ALS (it cannot)
but lyme can certainly cause many of the same symptoms and they can be incorrectly interpreted when doctors are not fully literate about lyme / tick borne infections & other chronic stealth infections.
In the documentary, UNDER OUR SKIN, one doctor who was featured had been misdiagnosed with ALS. Then, as he investigated further and was finally diagnosed with lyme & Babesia (another tick borne infection) and got treatment, the ASL misdiagnosis - and most of the symptoms - fell away.
Same with MS, Parkinson's and even Alzheimer's. Not for all cases, of course, yet often lyme / TBD / chronic stealth infections can be the cause of the symptoms and when the cause is ignored, the wrong diagnosis is made or assumed. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
My grandfather was diagnosed at 41 and died at 74. They get it wrong a lot. The fact you've outlived the time frame is good. True ALS you'd be progressing quickly. Bulbar disfunction, drop foot(which I got with lyme). There are MND's that aren't ALS.
posted
Do you improve at all with treatment?
Posts: 908 | From Albany | Registered: Nov 2008
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I think ALS is actually babs and lyme gone wild. If either are neglected, one could deteriorate further to what docs think is ALS.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Yes, as Keebler mentioned, a doctor written up in Pamela Weintraub's book "Cure Unknown," had that diagnosis and made it through. I heard him speak! I'm pming you -
Posts: 13116 | From San Francisco | Registered: May 2006
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Military men are getting ALS?
Is it because of vaccines, chemicals, or disease? There is a strong correlation with EBV & mycoplasma with Gulf War Illness and maybe Borrelia + myco or EBV can cause ALS too?
Funny they mention "soccer players" & "“We are talking about young men who are both physically active and spend a lot of time outside,” Dr. Zivkovic points out."
We also know ticks are outdoors where those active men hangout, but it could be anything.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Lymedin2010 . . . all serious considerations you mention, of course (& more specifically the vaccine ADDITIVES, chemicals, or disease). In addition:
Regarding soccer and military, head trauma is also to be considered. Even mild hits, bounces, jolts to the head can cause big time damage that may not be evident for years.
And if lyme / TBD not recognized and left to progress, it all just creates . . . (can't think how to finish). . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Here is Dr. David Martz ALS is really Lyme story:
Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Keebler, what do you think happens during trauma? You have damage to a specific area, where there bacteria (borrelia, or oral spirochetes, or EBV, or Myco) to grow freely in that area.
At that point it can become a point source infection & travel and expand down the nerve or area, producing the end result damage, i.e. the labeled disease (ALS, MS...etc).
Me too Keebler, tired & brain fried but cannot sleep. What are you doing up you proponent & activist of good restful sleep?
Posts: 2087 | From NY | Registered: Oct 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's 3 hours earlier here than where you are. But I'm pushing midnight waiting for my neighbors' exhaust fan to stop so I can settle down. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
You win
Good nite Keebs.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
If you can put two feet together and jump up on to another object that way the odds of you having ALS are pretty small, to none. Before I went to a LLMD I thought I had ALS.
-------------------- Lyme flare June, July, August of 2013. Diagnosed September 2014 Lyme, Bartonella, Mycoplasma, Mono Posts: 595 | From Texas Crossroads | Registered: Oct 2014
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