posted
Also, if you have this, how much do you limit cruciferous vegetables and eggs?
Posts: 83 | From Sarasota, Fla | Registered: Apr 2013
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Catgirl
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posted
I have the mutation but I don't let that limit me. Trial and error showed me what I could handle. We are all different and the only way to know for sure is to try something.
I can tolerate 1 maybe 2 NAC a day, more than that makes me feel bad. I can also tolerate ALA which is good for chelation, and also glutathione.
I also eat cruciferous veggies, onions and garlic. I cannot eat broccoli soup though, but I can eat broccoli. Something in the cooking water, maybe it gets more intense, not sure.
I think if you supplement properly you will be able to take in more sulfur foods/supplements. Keep a journal of things so you will be able to tell what works for you. It's better to get something than nothing.
You could try supplementation then maybe a mild epsom salt bath, perhaps less salt than you would normally use. The only way to know is to try it. I'm not a bath person, but you could also try clay, baking soda, or ACV.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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I just made a new batch of liposomal glutathione / Vit C.
I guess the glutathione is out, too, correct?
Susan
Posts: 83 | From Sarasota, Fla | Registered: Apr 2013
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Catgirl
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posted
You're welcome!
I take glut all the time (no worries). Go ahead and try it. I take all that stuff (above).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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I'm mostly curious to see if it will make a difference and make me feel any better.
At my age, I seem to be ultra sensitive to everything.
Susan
Posts: 83 | From Sarasota, Fla | Registered: Apr 2013
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Catgirl
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posted
I forgot to mention, maybe the reason I can eat and tolerate so many things high in sulfur is because I'm vegan. Meat is high in sulfur, dairy too.
Maybe the issue is just too much sulfur, and if you eat to much you will feel worse. We are all so different, the only way to know is to try.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Silverwolf
Frequent Contributor (1K+ posts)
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posted
Hi <<<<< SusanH, and Catgirl >>>>>,
Thanks for this post about the CBS mutation, so much to learn, I have been tracking some Allergy/Histamine Intolerance,and this might be the clue I needed!!!
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Catgirl
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posted
You are welcome Silverwolf! I hope someone else comes along and adds more info.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Razzle
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Member # 30398
posted
I have a CBS mutation also, but seem to have always done ok with Epsom salts baths as long as I don't stay in long (10-15 min. max) and don't use a lot.
Nutrition support for sulfite processing can be helpful for those with CBS and/or SUOX mutations. Molybdenum is the most important mineral to supplement, but Zinc, Magnesium, Iron and Vitamin B12 are also very important.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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ukcarry
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posted
I find baths with magnesium chloride salt flakes suit me better than Epson salts (magnesium sulphate).
Posts: 1647 | From UK | Registered: Nov 2008
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I'm also wrestling with yuca. It can soak up sulfur but is so high in starch, which turns to sugar as soon as it hits the system.
What to do? Any recommendations?
Thanks, Susan
Posts: 83 | From Sarasota, Fla | Registered: Apr 2013
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lpkayak
Honored Contributor (10K+ posts)
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posted
Ahhhhh. Finally something thats not bad for me. All the things that make you guys sick make me feel better
Um glad there are sime here with experience to help u all along
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Razzle
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posted
Well, it doesn't take much yucca root to make a difference. Yasko says a "sprinkle" on protein foods - I was only using 1/8 teaspoon once a day...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Razzle, so you bought it in supplement form or powder instead of raw?
Thanks, Susan
Posts: 83 | From Sarasota, Fla | Registered: Apr 2013
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Tammy N.
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posted
I didn't read everyone else's reply. But for sulfur issues, molybdenum was huge for me. Also, since treatment for MTHFR and parasites, I don't really have issues with sulfur anymore!! (Parasites hate sulfur.) Sulfur was always a HUGE issue for me, but not anymore.
Best to you.
Posts: 2238 | From East Coast | Registered: Jul 2010
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Tammy N.
Frequent Contributor (1K+ posts)
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posted
I didn't read everyone else's reply. But for sulfur issues, molybdenum was huge for me. Also, since treatment for MTHFR and parasites, I don't really have issues with sulfur anymore!! (Parasites hate sulfur.) Sulfur was always a HUGE issue for me, but not anymore.
Best to you.
Posts: 2238 | From East Coast | Registered: Jul 2010
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