posted
I have been treated for Lyme for over 10 years with many different antibiotics and I have never fully recovered. I have lots of muscle and joint pain and fatigue. Most recently a new LLMD that I went to advised me I have Chronic Epstein Barr and suggested antivirals. Has anyone had this situation. Thanks for your help.
Posts: 33 | From New Jersey | Registered: Sep 2009
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
Which antivirals did your LLMD suggest?
A relative of mine is asking about treating Epstein barr.
Posts: 2249 | From USA | Registered: Aug 2011
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< mich, and MannaMe >>>>>,
Some years back,before my LD and Co-infections DX, I found out about CEBV/CFIDS. I was positive for a reactivation.
The Dr. I had back then had me try Zinc, Tagamet and Zovirax for a time. We ran low on funding so I stopped.
It did seem to help some tho',I remember getting very, very tired.
There may be some better protocols now, Hopefully someone w/ recent experience will check in on this thread.
Jus' Silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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posted
I have E.B. too. I'm on a huge daily dose of Phytogen (an herbal anti-viral by Thorne) and a prescription -- Acyclovir.
I just started though, so I don't know how well they'll work yet. And like the silly newbie that I am, I went and made myself worse by trying to exercise, so I need to recover from that.
-------------------- Bless the Lord, oh my soul. -- Psalm 103 Posts: 102 | From WA | Registered: May 2015
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posted
I did an antiviral a few years ago, and it stirred up all my lyme symptoms so my LLMD took me off of it.
-------------------- "Yeah, I miss me too." Posts: 234 | From NY originally registered in 2008 | Registered: Nov 2012
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Byron White Formulas has A-EB/HHV6 for viruses. See your LLMD and talk to him about it.
Posts: 1954 | From Illinois | Registered: Aug 2007
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