My mom started oral antibiotics mid May and IV antibiotics on June 9. She has neurological lyme and so far we have not seen much improvement. She had Babesia confection. She has actually gotten weaker with the Herx. When do people start seeing improvements? 3 months? 4 months? This is hard. Just looking for some positive reinforcement.
Thanks.
-------------------- Alex C Posts: 5 | From United States | Registered: Apr 2015
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posted
She has had it for 2.5 years. She just got diagnosed 3 months ago after seeing 17 drs telling us that they didn't know what she had. Lyme test came back positive for Babesia. She is 66. I need to add better detox. The Dr's protocol seems good, but she can't walk well, and has issues swallowing liquids like water. Thanks for responding.
-------------------- Alex C Posts: 5 | From United States | Registered: Apr 2015
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posted
That's really rough. It will take awhile then. Babesia was the worst for me, but I am well now! I still have many health issues but I had Lyme for 42 yrs undiagnosed .. so it's to be expected.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Yes, detox is so important. It can help a lot.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Regarding WPinVA's excellent reminder of what can help, detail here:
posted
It's been a year for me and I am very sick. Some people start to improve, some people take two years before they feel better. It's a long long road.
I thought in 6 months I'd be back to work, I was living in denial. It's different for everyone so no one can give you an exact time frame.
-------------------- *Man did not weave the web of life, he is merely a strand in it. Whatever he does to the earth he does to himself- Chief Seattle, 1854* BullsEye 2005 Dx Lyme, Babesia, Bartonella, EBV Posts: 41 | From New England | Registered: May 2015
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posted
I am on month 7 and month 6 is when I started seeing improvement. I have had lyme, babesia and bart for 44 years before being diagnosed. Detox needs to be her job everyday. Lemon water, alka seltzer GOLD and an infarred sauna.... are the easiest things to do. Sauna is $170 on amazon. You detox with sweat and the sauna makes you sweat!
Posts: 58 | From GA | Registered: Dec 2014
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So sorry to hear about your mom. Sending good vibes her way. It's hard to see someone you love suffer.
Does she have a good LLMD? Is he/she working with herbs as well?
Don't give up. Your mom really needs you.
-------------------- I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ... Posts: 235 | From Europe | Registered: Jul 2012
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I went undiagnosed for at least 16 years and it was pretty bad neuro stuff and it took me 4 weeks to feels something different, but I don't think I felt 'better' for a long time- like a year or more, I mean to the poiont of me actually feeling good enough to say I feel better, if that makes sense.
that was around 2 years ago I think that I was dx.
now I feel way better. but it is an ebb and flow kind of thing . two steps forward, 5 steps back is how it felt for me for many months. persistence is key. best of luck to your mom!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had lyme, babesiosis, and bartonella for at least 10 years before I was diagnosed. I was in my early 50s when I got on lyme treatment.
It wasn't good lyme treatment. But, in about 6 months I felt a little bit better.
If the treatment is not the proper treatment, you will just get a little bit better and then eventually the disease will continue to progress.
For example, being on just one antibiotic that treats lyme is poor treatment. Totally inadequate. It doesn't matter that she is getting it through IV.
If you don't know what good lyme treatment looks like, STUDY the Burrascano Lyme Treatment Guidelines. Otherwise, your mom could waste YEARS on lousy lyme treatment like I did.
See Combination Therapy on page 12 to understand how lyme can evade any one antibiotic, even in IV form. It is simple for lyme to do that.
Hope your mom is getting correct treatment. You can post her actual meds here if you like. They don't like us to post dosages usually. You can look up the dosages in Burrascano to be sure they are high enough.
If dosages are too low, treatment is inadequate. So, everything has to be right.
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