posted
I am treating fairly rampant babesia right now. It went away and came back. My worst symptom is what seems to be the worst vertigo I've had in my life. It is worse some days than others, and it isn't as bad as it was before treatment. It was almost paralyzing then and I wondered about a brain tumor. When the vertigo hits, it causes anxiety. It has made me fear public situations as well. There are triggers.
Has anyone here experienced; or believe that there is an association with babesia and vertigo (it feels more severe than simple dizziness, almost like environment spinning and inability to walk without grabbing something).
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes. And the vertigo attacks lead to adrenal attacks (anxiety is one symptom of that adrenal attack but it's best to not call it anxiety around others who think anxiety is a psychological thing). The adrenal fight or flight "hit" makes a lot of sense with vertigo. Very much connected.
It could also be reaction to the Rx you are taking, especially if liver support is not enough.
GINGER CAPSULES
ADRENAL SUPPORT
NETTLE LEAF EXTRACT to help nourish the blood as, with babesia, the RBC often loose key nutrients.
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
Helps offset some of those Rx that can be ototoxic - and the general ototoxic nature of tick borne infections. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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- Call your LLMD today as they should know and may have some suggestions.
GINGER CAPSULES can help relieve nausea and dizziness. But it needs to be kept up at a therapeutic dose that only the capsules seem to provide. Although the tea can help a bit.
Take Ginger Capsules a couple hours away from Rx. It has some antioxidant properties and it may speed Rx through too fast if taken at the same time.
QUINOA FLAKES are great to have on hand. Just add boiling water to a deep bowl or mug. Cover. Wait a minute and you have an emergency meal, of sorts for a tender tummy.
Surprisingly good ratio of protein & fat, too, so this is not going to adversely affect blood glucose.
The herb, STINGING NETTLE may serve to compensate for the reaction by calming the the cytokine storm that is often part of a herx reaction.
Helpful to supply iron to red blood cells, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
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- Be sure your blood sugar is not dropping. Vertigo can often cause blood sugar to drop like a rock.
And sudden low blood pressure hits when you stand up or stay up could also be involved (very common with lyme). NMH or POTS. Hands too numb to say more now.
Take care. Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Dizziness can be very upsetting. You never know when it will hit you. So, you can become afraid to drive, take a walk, etc. for fear that it will hit, and rightly so.
Good babs treatment should knock it out!
Posts: 9931 | From Maryland | Registered: Dec 2007
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WPinVA
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Member # 33581
posted
With babesia, I felt like I was tipped over to the side. Not spinning, just tipped. It was the oddest thing ever. And yes I did want to grab something.
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
It is getting less frequent with treatment I guess but when an attack hits it's just paralyzing. Shopping malls, convention centers, and other highly populated public areas where I'm forced to walk seem to be the worst trigger areas. And I can feel in the morning when it's going to happen. There's a slight headache, a fog, a depersonalization fog before all Hell breaks loose
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Do you have a job that forces you to walk in such sensory jumbled areas?
Can you contact the bldg/ site management or guest relations office for short cuts that are quieter, less busy, etc.
Whatever the reason for being there if you must, though, it's absolutely essential to get some "vestibular therapy" so that you know some key safety habits such as where to focus your vision, how to "mind" your feet . . .
how not to stand too close to the curb when waiting to cross a street, etc. If your hand can hold a cane, best to get one and just keep it in synch with your walk, don't put your weight on it unless you need to but if you do, it will be there for you.
Always think ahead for a "fall zone" in case of a tumble. Stay clear of glass tables, windows, traffic, and doors that may open very fast with no notice.
That part is hard because it's easier to walk along the bldgs. for some kind of support (but that sudden door blasting open has clobbered me more than once).
There are some very particular habits that can help. Your LLMD might know of a PT who is also a vestibular therapist -- and one who is somewhat familiar with tick borne infections.
The vestibular therapist I saw was just blown out of the water with me, "never saw anything like that before" she kept saying. So that was disheartening and a bit accusatory still, I did learn a few things of vital importance. So many more things I just had to learn on the street.
If sudden sounds trigger any muscle movements, be every more careful and get ear muffs (but they do not block out all sounds, just so you know).
Be careful.
Posts: 48021 | From Tree House | Registered: Jul 2007
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WPinVA
Frequent Contributor (1K+ posts)
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Yep, I didn't go grocery shopping for a long time.. too fatiguing and overwhelming.
Posts: 1737 | From Virginia | Registered: Aug 2011
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