posted
I asked if anyone has ever heard of LDA/LDI for lyme and not many people responded. though it is supposed to be a very successful and new treatment. i am in los angeles now and a doctor here claims she has put lyme in remission from these shots which have now been made to be sublingual. the guy who invented it is ty vincent. look him up on youtube, watch videos 1, 2, and 3.
i just got my first shot, which was inexpensive last week ($75) and it made me extremely tired. you are supposed to feel like **** for a couple days then feel better. i havent really noticed the feeling better yet but i am sometimes very sensitive to things. so i will keep everyone updated. just thought i would let people know of this new, and hopefully promising treatment. if anyone has tried it, please post your results. there is also a facebook group for it, called ldi for lyme.
Posts: 723 | From boston,ma | Registered: Jan 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- [Deleted question in previous reply. Still hope you feel better soon.]
Ohhh . . . I found the lyme page on their main site. I'll have to come back to this later but it at least answered the first question.
For others who may have some of the same questions that I did not see in the first two links:
. . . The following sixteen bacterial species are included in the current Lyme mixture . . .
[list]
. . . These are all dead bacterial specimens that are provided initially in a stock mixture together and then that mixture is diluted out to the relevant treatment doses.
There are no other substances mixed with the samples or added to the dilutions. The dilutions are made simply with sterile water. . . . (end excerpt).
Many questions about this but this page is a start. It would be interesting to see the 3rd party thinking on this as well.
Also important for anyone brand new to lyme to be assessed by a lyme literate doctor not just for lyme (which is an infection) but also for other tick borne infections.
While the infection is being addressed, some LLMDs and LL NDs (naturopathic doctors) are including methods of support for the immune system. Be sure to discuss with them any methods you consider. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For those who develop allergy to red meat from a tick bite (though apparently not necessarily lyme connected) this LDI allergy technique might be something to consider, perhaps -- a LLMD would best be able to answer for individual cases would vary.
Even if an allergic reaction, the added possibility of infection for any new bite is always important to consider and that would take different steps.
The herb, STINGING NETTLE may serve to compensate for the reaction by calming the the cytokine storm that is often part of a herx reaction.
While you are not necessarily having a herx reaction it seems your system is affected for other reasons, so this may serve to calm that down. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
This is something I asked about a while ago. My doctor charges $200/shot and wanted me to do at least 6 shots. I'm surprised by the differences in cost. I saw one doctor in CO that charges $20/shot.
I'm not sure that the outcome is worth the money for me. I'll be curious about your experience. Please share with us.
Posts: 93 | From arizona | Registered: Oct 2010
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
That's really interesting. I tried standard allergy shots for allergies pre-Lyme (or at least pre-Lyme dx). They didn't work for me. I kept having reactions and they had to keep lowering the dosage. Then I got Lyme and had to stop.
Interesting that there is another option. So I guess the key is ultra low dosages?
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
I had the shot last week. It was $45. Not sure if I have noticed anything. Office didn't make another appt for the next shot.I got the snappy receptionist at check out so didn't bring it up.
Spot where it was done is still a red mark at 6 days and looks bruised if I use it too much. It sure stings like a bee when they do it. They must not be allowed to wipe your skin before they put it in.
I think you are suppose to get a few of them in total, once a month and then onto the chemical one and then the food one. I sure hope they will work. The hypersensitivity for sound, sight and smell really gets to me and just will not give up the ghost.
Sounds like some places really charge a lot.
Posts: 294 | From southwest mi | Registered: Dec 2012
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posted
What's the difference with this and traditional allergy shots??
-------------------- *Man did not weave the web of life, he is merely a strand in it. Whatever he does to the earth he does to himself- Chief Seattle, 1854* BullsEye 2005 Dx Lyme, Babesia, Bartonella, EBV Posts: 41 | From New England | Registered: May 2015
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posted
So If I am understanding this correctly they are giving allergy treatment to people with Lyme who have developed severe allergy?
Posts: 803 | From USA | Registered: Oct 2013
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TX Lyme Mom
Frequent Contributor (1K+ posts)
Member # 3162
posted
I attended an AAEM conference about five years ago when there was a special session on LDA, which had been extremely controversial with the FDA and other Powers That Be for a very long time. However, it looks as if most of those regulatory problems have been resolved by now.
Personally, I would definitely consider trying LDA for Lyme arthritis, but my vote is still out on whether it would be both safe and cost-effective for other cases of late-stage chronic Lyme symptoms, especially neuro-Lyme symptoms.
Here are a few more links to help you decide, but it does appear from the conf. agenda that there have been some major advances with LDA therapy in recent years.
I'm guessing that LDA probably works by helping the body to deal with stealth, intracellular infections of the WBCs (white blood cells) better, including Bartonella also. However, I have doubts about whether it would be equally effective against Babesia because Babesia infects the RBCs (red blood cells) instead of the WBCs.
Whether LDA would work equally well for Lyme that is sequestered inside biofilms is anybody's guess. Maybe in combo with herbals which inhibit biofilm formation ??? Who knows? Although I'm guessing that the therapy protocols probably don't permit combining LDA with herbals or with any other therapies. I don't recall what they said about such combo therapies some 5+ years ago because my memory about it is too vague now.
In other words, simple Lyme arthritis might be a really good bet, providing that this is the patient's only major symptom. That's when LDA would most likely be well worth a trial, especially as a way of avoiding harmful pain-killing Rx medications. Why not?
Posts: 4563 | From TX | Registered: Sep 2002
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posted
All LDA/LDI does is stop the inflammatory process because you immune system now recognizes the inflammation trigger, like a food or house dust, or the Lyme spirochete, as a "friend". Food and house dust have no innate ability to do harm, so I guess that's OK. In the case of Lyme disease however, where the spirochete has the ability to turn your joints into Swiss cheese, what is to stop the spirochete from continuing to do this, at the LDA/LDI treatment doesn't actually kill the spirochete ?
Posts: 2 | From Portland, OR | Registered: Nov 2014
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