posted
I'm finally ready to mail off my specimen for 23andme .. I registered it as instructed but it's making me nervous that my name or email is not attached to the sample.
I GUESS they go by the barcode on the box?? What identifies me?
Thanks!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
OK... I figured it out. I thought I had registered, but not not completed it. You add the barcode from the vial to the registration.
Six.. It can tell you about your genetics, but you have to plug the info received into a place like livewello for help with interpretation of the results.
I plan to contact Tree of Life Minitries for interpretation. They charge $60 for an hour's consultation. 23andme is no longer allowed to do the interpretations. (government regulations)
23andme will give info on ancestry.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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posted
I did it for the methylation genes. I don't know the extent of their testing.
Posts: 13117 | From San Francisco | Registered: May 2006
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Robin, I had heard that they don't test for methylation genes anymore, just ancestry, that's why I was confused. I don't even know if that's the case .... maybe methylation shows up in ancestry?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
I have it on order for my son who will also be tested at FSU for same in Sept. I will compare the results.
Here's a link to explain where to go to interpret the results:
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Lymetoo, I remember having the same concern, but you must have given your email when you sent for the kit and the bar code is linked to it.
You will receive an email asking you to register at their site, where you choose a password for later use.
Mine finally arrived last week and I have initially used Livewello to translate the raw data from 23andme into my health results. I will be contacting a UK practitioner who has studied with Ben Lynch to help me with a supplement programme.
Sixgoofy, 23andme do still provide you with the raw data of your results, including methylation, but Livewello and other sites convert the data into more user-friendly codes under headings (MTHFR being one of them). It is still quite mind-boggling for the brain-fogged individual, so I am taking my time!
Posts: 1647 | From UK | Registered: Nov 2008
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posted
You know, thinking about it, I do think they test for everything - I just wanted the methylation info.
I keep getting emails from them saying they've found another relative of mine. I have not followed up on all these relatives. I am not sure whether they are human, or chimps, or orangutans?
Posts: 13117 | From San Francisco | Registered: May 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Do they go back to Ötzi ?
Just kidding!
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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quote:Originally posted by ukcarry: Lymetoo, I remember having the same concern, but you must have given your email when you sent for the kit and the bar code is linked to it.
- Well, had I followed directions and registered before doing anything else, I would not have been wondering what was going on.
The bar code on the box is not the same as the one on the vial. You have to put in the code on the vial. (Sounds like a good idea .. lol)
Maybe they do, Marnie! We'll see!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Please keep us posted on what you find out! I did 23 and me a while back. I plugged my genetic info into a few sites for analysis. I think genetic genie was one of them.
Then I got stuck. So much of the info conflicted with other information, so I was never sure what to do about it. Would love to hear advice from others who have managed to get further with it.
I did think the ancestry stuff was fascinating though, so that was a plus.
Posts: 1737 | From Virginia | Registered: Aug 2011
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I confess that I have forgotten the detail of it, but do remember wondering how they would identify me!
WPinVA, you are right: the ancestry stuff is fascinating in its own right. I am lucky in that I have a Friend with Lyme who did 23andme a few months ago and she explained the rudiments of what you do after you get the raw data.
She was very clear that it is a good idea to work with someone who understands nutrigenomics, but there aren't many people who fit that bill yet in UK. Luckily, the most experienced person will work through Skype, so I will be setting up a first appointment with her soon. Perhaps you could try working with someone with your results to see f that helps you.
Posts: 1647 | From UK | Registered: Nov 2008
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posted
WPinVA - you don't have to get stuck re the info if you work with those who know how to work with it. Sounds like the Tree of Life Ministries ND folks know what to do, and can be contacted - see Lymetoo's post above.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
I did it a few months ago and no problem. I didn't hold back any info. I have found a number of cousins on there. Very interesting. My llmd did his also. He said they can get your dna from
any cup you piss in, so not to worry. I have found out some interesting things like my dad is probably not my dad, etc. I sent mine to livewello and then had my dr retrieve it before I had my last appt. He ascertained that I have a cbs mutation that has to be dealt with first.
Don't know if some of the stuff is really working, but maybe it takes a long time. It seems that I have the gene for the meningioma as well that is behind my eye (was first told it was a pseudotumor) and will be taken out next week.
I don't regret doing the testing. I only wish more people would reveal who they are. I have a second cousin on there who won't connect and it could be so helpful to know if she only would.
I know pharma will be owning it all one day but in the meantime, it is very helpful.
Posts: 294 | From southwest mi | Registered: Dec 2012
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Direct mutation analysis for the MTHFR C677T and/or A1298C mutations should be reserved for patients with ***coronary artery disease***, acute myocardial infarction, ***peripheral vascular artery disease***, stroke, or venous thromboembolism who have increased basal homocysteine levels or an abnormal methionine-load test.
Since Bb impacts the endothelial cells (line the blood vessels), having those genetic mutations (increased risk of coronary artery disease/peripheral vascular disease) + lyme = double whammy.
Address the genetic mutations with supplements and Rx's.
AND hit Bb.
PERHAPS (!)...D mannose (lure) + Minocycline (destroy) + Claritin (prevent reaction, et al reasons).
p8 in the tick's saliva *inhibits* "mannose binding lectin pathway" = the first pathway our immune system takes to chop apart the offender to present its antigens (proteins) to other immune cells so they mount the correct response.
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