posted
A couple weeks ago my tongue felt like maybe I bit it during my sleep. The side of my cheeks felt the same way.
down the length of each side of my tongue on both sides it looks sort of bumpy and whitish in places. The burning feeling is on top and seems to come and go.
Has anyone else experienced something like this? I'm wondering if it's another Lyme related symptom or if it's something else.
I do have an appointment with my regular PCP tomorrow but if it's a Lyme thing he won't likely steer me in the right direction.
Thanks for you time!!
Posts: 120 | From Maine | Registered: May 2015
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That's better Posts: 120 | From Maine | Registered: May 2015
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Keebler
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posted
- For now, I suggest getting some of this. I also have "Burning mouth" and it helps.
Your PCP is not likely to know enough to help just don't be talked into steroids if suggested. This can be held in mouth for quite a while. No alcohol.
This sounds like it could be what I am now dealing with. Interestingly this all started not long after I began drinking freshly juiced organic produce including things like lemon, leafy greens, ginger root, turmeric, cucumbers etc. I wonder if this is what pushed me into this problem.
I would hate to stop drinking these incredibly nutritious drinks that supplement my normal diet.
Posts: 120 | From Maine | Registered: May 2015
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quote:Originally posted by Keebler: - Have you done any tooth whitening? That can be very rough on mouth tissue. So can a lot of the products sold for brushing, etc.
Burning Mouth Syndrome - various articles and product suggestions -
I haven't. The only real change has been drinking 8oz of fresh vegetable juice 3 to 4 times a day. I've been doing that for 3-4 weeks and this started 1-2 weeks ago.
Does certain types of food encourage this?
Posts: 120 | From Maine | Registered: May 2015
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Keebler
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posted
- Acidic foods would. I find that certain green juices do, too, such as kale juice which I had this morning.
If it burns while drinking, adjust the composition of if. Always follow with water and rinse / swish so that food acids don't sit in mouth.
Avoid gums, mints, etc.
There is no need to copy and paste a post to reply. Just reply and if reader needs to look back up for reference, they can just scroll. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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LICORICE ROOT EXTRACT -- Informational Links set -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Monti,
Have you found a good ILADS educated lyme literate MD yet? If so, be sure they know about this. For those with lyme and burning mouth, when lyme is assertively addressed, that can help a lot.
Certain vitamin or nutrient deficiencies may also be connected. First, consider:
I am feeling 99% certain that my juicing is what triggered this. I use a lot of lemons and limes which are acidic until your body processes them.
I swish the juice or "chew" each mouth full. 8oz of juice spends a lot of time swishing in my mouth 4 times a day.
I use a fair amount of kale as well since it's so nutrient dense.
I will inform my Lyme specialist about this.
I think what I may end up doing is ceasing all juicing until this clears up. Hopefully it will. And once it does I will begin juicing again but without the citrus juices and I will not swish the juice. I also will rinse my mouth with water immediately after.
Does that sound like a good plan to you? I realize I may be counting on it clearly up when in fact it won't. But the timing of all of this is directly connecting to my new juicing focus. It's likely why has triggered this.
Posts: 120 | From Maine | Registered: May 2015
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ukcarry
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posted
I have had sore tongue issues at various times in the illness: the first time it improved after I had my dental amalgams removed (by a mercury-free dentist who took all the precautionary measures). The amalgams had rusted, which made matters worse. I don't know if that could be relevant to you?
Candida can also affect the tongue and mouth, so can B vitamin shortages and intolerances such as salicylate intolerance.
If things don't improve after you stop the citrus juices, these are all things to consider.
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ukcarry
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Thank you for this info Posts: 120 | From Maine | Registered: May 2015
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Keebler
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- Really nice links ukcarry posted.
The juice sounds like the main culprit here - the amount and your habit of holding it in mouth for so long. Rather, lightly steam veggies or light sauté.
While you don't want food to be slush, cook it enough so that light chewing can send it on down the hatch fairly soon. Don't mash food around in mouth as that can scrape off mouth tissue that is trying to heal and grow back.
If you want a little lemon juice with stevia, jus drink a half cup fast and chase with water. Or a little veggie juice, fast and chase with water.
Too much kale can be damaging. A better range of all veggies best.
Sea Buckthorn oil can help coat tissue between meals. Green Tea, nice, too. -
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Keebler
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I saw my doctor this morning and she felt it was burning mouth syndrome as well.
I am familiar with oxilates. My brother delt with some issues from drinking to much of a certain "health" drink which lead to severe pain near his stomach for months.
Are you implying oxilates is part of the cause with burning mouth?
I have been very careful to rotate my produce. I never use things like spinach, beets or beet greens because they are screaming high in oxilates.
So would something like sea buckthorn oil help heal the issue or just mask it?
Posts: 120 | From Maine | Registered: May 2015
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posted
I realized today that I also started using a fair amount of tomatoes in my juicing which is very acidic. Another contributing factor in this I think. The burning mouth syndrome began within a few days of adding the tomatoes.
Posts: 120 | From Maine | Registered: May 2015
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posted
Should I use both buckthorn oil and olive leaf extract? How long would a 2oz bottle of olive leaf last me? Wondering how many I should get.
Posts: 120 | From Maine | Registered: May 2015
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Keebler
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posted
- If you use it hourly,
a 2 oz. bottle of Seagate OLE will last about a week.
Seabuckthorn oil will last longer as it's thicker.
If you think there is candida involved or other infection, I'd use the OLE liquid. If you order from Seagate, directly, it will be shipped right out.
but if it's mostly just irritation from acid or churning about foods against the mouth tissue, I'd go for the seabuckthorn oil. I've only ever used Mountain Rose Herbs and their delivery can be a bit slow.
Seabuckthorn oil does have some healing properties, too, other than just being very soothing. It is MORE SOOTHING, I think, than the OLE is. But OLE will likely target infections in the mouth better, I think.
Of course, infections in the mouth are usually systemic, too.
Since this really does sound like it was far too much citric acid, I'd go with the Seabuckthorn oil for starters. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
So with the sea buckthorn oil how much and how frequent should I use it? I'm wondering what size bottle I should get.
Posts: 120 | From Maine | Registered: May 2015
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posted
Also I just realized that the seabuckthorn oil doesn't say good grade anywhere. I can't really find one that does. Is that a issue?
Posts: 120 | From Maine | Registered: May 2015
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
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posted
- Monti,
You question the quality of what you ordered. What brand did you order? Is there a link so I can see it?
yes, some are not as good as others due to how they are processed. Some use chemicals to process, some do not (a good brand will not)
I would start with about 1/4 of a dropper. That should be enough to cover your mouth tissue.
Mountain Rose Herbs has an excellent quality. Although the price can be daunting, you can be certain of the quality and I find it's soothing nature is worth every penny - and it's very thick so about a half of a dropper will last about an hour in the mouth - and even overnight. Be sure to use right before bedtime.
There was another brand from the Bay area in California but I can't recall the name. It looked very good. I've only used the one below.
I suggest a 2 oz. bottle at first. Be sure to get dropper lid / top with it. Some sizes do not come with a dropper as many people just recycle previous ones.
Sea Buckthorn Oil -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- You asked: would sea buckthorn oil help heal the issue or just mask it?
It will help heal but it won't be enough by itself. Not so much mask as it does have some healing properties but it's more for the Soothing aspect while the cause(s) are approached with a wide range of (word loss) . . . things.
Systemic treatment as well as topical. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks Keebler. I did end up finding a good grade. It came in capsules but in some ways that may be a good thing. I can keep a few with me in a zip lock at all times. I think Sibu was the brand. It's ordered so it is what it is for now. Next time I will get the one you posted above.
Are there any other products to help heal this issue given my particular cause (acidic juice drinking) that you can think of? I ordered the olive leaf extract as well.
Posts: 120 | From Maine | Registered: May 2015
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posted
Thanks lymetoo. I'm pretty sure my cause is something else.
Posts: 120 | From Maine | Registered: May 2015
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Keebler
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posted
- BEFORE you pop open the capsule in your mouth, let the gel cap warm up to your mouth temperature and the saliva moisten it some. Some gel caps can cut pretty badly when they are bitten so be sure to give it at least 30 seconds to warm & soften.
I'll look up your brand later.
The OLE liquid will help in other ways. It may not be as thick or last as long overnight, though (I've found). Hope your mouth is better soon.
You have likely figured this out by now but a good idea - until mouth is well healed - to not eat anything crunchy, even nuts as they can cut mouth tissue. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- I'm not so sure about the brand you got. The only sea buckthorn oil capsules I see at SIBU's website is for "Cellular Support"
While their company policy of wild crafted and fair trade is good. I have some problems with the additives:
Non-GMO Starch, glycerin, carrageenan, maltinol, water
I would not take this as there could be gluten (in either the non-descript "starch" or the maltinol as it sounds like it may come from barley), who knows what maltinol really is ? and carrageenan can cause inflammation.
Sorry. Just my take. There is no need for ANY additive. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Let me double check with my wife before you look up the brand. I want to make sure I gave you the right one.
And if you can think of any other products to help encourage the healing process please let me know. I don't really feel that I have made any progress yet.
Posts: 120 | From Maine | Registered: May 2015
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I'm sure I can always return it now that I know what the good stuff is. Let me know what you think and thank you.
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Keebler
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posted
- This looks wonderful. There are no additives and a mix of the berry oil and the seed oil is good. And it's organic. Should be fine.
The only other ingredient is the gelcap / gelatin. Just let it soften before biting it open.
I had to look at it in a different URL, though. Something about the link you have makes is hard to work. There is a "m." in your URL before the actual vitacost. I've never seen that before but it makes the page harder to navigate.
This appears to be exactly what you ordered, though:
posted
I bet the "m" was for mobile. I was using my phone and so the website likely was a mobile site versus regular desk top site.
Posts: 120 | From Maine | Registered: May 2015
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posted
I have noticed the tongue sore problem too. My doctor said it was glossitis. I can't eat anything too acidic like oranges, Mexican food, raspberries, blueberries or strawberries. I wonder if it has to do with oxilates like was mentioned above or has something to do with Lyme.
Posts: 142 | From Midwest | Registered: Sep 2015
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posted
I'm not sure oxilates was tied into this issue or not. I asked the question but I think it got overlooked with the flooding of other questions I asked haha.
I'm thinking oxilates was a side point to be aware of for people juicing etc but I'm not fully sure.
How long have you been dealing with burning mouth onebeed? I'm starting to get the feeling this is not going to go away as quickly as it appeared Posts: 120 | From Maine | Registered: May 2015
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quote:Originally posted by onebeed: I can't eat anything too acidic like oranges, Mexican food, raspberries, blueberries or strawberries. I wonder if it has to do with oxilates like was mentioned above or has something to do with Lyme.
- Also consider salicylate sensitivity and/or histamine intolerance.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
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posted
- It takes longer for tissue of someone with lyme to heal. If the tissue was burned, that can take weeks, at least, to heal.
Also be aware that eating most foods will scrape the mouth tissue. You may have to "blenderize" a lot of your meals for a while or eat only very tender foods that won't be scraping at the sides of your mouth.
For meat, cook until very tender and the cut into small pieces so that all you have to do in your mouth is mush it a bit inside your teeth "cage" so no scraping of mouth tissue is done. This works for me.
My mouth issues are different from yours, though, so I hope you do find healing soon (but that might still be at least a month's time as all new tissue has to grow).
I do think the Sea Buckthorn oil will help soothe. Sure does for me. Just don't bite on the capsules until they've softened up.
In the meantime: aloe vera; coconut oil might help.
Be sure to change your toothpaste to a very gentle one (and do not assume Tom's of Maine is gentle, it can have some harsh ingredients, too). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Monti, I have had the weird tongue issues for a little over a year now. The Lyme symptoms started over 10 years go. I don't know for sure if I have Lyme or not yet.
Posts: 142 | From Midwest | Registered: Sep 2015
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posted
Thank you Keebler. I got some new toothpaste as recommended above. Some new Chapstick. Olive leaf and seabuckthorn should be here any day now. I have also been rinsing my mouth with water after meal just to be safe.
I'm no longer sneaking a sip of red wine from my wife's glass or drinking tea. It's tough when u have something so debilitating and then some of the remaining few simple pleasures in life gets snatched up.
But I always tell myself how much worse it could be. I still view myself as lucky in many respects.
Got s little side tracked there lol.
Posts: 120 | From Maine | Registered: May 2015
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posted
Onebeed...I was 6 years before I finally was tested positive for Lyme. It's good to know you have it if you indeed do have it. Hopefully you can figure it all out.
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Keebler
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- Green Tea should be fine. It helps my mouth.
Be sure it's organic, though - and full leaf, loose. Not teabags as one can never know just what is inside of those, all kinds of clippings can be used and often "natural flavors" are added, not good.
Green Tea has some very nice healing and antimicrobials properties. I would stay away from fruit or spiced teas. If you have a Ginger Tea or a Mint Tea, that can be good but not too strong. If it burns, add water. Ginger, not too late in the day as it can be stimulating.
Lemon Myrtle from the place below, good, too, when diluted just right. Antimicrobial.
posted
Wow thanks. I will look into this I've heard tea is acidic which is why I have been avoiding it.
Posts: 120 | From Maine | Registered: May 2015
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posted
I have this too. I am wondering candida. I haven't been juicing in quite awhile so I know it's not that. It feels very stripped and burnt. I think I
may be sleeping with my mouth open again.I switch toothpastes too. I do have the mast cell thing according to 23 so maybe there is something to that.
Let us know Monti what helps.All these little things add up too as well as the big ones. I know when I was on the evil prednisone,
before I knew it was lyme, I got a terrible case of thrush and all skin in my mouth was shedding, along with a dozen other horrible things much worse.
Posts: 294 | From southwest mi | Registered: Dec 2012
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posted
Sickofthepain sounds like you have dealt with a lot!
I haven't found that the seabuckthorn oil does much for me but the olive leaf extract does seem to help. Thank you very much Keebler for the suggestions.
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