posted
It depends on the drug that is prescribed. I was on Clindamycin 5 days a week with orals, 7 days a week.
I got my IV meds from Infuserve and it was about $400 month initially. I had a port and went shopping online for suppplies that I needed to maintain the port and infuse.
Infuserve would have me pay the cash price and then submit to insurance. If insurance paid, they would send me a check for what I initially paid.
With a free rental pump, I was able to get the price down to $200 month for my IV Clindy.
Some drugs used for treatment are more expensive. It pays to call around for the best price.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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posted
I had 3 months of rocephin and flagy, cost me $5,000. Insurance wouldn't pay a cent, but they did pay for the picc line, oddly!
I bought the pre-filled balls and had a nurse come once a week, some people buy the drugs from a compounding pharmacy and use s syringe and slowly push it over an hour. So it all depends on what drugs you need and method of delivery, premixed or if you reconstitute it yourself.
Posts: 133 | From North Shore | Registered: Sep 2015
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I googled around and found some paying 4,000 to 6,000 a month. At let's say 5,000 a month that would be 60,000 a year!
Faithful- your expenses were on the low side it seems.
Neko- how long did your dr. want you to be on the IV?
I'm going crazy waiting for my appointment this week to see the results of the testing and what treatment plan the dr. recommends.
Posts: 12 | From California | Registered: Sep 2015
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tdtid
Frequent Contributor (1K+ posts)
Member # 10276
posted
My info wouldn't be helful since I did IV treatment for 16 months, 7 days a week and sometimes up to 9 hours worth of drips a day.
Also the fact that I did it several years ago, so I know that prices change.
With that said, like another mentioned, we ended up finding that Infuserve in Florida was the best going rate at that time and yes, we called around to tons of companies. But again, this was years ago.
I know that for the full year I was on the IV, there was $27000 to $28000 that was not covered by insurance and we were able to claim that out of pocket amount on our taxes. But that was for the entire year.
I don't know if insurances have gotten better or worse since those days, but I'm here to say that for me, it was so worth it since getting your life back is the most important thing ever.
Good luck to you and I hope you get the answers you need.
-------------------- "To Dream The Impossible Dream" Man of La Mancha Posts: 2638 | From New Hampshire | Registered: Oct 2006
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posted
Thank you!
Posts: 12 | From California | Registered: Sep 2015
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Rocephin, I prepared the IV bags myself.
Just going by memory, but the Roceph was about 1000/mo.
The IV clindy was about $600/mo.
The heparin was also expensive.
If you choose to do the IV Roceph, be sure to get the Ursadiol, aka Actigal, to help prevent gallbladder sludging.
I was a neuro lyme, and the IV meds made all the difference and helped me turn the corner.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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