linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I have recently started having burning pain in my feet. Was wondering if anyone can give me any ideas that can help this?
I am to EMF sensitive to do research, so would appreciate your advice.
Please help this is painful!
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I am taking sublingual drops. Don't know of anyone locally that gives B12 shots.
Do you have neuropathy?
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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B6 can become toxic and CAUSE neuropathy .. so beware.
I give the B12 shots to myself.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
How would I get B12 shots to give myself?
Is that what cured your neuropathy? If so, how long did it take you to get well?
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
I've had neuropathy in my feet for years resulting in a deep burning/sometimes itchy feeling. I over-react to most supplements so can't comment on those.
what seems to aggravate mine the most is heat. Too warm of bath or even shower can increase the symptoms, and hot tubs are completely out for me. I even arrange my blankets so my feet aren't covered or the symptoms start.
For some reason lotioning them before I go to bed also helps, if I don't the symptoms will wake me up. Not sure why it helps, but it does.
Posts: 857 | From northern california | Registered: Dec 2009
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posted
I have severe neuropathy started around 1991 and has progressed from toes up my legs. It feels like frostbite and I am on pain meds which I hate. The only reason Im telling you this is I wish I had treated the co infections early on since I wonder if bartonella has caused this or made it so bad. Dr H has an example of a patient in his book that his neuropathy went away after treatment with the right antibiotics. I cant tolerate any treatment now so my advice would be treat the cause quickly which is probably infection if you are a lyme patient.Nothing has helped me except a little relief with a topical cream with many medications in it and the narcotics.Im not giving up though I will find a way to treat my infections somehow.
Posts: 61 | From wilton | Registered: Mar 2010
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Marnie
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Look into high dose lipoic acid, benfiotamine, acetyl l carnitine, evening primrose oil, as well as the B vitamins (esp. methyl or adenosyl cobalamin forms of B12 and B6, bearing in mind Lymetoo's caution) magnesium. Another idea is to try highish dose serrapeptase alongside the above, if you don't have gastritis.
I had to stop high dose serrapeptase, but am taking the others. Too early to pronunce judgement, but there is plenty of info online about all of them for neuropathy. Mine got a lot worse this spring, with severe burnng in the feet and has died down some.
Posts: 1647 | From UK | Registered: Nov 2008
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posted
I found this on a Gut Health board regarding B6:
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"WARNING about Vitamin B6 Toxicity .... I got Vitamin B6 toxicity from H Pylori. Talk about a limited diet! I had to go on the HP restrictive diet, and the Candida restrictive diet, AND of those choices, they had to be low in vitamin B6!
One word for all of my fellow HP sufferers ... DO NOT consume any synthetic B6 while fighting ANY bad bacterial infection. They need the B6 to colonize. It somehow gets stored up in our muscle, including smooth muscles like the heart, stomach and bladder. It's a ***** to get rid of.
It's not the natural form of B6 found in food that causes the toxicity, but once you're toxic, the natural form exacerbates symptoms, which include severe peripheral neuropathy, tingling in extremities, parathesia almost anywhere, brain fog, frequent urination, headaches, mood changes, memory problems and more gut issues like "non-specific" gerd and gastritis, and heart arrhythmias.
Synthetic B6 is found in B Complex supplements, energy drinks, vitamin waters, protein shakes and bars, smoothie mixes, fortified and enriched foods, such as GRAINS (breads, pastas, cereals, oatmeal, crackers, potato chips, etc).
Here's the tricky part ... Producers aren't required to list B6 content on their label if they don't add it in themselves. But if they use a whole wheat flour, say, that's already enriched with synthetic B6, they don't have to list it.
I'm not saying avoid B6. Having a deficiency has almost the same symptoms. Just avoid the obvious synthetic forms, like supplements, energy drinks, etc. especially Red Bulls!
Producers need to put toxicity warnings on their labels. I LIVED on protein shakes and bars, vitamin waters and the like when I had HP. It's all I could eat. But the price I paid was horrible. And worse, some of that nerve damage can be permanent. Be careful. Avoid ALL synthetic vitamins, in fact -and get your vitamins from food."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
My LLMD recommended a product called Unflame for my burning hands and feet.
It really helps my hands, even at a very low dose, and it gives me a little energy boost too.
I am extremely sensitive and have not been able to use it at full dose. The tiny dose I take has not helped the burning in my feet, but it has reduced the level 10 pain in my fingers to a level 1-2.
do be aware of side effects such as insomnia, headache, frequent urination.
Maybe try taking a (normal) loading dose to get rid of pain -- it works fast! -- and then reduce after a couple days if you are sensitive. Also, one of its ingredients, bottlebrush/horsetail contains nicotine, i believe.
Ground ginger (unsulfited): I alternate this with the Unflame. It really helps. Be aware that ginger root can stimulate the immune system, so if you feel herxy, cut back on your dose.
[ 11-17-2015, 04:41 PM: Message edited by: cottonbrain ]
Posts: 1173 | From USA | Registered: Nov 2007
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
also -- I have seen some tent-like frames you can buy to put under your blanket so that the blanket doesn't touch your feet while you sleep.
Posts: 1173 | From USA | Registered: Nov 2007
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
Lymetoo, that is very interesting about the B6. I take the form called P-5-P and developed neuropathies after about 3 years of supplementing....hmmm...
linky, many of the antibiotics/meds we take can induce neuropathies. Mine began while i was taking frequent doses of diflucan. I was taking other meds at the same time, but i think it was the diflucan that triggered it.
Posts: 1173 | From USA | Registered: Nov 2007
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