LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I know I have B12 issues. does anyone here self inject?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
me
Frequent Contributor (1K+ posts)
Member # 45475
posted
I used to for quite a while. Do you have questions about it?
Posts: 1431 | From USA | Registered: Mar 2015
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
so they say on the FB page that you can self inject but after you first do it in a dr office in case there is a reaction. U has one B12 shot in my life and felt sick after, but not a shock reaction. does that mean im ok to self inject? I think my reaction was becaseu I was so depletted and in need..??
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Careful of cyanocobalamin if you need methyl form...
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
me
Frequent Contributor (1K+ posts)
Member # 45475
posted
It's better to be safe than sorry. You can always call your doc's office and ask. It's easy peasy lemon squeezy to inject if you aren't squeamish about needles. I used to do mine in the upper thigh area.
Posts: 1431 | From USA | Registered: Mar 2015
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
bluelyme, can you please elaborate?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
its not doing it that I am afraid of , me. but im not sure what type of one I had when I ddi get that one shot. I guess I could call the dr office and ask but I doubt they would know as it was "off the books" and a freebee in the office when I was there the one time and just happened to mention that I never had one but thought I neeeded one. back then I didn't know there was a difference.
the gene person I was seeing later told me that shots wouldn't work for me unless they were the right kind , but he never said what would be the righ tone.
he had me on all three kinds in pill and liquid and lozenge forms.
according to my genetic profile I cannot absorb B12 , nor can I utilize it. so whatever that means for me, I am not sure, but all I know is that I have take Bs on my own for decades and it's proabaly not enough. I have so many PA symtoms or at the least almost every B12Def sx.
am I making sense? my brain is spinning
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Yes, it's prolly best to call doc's office. Also, some b 12 shots are mixed with different things, such as methyl b ( if I recall correctly re: methyl b).
One of my docs ordered a compounded med for me bc I can't process a lot of vitamins/they aren't absorbed as well without it. If you want to PM me about it, I can tell you info about it. I dunno if it would help you or not, but you could always ask your doc when you call him/her.
Posts: 1431 | From USA | Registered: Mar 2015
| IP: Logged |
posted
Most of the time, they will give you the cyanocobalamin and it's not as good as the methyl .. for most people.
Lisa. .. I would be careful about taking Vit B6 .. many people respond to it with anxiety and irritability. You don't want to make things worse. There are two groups on FB for those with "B6 toxicity" .. most doctors don't realize it can happen.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
B6.... I hadn'[t thought about that.
I just went to a health session for a new dr today. he was pretty good. I think I will give him a shot. he does chelation too which i think I need for my metals. and prices are reasonable.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
posted
I do. I self-inject methyl B12, which I get from a compounding pharmacy about 50 miles away.
I've had no problems with it, but was considering stopping because it's expensive and wasn't doing a thing for my energy. Then my doctor explained that he'd prescribed it to boost my immune system.
Posts: 117 | From Pennsylvania | Registered: Jul 2010
| IP: Logged |
posted
You need to find out which kind of B12 is right for you (based on your genetics). I found out that the methyl B12 that I'd injected for over a year was wrong for me. I should have been getting hydroxy B12. But not in such huge amounts.
Those shots seemed to help at first, then later not so much. I finally stopped because I got tired of it and wasn't seeing any benefit.
In hindsight, it was the wrong treatment. Yes, we need B12 but apparently a lot of the reason we don't have enough is because something else is out of balance--for example, lithium. Lithium is one of the things needed to get B12 into your cells, and most Lyme patients are low in this. And you can't just start taking lithium, you'll get bad detox from it; and you don't want to overdose on it either.
It's all very tricky.
Posts: 261 | From Nebraska | Registered: Jan 2010
| IP: Logged |
posted
I do methyl B12 injections, w an allergy syringe, very easy and the most assimilable method for Methyl B12
Posts: 532 | From Texas | Registered: Oct 2004
| IP: Logged |
posted
I've been self-injecting with Hydroxocobalamin twice a week for about a year now. I have MTHFR genetic mutation.
The B12 injections have made a huge difference for me. I was no longer able to absorb B12 orally due to no longer being able produce a protein called intrinsic factor.
Lack of intrinsic factor resulted in pernicious anemia for me so I also have to supplement with folate and Ferrochel (Ferrous Bisglycinate Chelate).
Posts: 114 | From California | Registered: Jan 2016
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I read everywhere that B12 you cannot have too much- that is comes out in your urine???
/
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Blymey, how do you feel with your injections???
sillia, I knoow that diffreent B12s are not for everyone . my gene person kept saying I cannot inject, but the supplements he gave me didn't seem to be enough, AND ... the lozenge he had me on made my head hurt really bad, and now I think that was toxins OR just a bad reaction to that type which was -
a combination of methyl & hydroxy-- 3000 mcg.
I was taking only 1/4 of a lozenge and it would still upset me.
?????
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Last June it looked as if self injections would be my only route to recovery from severe B12 deficiency with some frightening symptoms.
I decided to try the topical B12 oils from b12oils.com instead and went for the methyl and adenosyl one, but there are five in the range.
Today I have seen the results of my repeat ONE test from Genova and my B12 is now JUST into the normal category (from top of the abnormal part last spring), so proof that I was right to trust my instincts on this. I am delighted.
If anyone else decides to go this route, the formulator of the oils will advise you if you ask.
PS I have no financial connection to this company!
Posts: 1647 | From UK | Registered: Nov 2008
| IP: Logged |
Lisa .. why can't you inject B12? If you had intrinsic factor you would have no choice but to do so.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
lymetoo- I have no idea why he todl me I cannot have injections of B12. my brain at that time was swarming with everything and its hard for me to focus.
and NOW he will not answer my emails. I am fed up. done with him, but now what?
I was reading the amy Yasko info and see there that it makes sense that I cannot tollerate the methyl.
and..... I am trying to make sense of the livewello site and my reoport there, but I can' tseem to figure that out. i really miss my brain!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
just uploaded my 23andme onto the yasko site and it says:
"B12 injections (choice of Hydroxy or Methyl depends on COMT/Taq status"
so mabe this is why my dr alwyas said I can't do injections. ??
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
posted
Lisa - That's frustrating you're left with these questions without clarity from your doctor!
I'm doing well now with all my vitamin/mineral levels. The injections have made a huge difference for me. My doctor was the one that prescribed the Hydroxocobalamin form for me.
Agree with ukcarry to trust your instincts. Have you checked into maybe using the oils Lisa?
Posts: 114 | From California | Registered: Jan 2016
| IP: Logged |
See the above thread for the Yasko chart based on COMT/taq though I have had two practitioners tell me that they are not sure that AY has it right.
The two active forms of B12 are methylcobalamin and adenosyl cobalamin and they have different functions in the body. If you can convert it, hydroxocobalamin will end up as both these two, but there may be some people who cannot convert, in which case, the methylcobalamin, the adenosyl cobalamin or both is/are necessary.
Posts: 1647 | From UK | Registered: Nov 2008
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
quote:Originally posted by ukcarry: though I have had two practitioners tell me that they are not sure that AY has it right.
great.....
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Bleymy, what oils?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Lisa, I think Bleymy was referring to the B12 oils from B12.com that I am using topically.
Posts: 1647 | From UK | Registered: Nov 2008
| IP: Logged |
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
on the B12.com site it looks like there is a link to order testing---
is that for anyone to do there???
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I don't know that site and it won't work on my ipad at present so can't look at it. Just in case you intended to look at the oils, their site is not b12.com, but b12oils.com
Posts: 1647 | From UK | Registered: Nov 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic