posted
Does anyone have experience with sulfur intolerance? When I take something with sulfur in it, I get a feeling of paralysis like I can't lift my arms or legs or move my mouth to talk. It feels like I am under water.
I never had the problem before I started treatment in October with abx. In November, the first time I noticed the intolerance was after a glutathione infusion. Now I can't even tolerate things like alpha lipoic acid or milk thistle or even broccoli. I never had a problem with alpha lipoic acid before abx.
Maybe it is the probiotics? I thought it might be because of yeast. I had a yeast infection and took diflucan then voriconizole, and nystatin. It didn't help.
I am hoping the abx didn't cause some kind of damage. I have been off abx for 2 months due to the yeast and other issues (parasite treatment). I am also hoping this is not the new normal.
Posts: 142 | From Midwest | Registered: Sep 2015
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posted
I have seem to have sulphur intolerance and am just beginning my journey on finding the solution.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
So sorry you got problems with sulphur...
It's just a guess, but after years reading what happens to chronic lyme sufferers, it looks very common that they may react to binders or anything that cleans the body.
Look at chlorella: more and more people get 'allergic' to chlorella.
Dr. K used to say, it's because these substances (chlorella, sulhpur) attach to heavy metals or toxins, while the body is ALLERGIC to these toxins (specially heavy metals).
So when you take chlorella or sulphur, your body thinks you are taking heavy metals and reacts equally, as it would react to heavy metals.
At least, that is what I understood.
the bad thing on that story is that many of the substances that can heal the problem (of heavy metals and toxins) are seen as being the culprits, so your body rejects them.
------------------------------
Another reason for the allergy MAY be: all chronic lyme sufferers complain of food and other allergies (such as mold, for example). All of us, no exception, I think.
There is a huge problem in the gut for us all, lyme sufferers.
Just see the amount of people fighting chronic candida here. Lyme and candida walk hands in hands.
A broken gut will produce more and more allergies. Not only food allergies, but other allergies too.
The only treatment for that, I think, is any treatment that restores gut health. But the allergies may remain for longer...
Restoring gut health has to pass through solving lyme first (as it attacks the gut). Parasites, probably. Then fixing gut lining... Not easy, I know...
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
Since I never had the intolerance before abx, I am guessing the abx did something to my gut. I have had Lyme symptoms for decades and was able to take Alpha Lipoic acid and eat broccoli fine until last November, no problems. Now the intolerance is pretty severe to the point where I feel I become paralyzed if I try anything with sulfur in it.
I switched from Custom Probiotics for VSL#3 and am taking two a day of those. So far it is not helping. Have been over a month on the VSL. I never eat sugar or gluten. Rarely ever other flours. I stick to the Burrascano diet pretty closely.
I am afraid to go back on abx but I can feel the Lyme coming back. Since I can't tolerate sulfur, I am finding the Buhner protocol difficult since I can tell Japanese Knotweed has sulfur in it. The Byron White formulas have sulfur too.
Posts: 142 | From Midwest | Registered: Sep 2015
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
It's a gene thing (CBS mutation, among others). 23&me test and Amy Yasko's info are both helpful.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I had the 23 and me test. It didn't show CBS or SUOX mutations. Plus if it was a genetic mutation I would think it would have shown up before. I am 53 years old. I took Alpha Lipoic acid before abx with no problem. Now I cannot tolerate it. I will check out the mast cell link.
Posts: 142 | From Midwest | Registered: Sep 2015
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posted
I read the link. I do have the COMT and BHMT variations. However, I do not know what to do about it. I have tried hydroxocobalamin and cut out methylfolate. It has not helped. I was low on B12, so have supplemented with methycobalamin, then switched to hydroxocobalamin injections when I found out about the mutations.
Nothing has helped. I have severe neuropathy also so hate to cut out the B12 altogether but that might be my next step.
Posts: 142 | From Midwest | Registered: Sep 2015
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Read BHMT again. It does similar stuff as the CBS mutation, even if you don't have CBS.
You might try reading Amy Yasko's site for more info, or consider the same supplements for CBS (molybdenum is a good one).
As far as it not showing up before, no one knows what triggers gene expression or when. I suspect it's toxins though.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I have tried molybdenum for quite a few months. No change. I am starting to wonder if this is a result of a mega dose DMSA provocation urine test for heavy metals. I will start a new thread to see if anyone had trouble from this type of test.
Posts: 142 | From Midwest | Registered: Sep 2015
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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bluelyme
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Member # 47170
posted
I had a craving for asparagus. .there is a product called sparga from nutrimedix may help...do you react to garlic?
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Yes, I was going to say Sparga as well. I took it for a while at my doc's recommendation.
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
The molybdenum that I have been using is from Thorne. I am not sure how I react to garlic. I don't eat much garlic. The Sparga looks interesting. I am going to check that out but I will have to wait a bit as I just started back on Tinidazole today. The Sparga contains alcohol.
I called my LLMD today and asked about this problem. He suggested it might be a food allergy and suggested an allergist. Since I have the reaction to supplements also and not just food, I really don't think this is it, but I will call that doctor tomorrow and check it out.
Posts: 142 | From Midwest | Registered: Sep 2015
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posted
You can have a food intolerance and be just as miserable as an "allergy" .. They can't find the intolerances with tests .. But get the regular testing anyway so you can rule out any IgE allergies.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
I already had some food allergy testing done. They tested about 20 particular foods. It was IgG testing though not IgE. The only one that stood out with a really high number was eggs. Eggs have sulfur though I believe. Second was mold type cheese. Also I did have a slight reaction to onions which also have sulfur I think.
Posts: 142 | From Midwest | Registered: Sep 2015
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
There just aren't a lot of docs who know about Yasko's findings or even matters of priority. Everyone is different and certain gene issues have to be addressed first. I'm sure she could figure this out for you.
That said, there is tons of info in her free book below (Autisim, Pathways to discovery).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I had looked into Yasko's website and had downloaded my 23andme results. The recommendations were confusing and conflicting. For example, she recommends the All In One Multi Vitamin for me. It contains Methylfolate. She also says avoid methylfolate for my SNPs.
I also tried a phone consultation with Bob Miller from Tree of Health and it was pretty much the same thing. He had said avoid iron. My iron was very low and my doctors had been telling me to supplement with iron. He suggested $300 worth of supplements that had the same kinds of conflicts I got from the Yasko site.
So I have been left to feel even more confused than before.
Posts: 142 | From Midwest | Registered: Sep 2015
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posted
onebeed .. one comment .. VSL#3 contains dairy. I think they coming out with one that is dairy free.
I really like Custom Probiotics D-Lactate Free.
I've heard a lot of complaints about Yasko's supplements that do nothing.
Have you had a hair analysis for metals and minerals?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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D Bergy
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Member # 9984
posted
I do not have Lyme, but do have Crohns Disease.
I noticed a sulfur sensitivity when I was ill with the disease. onions in particular would wreak havoc in my intestines.
Once I eliminated or greatly reduced mycobacterium paratuberculosis subspecies avium, or MAP for short, this went away along with some of the disease symptoms.
If you Google the pathogen with the word glutathione you get a host of articles on the subject. I have not read in depth on it, but there certainly seems to be a concrete connection between the two.
MAP may not affect you directly, as it does myself, but it might explain the sulfur sensitivity.
I should mention that MAP is notoriously difficult to reduce using antibiotics. But, use of antibiotics certainly could result in more room for increased MAP.
posted
D Bergy - this is interesting, and I believe it may be something like this that is causing my problems. I am going to look into this further.
Posts: 142 | From Midwest | Registered: Sep 2015
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posted
Lymetoo - About the VSL and dairy - I have thought that might be part of my problem with the sulfur. I tried the Custom Probiotics D Lactate free. I was a little confused about the dosage. If I read the bottle correctly, one adult scope has 320 billion CFUs, so if you take two scoops a day 2 hours after antibiotics you would be getting a whole lot of CFUs. I was only taking 1/2 a scoop twice a day. Does this seem right? It is bifidobacterium, not sure if that makes a difference in the dosage amount?
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