posted
Is intense burning on bottoms of feet, calves and thighs a lyme symptom or maybe a symptom of a co-infection?
It seems like the burning is really bad for 2-3 weeks out of the month and then pain goes down some to where it's more tolerable the rest of the month.
I also have burning and aching in most of my body but the legs are worse than anywhere else. Also have pretty bad fatigue as well as many other annoying symptoms.
My history: I was diagnosed with fibro 20 years ago by mayos clinic.
Was tested for lyme by Igenex recently and had bands 41 positive and 23-25 IND on western blot.
I don't remember a specific tick bite but grew up in the country and spent a lot of time outside.
I'm trying to find a good LLMD that practices Burrascano's guidelines. Does anyone know of one? I'm in IL but willing to travel for a good dr.
Thanks for any and all help!!
Posts: 4 | From Illinois | Registered: Aug 2016
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey Jen,
Welcome to Lymenet!
Bottom of feet pain can be linked to Bartonella. This recent "Ask the Experts" article may be interesting since it involves the Bartonella-like pain happening in hands, which started in the feet. Check out the pictures too and you may see something that looks familiar.
As for a doctor- we aren't allowed to post on the LymeNet board the names of docs. So go to this link below- look on the menu to your left and you'll see Doctor Referrals.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Oh, and as you've now seen, the Hold the Mayo Clinic sucks when it comes to helping people with Lyme and tick borne diseases. They are famous for it.
posted
The burning is likely small fiber neuropathy, which is seen in many conditions including Lyme and fibromyalgia. I hope you find a good LLMD and get this sorted out.
Posts: 30 | From Wisconsin | Registered: Sep 2016
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It is quite annoying if I scratch like lighting a match.
Did not know my neuropathy in feet & legs, arms, was do to Bart. I never has these tests done but told have co-infect. Had the tests done for neuropathy did not show so was told it was do to my lyme by a neurologist. Then he dismissed me.
Not able to afford LLMD since none take insurance. Dr. C was only doc around Clearwater Tampa area here he is retired.
He was the 1 who said for sure I had Lyme many moons ago. Was too ill to drive that far not on any of Ins. I could get.
Only treatment was 5 week doxy pic. Yrs ago.
Tin cup Thanks for Info.
How are you glad to see you are still around!!
Huggggssss, to ALL in need...
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Kerry blue,
I missed you! Can you please email me- I don't do PM's (still).
Also let me know it is you when you email so I'll remember why I told you to write to me. It's the brain thing- you know!
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