Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Wow, this is really getting tough. . .
This morning great suffering. Most intense pressure in head. Splitting headache, insane tinnitis, dizziness, sinus, blurry eyes, burning tongue, sore throat.
Plow through.
I seriously think if I could just chop off my head, I might be able to live through this dreaded disease.
My head really serves no purpose at this point of time anyway.
Posts: 2977 | From Florida | Registered: Nov 2016
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Sorry. When I get like that I just tell myself it will pass. It always does.
Posts: 2057 | From Florida | Registered: Feb 2015
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Every morning it feels like I had major surgery the night before. I not kidding.
I know I sound like a broken record and I apologize.
Usually I ll take alka selzer gold and I feel immediate relief.
But none of my box of tricks seem to work anymore.
What if I chop off my left arm, it ll take my mind off of my head?
Now that time I was kidding...
Anyone have any home remedies?
Posts: 2977 | From Florida | Registered: Nov 2016
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Are there any good cranio-sacral massage therapists in your area? That always seems to help release some of my head pressure.
Another thing you could try is acupuncture. Before I moved, I used to go to a neighborhood community acupuncture clinic to help with some of my symptoms and also to help me relax. I noticed there were some acupuncturists whose work helped me more than others.
Tinnitus, head pressure, buzzing and sizzling sensations in my head, squeezing, burning, tingling, ... these are my symptoms.
Acupuncture and cranial therapy both help. Soft background music helps to make my tinnitus less noticeable too - but of course it is still there. I just don't notice it quite as much.
I take some nutritional supplements (vinpocetine, lysine and lithium orotate) that may all help to reduce my tinnitus and related symptoms a bit. They haven't gotten rid of my tinnitus or head pressure, but I do think that my symptoms would be worse without them. I hope this helps!
Posts: 2386 | From New England | Registered: Aug 2011
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Thanks.
Acupuncture around the corner. Will call to check fee.
Jordana posted a link over a month ago for tinnitis background music that I have been using.
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
Sorry to hear that you're suffering with intense head pressure. You may find Inclined Bed Therapy to be helpful. Please take a moment to look at the following article...
https://www.nexusmagazine.com/articles/doc_view/336-inclined-bed-therapy-a-new-angle-on-health "There are some things in life that we seem to accept without question. For most of us in Western countries, sleeping in a horizontal position is one of them. However, after studying the circulatory system in plants, one man questioned the logic in our flat bed theory. Andrew K. Fletcher has found that raising a bed six to eight inches at the head seems to generate remarkable improvements for many people suffering conditions such as circulatory and respiratory issues, diabetes, leg ulcers, migraines, multiple sclerosis, oedema, Parkinson's disease, skin problems, spinal cord injuries, varicose veins and many more."
Posts: 58 | From east coast | Registered: Dec 2009
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Excellent idea.
I m on it.
Posts: 2977 | From Florida | Registered: Nov 2016
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Call your doctor on Monday.
What meds are you on? What pathogens are being treated?
I ask because Lyme & Babesia are the most common culprits for us. It can also be Bart, but in my experience, the first 2 are the worst.
Two possible fixes or help: coffee enemas and magnesium. Coffee enemas are a life-saver with all things Lyme.
Magnesium can be taken orally, but for quickest effect, you can even add some epsom salts to the coffee enema. Even tiny amounts can help, as in 1/16-1/8 tsp.
This is NOT medical advice, of course! This is from my very long experience.
Posts: 3771 | From around | Registered: Mar 2008
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posted
My energy and sense of well-being increased just days into my Inclined Bed Therapy (IBT) experiment. I started sleeping inclined because I was having bouts of vertigo. It resolved the dizziness for me. More people need to learn about IBT and give it try. It's so simple, inexpensive and effective. Just raise the head of your bed 6-8 inches using blocks, books or bed risers. I never want to go back to sleeping flat again.
[ 01-29-2017, 06:38 AM: Message edited by: high brix ]
Posts: 58 | From east coast | Registered: Dec 2009
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Holy smokes high brix,
I listened to you, jacked up my bed, passed out at 7:30pm. Woke up at 12:30am to use bathroom.
Went back to sleep and slept till 8:00am.
That's 12 1/2 hours of sleep. I was so worn down and sick. Feeling better. Thank you.
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
High brix, if one uses bed risers on just one end of the bed, can an average bed frame take it without breaking in the middle or something? Maybe a dumb questions, but I'm just trying to understand if this would structurally hold up, as I have a really heavy mattress). I know Bed Bath Beyond etc. sell bed risers
I second coffee enemas as immediate relief from a lot of Lyme-related and esp. Herx-related and various treatment-related symptoms. Just be sure to do correctly so you're not making yourself more wired!
Posts: 30 | From Massachusetts | Registered: Jan 2017
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posted
Hmmm... I am finding this VERY interesting. I have a mom with M.S. that can hardly walk and gets a swollen foot... and a dad with parkinsons... and SIGH... then there is me with the deadly lyme combo.
I think we ALL are going to try this. Such a simple thing couldn't hurt!
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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posted
Great to hear Bonnie! I was happy to read your last post. For me, I knew that IBT was working almost immediately. It's an important piece of my health puzzle. I started sleeping inclined about 8 months ago and haven't looked back.
Posts: 58 | From east coast | Registered: Dec 2009
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posted
Foxy, sorry to hear about the different health challenges in your family. Best wishes as you all give inclined sleeping a try. When I heard about IBT last year, I didn't have anything to lose except my vertigo. The dizzy spells stopped shortly after starting. As mentioned above, my energy and sense of well-being increased just days into my Inclined Bed Therapy experiment
Posts: 58 | From east coast | Registered: Dec 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I've been going through this the last couple weeks. crazy excruciating head pressure, stabbing ear pain, neck pain and godawful tinnitus.
I hate to say it but I understand why some people commit suicide. I only get relief when I sleep and I get 3-4 hours a night. it's physically exhausting.
i can take most of it but not the tinnitus and jaw pain.
if you figure something out, let me know. so far nothing helps.
I feel for you.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Have you seen the post from 1-29-17, "Headache Pressure Relief for My Daughter"? It tells how the daughter suffered for seven years from bad head pressure and headaches and then achieved total relief from a certain method. Please check it out, its now about two subject entries above yours.
Posts: 55 | From Maryland | Registered: Aug 2014
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I'm taking ginko and mag. no help.
mine has been much worse since I fell in the yard and snapped my neck so hard.
I went to dr and he wouldn't even tak an xray.
bout finished with him.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
randibear. 🐻 please try the Inclined Bed Therapy.
My vertigo, dizziness, and tinnitis are so scary and debilitating, I felt like throwing myself in front of a train.
2nd night of sleeping, and I mean really good sleeping, with my bed inclined has helped ALOT.
Dear sweet Jesus, Thank you for bestowing this good day upon me.
BTW, I still have chronic fatigue, chronic pain, chronic Neuro-Lyme, ya da ya da ya da . . . one day at a time. 🍕
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
I'm very sorry for the suffering you're going through. I have written a message that is titled "Head Pressure Relief for My Daughter" that I wrote on 1/29/2017 that explains how she eliminated her "head pressure" headache after 7 years of pain. I hope it helps give an idea of how to approach this symptom and give some hope also. She is truly "head pressure" free at this point and has been for the past 3 to 4 months. Take care and I hope you get relief soon.
Posts: 80 | From Massachusetts | Registered: Feb 2008
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posted
I had those symptoms when my candida was systemic. Have you had your yeast checked recently?
Posts: 199 | From Let's Go Pens! | Registered: Apr 2010
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I had extremely bad bout of candida for over a year.
Since treatment started end of November, I have had remarkable improvement in that area.
Yesterday, saw a picture of me taken 3 months ago. Such a sad, pathetic creature. Head down, eyes slits, mouth in downward frown. Wrenched in pain. So very, very, sick.
Made me cry when I saw it.
I have improved a lot. Little subtle gains not noticeable when you 're going through it.
But I still suffer other body infections.
And it hurts me greatly to think about all the doctors I have seen that dismissed me.
I mean, how can you look at my picture and clinically not realize this woman is on deaths door ?
Lyme has got to be "The Crime of the Century."
Posts: 2977 | From Florida | Registered: Nov 2016
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
quote:Originally posted by Rumigirl: coffee enemas ... Coffee enemas are a life-saver with all things Lyme.
Ditto.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
I had it too for a long time, my whole head, face, teeth everything would hurt. I was like a living zombie. The ONLY thing that worked was 2-3 years of Babeisa treatment. It finally went away.
-------------------- God Bless You! Everything..is just my opinion. Posts: 6638 | From Michigan | Registered: Jun 2001
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posted
my daughter has had a headache since 1/1/17. Has been really tough, her mood had been really upbeat before this even though everything was always going wrong / hurting her.
Thanks so much for all this great info. I think we will try IBT TONIGHT!
For those who have treated Babesia, did you use Mepron? And if so any tips for taking...she can not get it down.
Posts: 62 | From VA | Registered: May 2016
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posted
AJB, sorry to hear of your daughter's chronic headaches. I hope she finds relief soon! 'Intracranial pressure increases and overall brain circulation diminishes when lying flat'. Sleep posture can have a powerful impact on quality of sleep and overall health http://www.hawaiireporter.com/heads-up-the-way-you-are-sleeping-may-be-killing-you
[ 02-19-2017, 05:48 AM: Message edited by: high brix ]
Posts: 58 | From east coast | Registered: Dec 2009
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
randibear, have you tried a good chiro yet? If not, look for one who has advanced training in ACT. They all can do ACT but advanced training practitioners are the best.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
AJB said... "For those who have treated Babesia, did you use Mepron? And if so any tips for taking...she can not get it down."
I put it in a small piece of hotdog, mask it with peanut butter, or wrap it in cheese and they gobble it right down.
OH WAIT! That's for the dog!
You know, I have never heard of someone having trouble getting it down before, but can certainly understand how it could be difficult.
Many don't like the taste, so not sure if that is the problem here, or the thickness (texture) is causing the problem, or she has a limited swallowing ability.
Might you consider Malarone (in pill form) instead of the Mepron? It is a combo of atovaquone (Mepron) and proguanil. Cheaper too.
Or, and not trying to be funny...
The old-fashion way- hold your nose and swallow? Then chase it with Hawaiian Punch? (As opposed to Jack Daniels or peppermint schnapps.)
I'm afraid if you added it to a liquid (like her favorite juice) to thin it down you'd still have a problem and it would taint the taste of the juice and she still wouldn't get it down.
Don't know how old she is, so I don't know if the "I'm your mother and I said to take it" would be helpful?
Obviously, I don't know how to fix the situation. So sorry too! If you do find something that works please lettuce no. OK?
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