susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
My hematologist said last year I might have Adrenal Insufficiency. I've had tests run recently - my Cortisol and ACTH are low normal. New Endo. ordered Cortrosyn Test. How icky is this test? Should I do it?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
| IP: Logged |
posted
I had the saliva test .. probably way more reliable than what mainstream doctors will do.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I would never do a "challenge" stimulation test.
I know someone with CFS who had that done and it took her body a full six months of over the top adrenal hyper overload before she felt her normal again. It was just torture.
I don't think someone with lyme has the constitution for this to be a safe test. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- There is no "antidote" to a stimulation test that goes wrong.
Be sure to read Wilson's book and others here, too. I think there are many other approaches that are far, far, far safer than injecting or taking internally a steroidal hormone for a challenge test to see what your body will do.
There may be only one or two endocrinologists in the U.S. who are really, truly lyme literate. Be sure yours is before letting them do any sort of challenge test. Even then, if they were LL, they likely would not take such a risk.
I remember how very "wired to the moon" I was when I was forced to do a steroid inhaler. It took me months to have my body settle down. That friend I told you about counseled me when I kept thinking that some doctor or the ER surely should have something as an "antidote"
when she told me what she'd been through with the challenge test, it really stuck with me. I'd sure hate to see you have to go through something like that.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/